Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

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Comments

  • Rewriter
    Rewriter Member Posts: 493

    Thank you
    Hello Jill,

    Thank you for the warm welcome. Since I was told I have been reading more and more just to know what is going to happen and what I need to know about preventive and pro active things needed in my life. I will be going through Vaginal Brachytherapy for a 3 week period with three treatments, one each week. The Oncology Radiolgist feels that this will be enough to ensure non to come back to the vaginal cuff. Until you get told you have cancer you have no idea how you will feel or how you will react. I have been lucky as they took 32 lymph nodes and found no cancer in them. There was only in the uteris and in the cervical connective tissue. There was none outside of the uteris itself. In speaking to all the Dr's and Nurses I have seen thus far they feel that this was caught early and is very treatable. I know that I am looking forward to the treatments to be all over with and to regain some sort of control again. I feel that this has taken all the control over in my life. At first this was the only thing I thought of when I woke in the morning and the last thing I thought of before I went to sleep. I know it will never be far from my mind but I also know I have to make a point of living the best I can with the wonderful man that stands there with me and the two adult kids I have. Again let me thank you for the welcome and I do plan on asking questions if I have any. I want to know as much of what is going to happen to me as well as what is going to be done to me.

    Alta
    I understand how focused you must be now on your diagnosis and treatment, and that is natural. I do not want to speak for anyone but myself, but initially my feeling was that I could never again have a "normal" life or one without that lurking fear. My diagnosis was three years ago; and I am here to say that I enjoy my life and don't think much about cancer. Please believe that all of this will get easier; right now you are immersed in the treatment stage. Once that is over, and you are assured once again that the cancer was very treatable, you can start regaining control over your life. It might take time, but we are here to support you through it.

    This site allows you to search for information by going to the top right-hand corner of this page and clicking Search CSN Content. There is plenty of information on the Uterine Board about vaginal brachytherapy. I think you'll find this info very reassuring.

    All the best,

    Jill
  • iamawonder
    iamawonder Member Posts: 5
    Rewriter said:

    Alta
    I understand how focused you must be now on your diagnosis and treatment, and that is natural. I do not want to speak for anyone but myself, but initially my feeling was that I could never again have a "normal" life or one without that lurking fear. My diagnosis was three years ago; and I am here to say that I enjoy my life and don't think much about cancer. Please believe that all of this will get easier; right now you are immersed in the treatment stage. Once that is over, and you are assured once again that the cancer was very treatable, you can start regaining control over your life. It might take time, but we are here to support you through it.

    This site allows you to search for information by going to the top right-hand corner of this page and clicking Search CSN Content. There is plenty of information on the Uterine Board about vaginal brachytherapy. I think you'll find this info very reassuring.

    All the best,

    Jill

    Jill
    Thank you so much for the responses. I do find that every day is a little easier. I am now just at 4 weeks post op and have two more weeks before radiation. I dont feel as nervous as I did just a week ago. I went to see the radiologist on Monday and after she told me what was to be done I felt much better and was able to relax more. I am looking forward to the time when all this will be in the back of my mind. I have been searching all over this site and reading a lot of these posts. Seeing others that have had similar experiences is so helpful. Making the decision for surgery and then radiation has gone very fast as I was diagnosed in Feb and am now just about ready for the end. I have been reading so much and anything I have not understood in reports from the Dr and the pathologist I have been looking up. I have so much information in my head right now it sometimes seems overwhelming. The Radiology Oncologist said I made her job easier since I had made myself so aware of things about my cancer and treatment options. I am just one that needs to know what is going to happen to me. The night before my surgery I was on the Dr website and watched a video of him doing the surgery, just to know what is going to happen. He is one of the best in our area and the top in his field for laproscopic surgery, and works out of 3 different hospitals doing surgery.
  • tinydancer22
    tinydancer22 Member Posts: 5
    Roll Call
    Hi Linda, thanks for your post and what a helpful site this is. I had a complete hysterectomy 1/5/2011. The pathology report came back clear (nodes, tissue samples from all organs. This was a contained uterine cancer.) At the six week follow up my surgeon took a biopsy from the vaginal cuff as he said he saw some granulation. The biopsy came back metastatic adenocarcinoma grade 2-3. So the cancer recurred in a matter of weeks. Off to radiation. In the meantime I am doing alkaline water, barley greens etc. my ph is 8! which is excellent. My nutrional counselor says over and over again cancer cannot live in an alkaline body. I am very nervous about external beam radiation and 4 bracheytherapy tx's I have had two EBRT so far. I dread the side effects and went against my inner voice that kept telling me not to have the radiation. This is all way too scary and who knows whats really going on with all this technology. Thanks for listening. Serenity ps I am in west central florida.
  • tinydancer22
    tinydancer22 Member Posts: 5
    test post for roll call
    Hi Linda...I posted info for Roll Call but it doesn't appear on the page. I wonder where it went....hope this gets out there....thanks for your post serenity
  • iamawonder
    iamawonder Member Posts: 5

