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I'm 35 y/o. Anyone else around my age?

ALPAL's picture
ALPAL
Posts: 1
Joined: Aug 2021

Hi everyone! 

I have never posted on a discussion board before, but today I got my pathology back that I have Stage 1 endometrioid carcinoma. I have endometrial atypical hyperplasia and had a D&C with hysteroscopy almost a month ago. I had been having prolonged and SEVERE bleeding for months straight, which I know you all know about too, which prompted me to go to the gyno. I had a normal-ish ultrasound that showed a thickened endometrium, but we couldn't get the bleeding to stop so we decided to do a D&C over a biopsy to help stop the bleeding. 

I am 35 so they were NOT concerned with this being cancer, but I knew from research that having a thickened endometrium could lead to cancer eventually. I am just wondering if there are other people around my age on here? I don't have any kids (I've never been sure I even wanted kids), but I am having a hard time wrapping my head around this. Everyone I have talked to that has had a hysterectomy (not because of cancer, just in general) has said that it was the best thing they had ever done. I don't think I'm sad I won't have kids, but I think I have to grieve the loss of that potential. 

I go on Thursday for my pathology follow up. I was sent a copy of the path report to "My Chart", so I read it on my own. The doctor's office called me asking if I could come right in (I was out of town so I couldn't), but it made me think something was wrong, so I looked up the report on my own. So, I haven't heard the words from the doctor yet, but from what I can tell it is cancer. My mom who is a nurse read it too and confirmed that's what it was saying. So, now I wait forever until Thursday to find out what's next. 

Thanks for listening, I think I just needed to speak it to others who understand. 

Alison 

Harmanygroves's picture
Harmanygroves
Posts: 223
Joined: Jun 2021

Well, dear one, you certainly have a lot to deal with. First, I'm so sorry. It is a lot to wrap your head around, that certainty that you won't have babies. Ugh, the worst. 

Next, congrats to you and your mom for figuring out that you have endometriod adenocarcinoma, Grade 1. So good that it's Grade 1. That's the lowest, and also, it sounds like--so far--you have the slowest growing kind of cancer.

I'm not your age, but there are younger women here.

I have the same type of cancer as you!

We are all here for you.

<3 Deb 

Forherself's picture
Forherself
Posts: 563
Joined: Jan 2019

Sorry to hear about your diagnosis.  It is very upsetting.  It is good that you have type 1 as it is far less agressive.  You won't know your stage however, until after you have more investigations.    There have been a few women your age.  They may chime in also.  I was never able to become pregnant either.  It is sad to know you will never have your own children, but we adopted two baby girls and they are my children.  There are some fertility sparing treatments when you have grade 1 endometrioid carcinoma.  Don't get ahead of yourself.  Ask any questions you like.  

misstaylor84's picture
misstaylor84
Posts: 18
Joined: Aug 2021

I'm 37 and was diagnosed with endometrial adenocarcinoma after I had a hysteroscopy and D&C done because I had been bleeding for months with some very painful cramps. My Obgyn called and gave me the diagnosis and she kept saying the standard of care is a hysterectomy and that just devastated me and my husband. We had always wanted kids and the hysteroscopy had shown 2 polyps that were removed and not cancerous, so we were hopeful that meant our chances of getting pregnant would be better. Then the cancer diagnosis derailed all that. I got an appointment with a gyn oncologist in Little Rock and she said if it hadn't spread anywhere we could try fertility sparing treatment. I got my MRI done and go Tuesday to talk about the next steps because mine is a stage 1A, grade 1. 

This is a good place. Sometimes reading about everything is scary and like others have said, a lot of it will probably never even pertain to you or your treatment so don't get yourself too worked up until you talk to your gyn onco and see what's going on.   

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