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Lonsurf and Y-90 Treatment

Tom M.
Posts: 220
Joined: May 2019

Hi All, haven't been around for a bit,I just wanted to have everything in line before I said anything. First off almost 2 cycles of Lonsurf done. No adverse side effects just a little tired at times but have to keep moving or nothing gets done. I should be on Avastian with the Lonsurf but they are holding back for now because of my upcoming treatment. I had 2 mappings done for the Y-90 Radioembolization of the tumor on my liver. The radioembolization should take place in about 2 weeks. Feeling pretty good over all. I'm hoping this next phase of treatment goes well and offers some needed positive results for awhile.     Wishing all of you well and as always you are forever in my prayers.  Tom

Trubrit's picture
Trubrit
Posts: 5534
Joined: Jan 2013

I am happy to hear that you are doing well on the Lonsurf, with little side effects. That is always good news. 

Good luck with your upcoming Y-90.  That was one of my options, but we went with Ablation instead. 

Keep us updated. 

Tru

Tom M.
Posts: 220
Joined: May 2019

Thanks Tru, looking foward to getting some of this stuff behind me. I have been very lucky as to anything they throw at me treatment wise. BTW do you know how Kim is doing? The two of you were my first friends when I feel onto this site.    Tom

Trubrit's picture
Trubrit
Posts: 5534
Joined: Jan 2013

I belive Kim is fine, as she has been popping on and off the forum.  She will be touched to hear taht you are asking after her. 

Tru

 

beaumontdave's picture
beaumontdave
Posts: 1178
Joined: Aug 2013

That's great Tom, having the Lonsurf be effective and setting up getting at the tumor with the Y-90, sounds very positive and proactive. Can't wait to hear good news in a few weeks. Keep on trucking.....................................Dave

Tom M.
Posts: 220
Joined: May 2019

Thanks Dave, I'm very hopeful.

Tueffel's picture
Tueffel
Posts: 312
Joined: Feb 2020

Glad to hear that Lonsurfs side effects are not that bad for you. Lets hope it actually has an effect.

My dad unfortunately goes through nausea, runny nose, cold symptoms. I felt stupid to call the oncologist to ask what to do cause we never had nausea as a side effect before, just tiredness. But if it helps, its all worth it.

Good luck for your treatment and positive news. I know how it is and we definetely need some positivity on this board. Has been a nightmare of bad news for a while here...

DanNH's picture
DanNH
Posts: 161
Joined: Feb 2021

Our oncologist is working on setting up the Y90 treatment for Pam. It is a lot of waiting. If you post more sbout your experience I will most certainly read it. We wish you the greatest successes with your treatments. 

Dan

Tom M.
Posts: 220
Joined: May 2019

Dan, I had 2 mappings and in 2 more weeks I will get the treatment. From the consult to yreatment time about 2 months. I will let you know more after the 27th.  Tom

abrub's picture
abrub
Posts: 2178
Joined: Mar 2010

But the Avastin has been held as I've had procedures, including a second kyphoplasty this Thursday.  Side effects from Lonsurf (one 2-week session) have been minimal.  I'm now on my 2 off weeks.  Here's hoping it's effective for both of us.

alice

Tom M.
Posts: 220
Joined: May 2019

Good luck to you Alice. I'm almost done my 2nd cycle and my Y-90 treatment is on for Oct, 27th. We do what we have to with this. We'll be fine.   Tom

DanNH's picture
DanNH
Posts: 161
Joined: Feb 2021

Tom: We still havent heard from Radiology. Our oncologist is not happy about it and has made several calls. We did learn that the radiologist said that the tumors are such that he can do the procedure. Doc told us we should get a call this week. I'm sure ours will be a while. 

Best of luck with yours. 

Dan

DanNH's picture
DanNH
Posts: 161
Joined: Feb 2021

My Pam has mapping next Thursday. 

Tom M.
Posts: 220
Joined: May 2019

Dan, she will do fine. Non-invasive and no pain. Takes about an 1 1/2 for the mapping and then another 1 hr for the scaning afterwards. Best of luck to her.   Tom

NewHere's picture
NewHere
Posts: 1343
Joined: Feb 2015

It kept me stable for four months.  After 4 months it actually shrunk my cancer.  Kept things stable then.  After a year, things started growing.  The general rule of thumb seems to a treatment works for a year or so, before moving onto the next one.  Of course there are many outliers who do better.  I seem to be things last a year before moving onto the next thing.  Almost 60 rounds of chemo and counting.  LOL

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