    Roll Call
    Hi Linda, thanks for your post and what a helpful site this is. I had a complete hysterectomy 1/5/2011. The pathology report came back clear (nodes, tissue samples from all organs. This was a contained uterine cancer.) At the six week follow up my surgeon took a biopsy from the vaginal cuff as he said he saw some granulation. The biopsy came back metastatic adenocarcinoma grade 2-3. So the cancer recurred in a matter of weeks. Off to radiation. In the meantime I am doing alkaline water, barley greens etc. my ph is 8! which is excellent. My nutrional counselor says over and over again cancer cannot live in an alkaline body. I am very nervous about external beam radiation and 4 bracheytherapy tx's I have had two EBRT so far. I dread the side effects and went against my inner voice that kept telling me not to have the radiation. This is all way too scary and who knows whats really going on with all this technology. Thanks for listening. Serenity ps I am in west central florida.

    Stage 2 Uterine cancer
    Hello, I am just at 5 weeks recovery from a total hysterectomy. I had stage 2 grade 1. They found it had not gotten into the lymph nodes and was contained in the uteris. I am to start bracheytherapy three times for 3 weeks. I spoke with the radiation Oncologist and she said with the results from the biopsys and everything in all the reports that would be what is needed. I will then start the count down for the first 3 month check up.

    Sorry to hear yours came back so soon. I think I am more afraid of Chemo than of radiation, I watched my mom go through both and she had more trouble with the Chemo.

    Good luck with your treatments and hope everything comes out ok.

    Alta
  • lawyerserv
    lawyerserv Member Posts: 5
    deanna14 said:

    Roll Call
    Hi, I am Deanna. I am 39 years old and my doctor performed a hysteroscope in July 2008 where he found a polyp that was malignant. I was seen by a gyn/onc in August 2008, who then performed a total abdominal hysterectomy with staging on September 11, 2008. I had Stage IIIC Mixed endometrial and papillary serous carcinoma, I had one positive pelvic lymph node. I started treatment with 25 external radiation in October 2008 and finished in December with 3 internal HDR txs. I also planned a wedding and got married in November while taking radiation treatments, lol! I started chemotherapy in Jan.and will have carbo and taxol every 21 days for 6 or 7 cycles. I have already complete 3 of these treatments and tx #4 postponed due to low blood counts. I am being treated at by Cox Health Systems in Springfield Missouri at the Hulston Cancer Center.
    God Bless you all,
    Live Strong!!
    Deanna

    UPSC Stage 3c - anybody without reoccurrence
    Hi, I'm new and sometimes distraught over this diagnosis. I had no symptoms and it was picked up on a pap. Got my results 5/5/11 and saw an oncologist on 5/5/11. Had a complete laproscopic hysterectomy on 5/16/11 which I recovered from quickly. I have stage 3, grade 3 uterine papilary serous and have started follow up treatment of 3 chemos of carboplatin and taxol, followed by 5 weeks of external radiation, then 3 more chemos. I should finish sometime in the fall. I actually feel really good and have resumed my other activities. But I need encouragement. Is there anyone out there with stage 3c (I was positive for pelvic lymph nodes but not paraortic lymph nodes) who has not reoccurred?

    Arlene
  • lawyerserv
    lawyerserv Member Posts: 5
    Ro10 said:

    Welcome Jen
    I too had my total hysterectomy by Davinci in January. The recovery period was very good. I was only in the hospital overnight. Minimal pain afterwards. I never had to take any pain medicine. My biggest discomfort was the bloating afterwards. They inflate the abdomen with gas, so they can see the organs. My surgery was 6 hours long, so I guess they used a lot of gas. It took weeks to get rid of the bloating.
    I had an abnormal pap test and thought I would only need surgery to take care of the problem. I was shocked to find out I had Stage III-C UPSC. I have had 3 chemo treatments, my 28 external radiation treatments. I will have internal radiation next Tuesday. And then I will have 3 more chemo treatments. Hope you family becomes a support for you, rather than a headache.
    Good luck with your surgery.

    Hi Ro10, I am new to this site. Can I ask how you are doing since this post?

    Arlene
  • lawyerserv
    lawyerserv Member Posts: 5
    RoseyR said:

    YOUR TREATMENT IN PHILADELPHIA

    Dear Minniejan,

    I too am in treatment for recently diagnosed uterine cancer at HUP.

    I love the Abramson Cancer Center--bright and cheerful--and find my oncologist and radiologist very competent although wish I could get an occasional "consultation" with the onc; not once since diagnosis five months ago have I had even a half-hour sit down session with him/her (trying to proect identity), just quick pelvic exams followed by pacing around the room and "do you have any questions?" The few emails (three) I have ever sent get referred to the chemo nurse, who calls and tries to answer. So my only dissatisfaction is with quality of communication: pretty important, I'd say. Radiologist on other hand is open to appointments involving JUST consultation and even gave me her email address.

    Have just finished third round of taxol/carboplatin: your own regime, with amazingly few side effects so far. (See earlier posts on trying to avoid PN) but a bit worried about how MUCH radiation to pursue; second opinons are conflicted on just brachy versus full pelvic plus brachy. Need to decide within a week! Worry about longterm effects of pelvic as I need to go back to work in September to teach twelve hours a week: not a lot, but attacks of diahrrhea are one thing at a desk job and another if you're in front of a class!

    Let me know how the brachy is going; will be starting myself in about three weeks.

    Have fantasized about starting a small support group in Philly for women with high grade (2-3) endometrial cancer but would prefer a small group (5-8?) who are upbeat, on the whole, and determined to survive. Perhaps we could get together once a month for dinner at great local restaurants or host each other in our homes or apartments?

    Anyone interested?

    Rosey R

    UPSC stage 3c, grade 3 and update
    Hi Rosey, I am soooo interested you have no idea. I am determined to survive and am looking for encouragement. I live in Broomall in Delaware County and am very interested in meeting others just like us. I would be happy to host. Please let me know.

    Arlene
  • lawyerserv
    lawyerserv Member Posts: 5
    UPSC roll call
    Hi Everyone, I am new to this board. I was diagnosed with Grade 3, Stage 3c upsc in May 2011. I had a total laproscopic hysterectomy in mid May and began follow-up treatment: 3 chemo of carboplatin and taxol, followed by 5 weeks of external radiation, then 3 more chemos. I should finish sometime this fall. Bad news is my son is getting married September 17th, right at the end of this treatment. I am upbeat and hopeful in the face of this. Can any survivors out there give encouragement. I'm new and needy.

    Arlene
  • lkchapman
    lkchapman Member Posts: 106

    UPSC Stage 3c - anybody without reoccurrence
    Hi, I'm new and sometimes distraught over this diagnosis. I had no symptoms and it was picked up on a pap. Got my results 5/5/11 and saw an oncologist on 5/5/11. Had a complete laproscopic hysterectomy on 5/16/11 which I recovered from quickly. I have stage 3, grade 3 uterine papilary serous and have started follow up treatment of 3 chemos of carboplatin and taxol, followed by 5 weeks of external radiation, then 3 more chemos. I should finish sometime in the fall. I actually feel really good and have resumed my other activities. But I need encouragement. Is there anyone out there with stage 3c (I was positive for pelvic lymph nodes but not paraortic lymph nodes) who has not reoccurred?

    Arlene

    Clear so far!
    Hi Arlene,
    I was diagnosed with high grade stage 3C(para-aortic nodes) UPSC in 1/09 and I am still dancing with NED as they say. I recently passed my 2 year mark since finishing chemo. I didn't have the sandwich treatment. After recovering from my (lap) hysterectomy I had my XRT/cisplantin/HDR combo up front followed by 6 rounds of carbo/taxol. So far so good. I'm sorry you had to join our club, but glad you're doing so well. Hang in there and just take it day by day. The treatment isn't nearly as bad as you imagine. :o)

    Laura
  • mhilda
    mhilda Member Posts: 12

    UPSC roll call
    Hi Everyone, I am new to this board. I was diagnosed with Grade 3, Stage 3c upsc in May 2011. I had a total laproscopic hysterectomy in mid May and began follow-up treatment: 3 chemo of carboplatin and taxol, followed by 5 weeks of external radiation, then 3 more chemos. I should finish sometime this fall. Bad news is my son is getting married September 17th, right at the end of this treatment. I am upbeat and hopeful in the face of this. Can any survivors out there give encouragement. I'm new and needy.

    Arlene

    UPSC roll call
    I am a newbie and I was diagnosed with the double whammy of Uterine cancer and Ovarian Cancer in May 2006. I had a complete Hysterectomy. I had 6 chemo treatments (Taxol and carboplatin. I then had 5 weeks of external radiation and 3 internal radiation. I started with 155 CA125 and by the third chemo treatment it was down to 10. It has stayed in the single digits since. Last CA125 was normal. In February of 2009, the radiologist found very small spots on my lungs. One grew and I had a PET scan in December 2009 and the spots were benign. Now in June 2011 my internist found a "mass" on my right lung. I had a CT scan and the results of that were that I needed to have a CT scan biopsy and a PET scan. I am due to have that on 20 June.

    Mhilda
  • SASR
    SASR Member Posts: 1
    Roll Call
    Sharon - Adenocarcinoma-Stage 1B, Radical Hyster 2007, Recurrence on vaginal cuff Now-July 2011,Planned treatment-external and brachy radiation
    Houston, TX
  • lovemysaints
    lovemysaints Member Posts: 15
    Diagnosed 2 weeks ago
    My name is Brook and I live in NY. I was diagnosed with Stage 1 two weeks ago. I meet with my oncologist for the first time this week so haven't gotten any details on the cancer (other than my research) or started any treatment yet. Definitely looking for a support group!
  • Fayard
    Fayard Member Posts: 438

    My daughter, Angela
    My daughter Angela, had cancer surgery July 8th, 2010 on her 38th birthday. She is married with three small children. She is out in California and will be treated at U.C. Davis Medical center. We all live in Texas. There is no family out there that is able to help. We will be flying back and forth. Her cancer is undifferentiated/endometriod 3c cancer. She is still iln the hospitall, but my be released today. Her wonderful mother-in-law, Mary, is two doors down in the same hospital with ovarian cancer IV and is not doing well. This is really hard on Angela. I really need to hear from somebody that has the same condition and doing well. Angela will start very aggressive treatment in two weeks. Linda

    Anyone from San Diego, CA?

    Anyone from San Diego, CA?
  • nicolegarza
    nicolegarza Member Posts: 27
    Roll Call
    Well my names is Nicole and I'm 28 and I was diagnosed last year at 27yrs old in June 28, 2010. I live the central valley in CA and I received surgery and treatment here as well.. I had a 26cm mass and had exploratory surgery June 28th, after 5 hrs in surgery I woke up to hear I have a 4lb tumor and received a total hysterectomy. I was crushed!!! I have no children and had no time to even think of harvesting any eggs... So my dream of being a mother is crushed!! Yes I know adoption is an option but with the that fact that I had cancer goes against me for one and also that its soooo expensive! Among so many other concerns! I HATE THIS STUPID DISEASE!!!!

    So my official diagnosis was Adenocarcinoma Endometrioid Type, Stage 1A Ovarian/Uterine Cancer. I had surgery and 3 rounds of carbo/taxol.

    I was only supposed to be in the hospital for 2-3 days and ended up there for 2 weeks!!! I was told a possible hysto but it was exploratory so I wasn't for sure... He(my Dr.) knew that the ovaries were affected but had no clue my uterus was filled with the same exact caner and it had not spread. It was the same type just in two separate places at once. He was in surgery and something told him to remove everything and he biopsied the uterus after and found it about 70% filled with cancer. I had several complications with my wound healing and had to have it reopened and had to have a wound vac put in!!! OMG SOO PAINFUL!!!! I ended up going home with a small wound vac and as my wound got smaller so did my wound vac sponge and machine did as well. I was almost completely healed wound wise when I started back to work and the same week started chemo... I did 1 week on 3 weeks off and chemo jacked me up! My body ached for 5 days after so bad I had to use a cane to walk. I was supposed to have 6 rounds of chemo total but after my 3rd I was sent to see a specialist at UCSF and she did a steady on my case and decided 3 vs 6 rounds there was no difference and I was officially cleared Sept 30 2010.

    So I am doing well cancer wise... now my battle is of the mind and heart now oh and financially!!! There's so much more to my story but that's the short end of it...

    I am very thankful to have found this site... haven't had a group to talk to... but a friend of mine and fellow cancer survivor just got a support group together and we had out first meeting last sat but again most of the women are older then me... but Its still good to talk to someone who knows what I'm going thru even if we have differenct types! I am thankful for all the support I can get!

    Nicole
  • california_artist
    california_artist Member Posts: 816 Member
    RoseyR said:

    Dear Bea-Mil,

    Curiously, despite a recent diagnosis of an aggressive uterine cancer that usually has poor prognosis (MMMT, stage IB, with no signs yet of metastasis), and only 50/50 chance of surviving five years, even after chemo and radiation, I have felt a newfound calm that I've never known before.

    Of course I had a few bad days when I started reading articles online about the aggressive nature of this cancer (possibly a bit worse than even serous forms).

    My worst moments concerned breaking the poor prognosis to my mother, who is 91 and in good health; I am her only daughter and although she has two sons, I am her major emotional support; we talk every day by phone and I spend every other weekend with her.

    Hating to frighten or depress family and close friends, I haven't shared the prognosis with anyone! All they know is that I needed a hysterectomy to remove a cancerous tumor and that to help prevent recurrence, I need follow-up chemo and radiation. They probably assume recurrence in five to ten years--not the one to two that often typify this cancer!

    Other than trepdiation about sharing the prognosis with family (at her age, my mother COULD die before I do, so why depress her with a grim prognosis? I'd rather not share it until and unless I have a serious recurrence (to lungs or liver), in which case of course I would tell her I might not have much time left. Nor do I want to see my two kid brothers look at me every moment with fear and pity; did anyone else struggle with this issue? I COULD share prognosis with a few close friends from work (a small group I often socialize with, who are great) but fear I'd be defined primarily by my disease--and be seen as a "walking death bomb," inciting sadness and depression even among close friends who might, being human, prefer to avoid my company too often because, being human, a poor prognosis would cut too close to home: reminding them of their own mortality. Well do I understand such reactions; I could even forgive them. As long as they know merely that I have uterine cancer and am in extensive treatment to avoid recurrence, I feel that's enough, and knowing this, they have been very supportive. I'd like to hear from anyone else who has struggled with this issue: how MUCH to tell family and friends.

    Other than THIS issue, I am at peace most of the time: feeling that if I live even another 3-5 years, that's OK; I don't think I am afraid of dying. Like most, I'm hardly heroic in wanting to avoid too much suffering along the way; quality of life often seems more important to me than mere longevity.

    So other than a few bad days--the worst incited by conflicts about how much to tell others--I've felt little panic or depression despite my diagnosis. I feel, curiously, little depression OR panic and now enjoy, with good medical leave, a slowing of my usual rushed pace of life. Of course I will fight to live as long as I can--through major changes in diet and my own online research. But feel curiously calm and centered and able to enjoy many simple pleasures most of the time, even without yoga or meditation. (A dramatic change of diet since diagnosis--NO sugar, NO white flour products, lots of whole grains, beans, green vegetables, only organic chicken and turkey, among other changes, boost of essential fatty acids (Omega 3 via fish oil and flax) may, I suspect, be contributing to my sense of calm; lots of green tea, known to attack cancer cells, also calms the nervous system. And in making such changes, I find NO food cravings for sugar or fried food--just a sense of satisfaction and calm, for finally I am well nourished. In the process, since early September, though it was not my MAIN goal, I have also lost 30 pounds (at age 63, I have gone from 163 to 133, lowering my blood pressure and looking MUCH better in my now loose clothing.)

    One of my greatest satisfactions has een reading books on cancer and nutrition that are optimistic, giving me some sense of elements I can control despite the harrowing nature of the disease. If you can read only one, I'd recommend Anti-Cancer, by a pyschiatrist and Ph.D in science who twice surmounted brain cancer partly through nutritional changes based on fifteen years of research. The next best one I've read is Natural Strategies for Cancer Patients by Dr. Russell Blaylock.

    So am glad to hear you have found a curious sense of peace since diagnosis and wanted to share a few reasons I can relate to it. In short, I feel OK about the chance that I may live just a few more years and have already started to put some, not all, "affairs in order." Yet I am not giving up, either, the attempt to be one of the few who survives five to ten years with this diagnosis. I am otherwise very healthy (few colds, no allergies, no other syndromes) and feel GREAT, both physically and mentally after three rounds of carbo/taxol; have had virtually no side effects except oaccasional fatigue, along the way.

    Merely need to reconcile how much--and how soon-- to tell family about the usual prognosis for this uterine cancer.
    As long as they can look at me with hope and optimism, the longer I see myself reflected in their eyes as "the usual Rosey," just one who needs a lot of treatment to avoid recurrence.

    Warmly to all of you,
    RoseyR

    I hardly know what to say.
    Rosey, I read you intro to the board today and was very touched by your spirit of acceptance for what is, combined with your willingness to do whatever you can to live your best and longest life.

    I was also very conflicted about who to tell what to, especially since when I left the hospital I was told I had adenocarcinoma, the usual type and I was Stage 1A. Both of which were a lie. My lab reports on the pap serous were done on the second day of my stay, but for some reason my doctor didn't tell me, let me go home thinking everything was alright, I told all my family the good news, and didn't find out the truth about pap serous til I went in for him to check things at the first visit. Then I was doubly devastated because I was in no way prepared for bad news, much less terrible news. I digress. once I found out about the poor prognosis, he said I would most likely only live 18 months without chemo/rad, I didn't know what to do. I did tell my sister right away because she had been in daily contact with me. My daughter had brought me so she was there when I broke down. But I did struggle with telling my mom and my son, who is very close to me.

    In the end, because my mom and sister live together along with my sister's family, even though my mom was 87 I told her. I asked everyone not to tell my son as he was so happy I had a cancer at a stage that had good survival rates and I really wasn't worried so far as he knew.

    So, I do understand your predicament.

    By the time I did tell him, I had found my way to my own approach to fighting cancer and was pretty friggin' optomistic considering the circumstances and I think that came across in my telling. He didn't feel I was worried so he worried accordingly.

    Best wishes,

    Claudia
  • nicolegarza
    nicolegarza Member Posts: 27
    satarell said:

    hi im satarell from texas
    hello my name is satarell or sat for short. I am 27 years old and I was diagnosed with adenosarcoma about 2 weeks ago. They want to do a full hysterectomy but keep going back for more biopsy. I haven't had any kids so they have gone to 3rd and 4th doctors to see if there are any options. They removed a cerviacl polyp that had mixed cells. They also found another mass on my right ovary.
    I worry they are to concerned over child birth more then the cancer.

    wow
    we were diagnosed at the same age... its crazy cause the age for women who get this are normally in there 60's.... how are you now?

    Nicole
  • bamalady
    bamalady Member Posts: 1
    deanna14 said:

    Welcome Jean!
    It seems like you have had a rough time with your recovery. Hopefully you are on the mend now. Do you have to have chemo?
    Just wanted to welcome you to the site. There are a lot a great ladies on here.

    Omentum Cancer
    In 2007 I had a colon resection and a hernia removed. After having a colonoscopy the doctor found a polph to large to get out, thats why the surgery. The doc said I had omentum cancer. I had six rounds of rotten chemo. Made me very weak, lost my hair and just had no strength at all. Did not want to eat, nothing tasted good. I went for pet scan every three months , then six months. So far nothing has showed up. My blood work is all fine. I go back in September for another cat scan and pray all is ok. Thats all we can do is pray because cancer is so stinking. That chemo knocks you for a loop. I read where one lady worked while taking it. I do not know how she did it. She was one of the lucky ones. I wish I knew of this place when I was going through everything. I am also left with freezing feet on the inside but the outside of my foot is warm. I wear socks to bed and three blankets on them and they are still cold.Has anyone else had this problem??? God bless each and everyone of you.
  • Fayard
    Fayard Member Posts: 438
    bamalady said:

    Omentum Cancer
    In 2007 I had a colon resection and a hernia removed. After having a colonoscopy the doctor found a polph to large to get out, thats why the surgery. The doc said I had omentum cancer. I had six rounds of rotten chemo. Made me very weak, lost my hair and just had no strength at all. Did not want to eat, nothing tasted good. I went for pet scan every three months , then six months. So far nothing has showed up. My blood work is all fine. I go back in September for another cat scan and pray all is ok. Thats all we can do is pray because cancer is so stinking. That chemo knocks you for a loop. I read where one lady worked while taking it. I do not know how she did it. She was one of the lucky ones. I wish I knew of this place when I was going through everything. I am also left with freezing feet on the inside but the outside of my foot is warm. I wear socks to bed and three blankets on them and they are still cold.Has anyone else had this problem??? God bless each and everyone of you.

    Welcome!
    I am glad to hear you are cancer free.
    I had uterine cancer stage 2, grade 3. Had a hysterectomy and the cancer was all removed. Lymph nodes were all clean, 58. I am just one treatment away from finishing chemo, next Friday. Tired and lost appetite a little just these past 2 weeks.

    In regard to your feet, my left one is freezing cold and my right one is burning hot. The doctor says it will go away after chemo. I am almost sure it will not, because it started it right after surgery, before chemo. I talked to a friend neuro doctor, and he said that it is probably that the doctor cut a nerve. The bottom line for me is that if he cut a nerve I will do my best to adjust. I see my onco as the God who saved my life.

    I just bought some NEUROPATHY OIL in Amazon. I going to start using it tonight. It supposed to work for the pain, but I am hoping it gives me some comfort in both feet.
  • daltongregg116
    daltongregg116 Member Posts: 1
    pjk said:

    Gloria -
    I was just diagnosed this month with Grade III uterine cancer. Surgery just was scheduled for June 29. Lots of worries here too. Lots of faith also! We were pretty shocked all last week, but it has settled in more. Now we are ready for the fight. Give yourself a little time. You will settle into the battle too.

    It is hard when you have people like your parents who depend on you. When you feel ready, start reaching out to everyone in your sphere to help you with them. If you can be specific in their needs to the helpers, it works better. I have two elderly parents and three children in my home. My husband is good but he cannot do it all. We need people from the outside to help us too! My pastor says it actually is good for the helpers too.

    Hi. My name is Shel
    Hi. My name is Shelly. I was diagnosed with stage 1B uterine cancer in Jan 09 and had a abdominal hysterectomy also removing lymph nodes and ovaries in Feb. 09 @ Hoag, Newport Bch, CA. Currently in the 3rd month of chemo (carbo/taxol) 3 times a month for six months and once a month 9 months after. I am also having to get both shots for red blood cells and white blood cells. (sorry I forgot what their names are)
    I have had 2 bladder infections so far and am not getting very much sleep. Most nights I wake up every 1 to 1 1/2 hours. I am very tired all the time and am not sure what is due to the chemo. After trying to treat the bladder problem my oncologist has requested a referral to a urologist but OMG they are hard people to get to see!
    My family and friends are very supportive but I am really getting tired of being tired all the time! Has anyone else had this problem and what did you do?
    Thanks!