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Cologuard Thoughts on a positive finding?

davejc6
Posts: 11
Joined: Apr 2021

Cologuard Thoughts on a positive finding? 

Trubrit's picture
Trubrit
Posts: 5511
Joined: Jan 2013

Over the years, here on the forum, we have seen several false postive results from Cologuard.  Every person went ahead and had a colonoscory, to cover their tracks, and were never seen to post here again. 

I am sure there are millions who do the test, and get negative results when they are negative, or positive when they are positive. I have not seen anyone here - which is, at the end of the day, a small community - say that they started off their journey with Cancer, with a positive Cologuard.

In my humble opinion, if I had a positive cologuard test, I would definitely follow it up with a colonoscopy. 

Whatevery your plans, I wish you good luck.

davejc6
Posts: 11
Joined: Apr 2021

Yes I have pne next friday. pretty shocking news 

Trubrit's picture
Trubrit
Posts: 5511
Joined: Jan 2013

It will be a long week, I know. 

Do you have a colonoscopy scheduled for after your PNE or will you wiat for the results of the PNE? 

SandiaBuddy's picture
SandiaBuddy
Posts: 1189
Joined: Apr 2017

Colonoscopies are uncomfortable but can give comfort.

davejc6
Posts: 11
Joined: Apr 2021

I have my colonoscopy 4/23 but the nurse says they see lots of these tests and very little problems . 

 

Denise66
Posts: 74
Joined: Aug 2018

My friend had the Cologuard 2 years ago. It was negative. Last Friday via a colonoscopy she was diagnosed with rectal cancer. So, the questions are did it miss the cancer?  Was it interpreted wrong?  The cancer she has did it just nto pick up her specific mutation. The doctor told her she has had the cancer for at least 10 years. It was a 8 cm tumor.  

The end result is colonguard  or may not detect colon cancer.   It does not pick up polyps which are removed during a colonoscopy to prevent colon cancer. If you want to prevent colon cancer and almost 100% rule it in or out you have to get a colonoscopy. 

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Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

My doctor also told me that my rectal cancer was there for about 6-7 years.

Kim

davejc6
Posts: 11
Joined: Apr 2021

Yes the first few years seems like a great test but hearing lots of bad news lately 

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

It can have some results that aren't accurate.  If you have one that is positive for possible colorectal abnormal cells, it would be best to follow up with a regular colonoscopy just to make sure.  The prep is the worst part of the procedure, and the procedure itself is done very quickly and you are completely under so you won't notice anything.  Wishing you the best.

Kim

Trubrit's picture
Trubrit
Posts: 5511
Joined: Jan 2013

It is best to ask what medication they use during a colonoscopy. Allot of places use Propofol, but the rural hospital I had my colonoscopies, used a sedative, which never really worked on me, so I was awake - albeit drowsy, throughout the whole procedure. Enough that I could feel what was going on, and even see the screen. 

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

My first was done by sedative (twilight sleep) and it didnt work on me either.  The whole procedure was done while I'm laying there watching the whole thing and hearing them talk.  Propofol works much better on me.

Kim

Jnap26
Posts: 5
Joined: Dec 2019

I had a positive one. I had just turned 50 and it was a routine test.  My doctor said to schedule a colonoscopy and they found cancer. I never had any symptoms of colon cancer, no family history. I was pretty healthy. I honestly thought the Cologuard was a false positive. It actually saved my life. The cancer was caught early enough and I was able to have surgery since it had not spread. So please schedule a colonoscopy. I tell everyone to get the colonoscopy because they can remove polyps which can lead to cancer. 

davejc6
Posts: 11
Joined: Apr 2021

Not what i wanted to see first thing in the morning. With all my seaches you are the first I heard of. I'm happy it worked out for you. 

It's going to be a long week. I have one friday 

 

 

 

 

Jnap26
Posts: 5
Joined: Dec 2019

I am sorry, I did not mean to upset you, just wanted to encourage you to follow up with a colonoscopy. There are a high percentage of false positives and I hope that is the case for you. I just wanted to share my experience. Good luck on Friday. 

davejc6
Posts: 11
Joined: Apr 2021

I'm happy you give your experince with this 

Was it found in 2019? 

Tueffel's picture
Tueffel
Posts: 310
Joined: Feb 2020

I know it is an American site but I live in Europe. It is not recommended here, apparently it is only in the US. I am sure it is more comfortable than a colonoscopy but a colonoscopy prevents cancer. The most common, adenocarcinoma, develops from polyps that turn malignant. With a colonoscopy you can remove these precancerous lesions. So a colonoscopy is not only early detection but also prevention.

 

davejc6
Posts: 11
Joined: Apr 2021

Sorry to hear about your Dad I'm sure I'm in his age bracket .

Did he have a syptoms ? Or just a routine check up at stage4 

Tueffel's picture
Tueffel
Posts: 310
Joined: Feb 2020

I try to give a lot info on my profile so others might be able to compare. My dad had 3 years before his diagnosis a colonoscopy. The cancer was there but the mucosa looked normal. It was a negative colonoscopy, well done, well prepared. But his nerve got infiltrated by the tumor which caused the little stingy pains. But there was nothing. Now we know a lot more. Months before my dads diagnosis he had the typical symptoms of left sided coolon cancer. The symptoms were obvious but if you basically just had a colonoscopy no one even the doctors did not think of cancer until the diagnosis came. Between his 2 colonoscopy he received meds against MS that diminished his immune cells which only accelerated the growth. In all a case out of million where cancer is even more unpredictable. 

davejc6
Posts: 11
Joined: Apr 2021

I seen a few other poeple with MS get this. I wonder if it's the Meds 

Not trying to be nosiey or anything 

Tueffel's picture
Tueffel
Posts: 310
Joined: Feb 2020

Yes probably. Most of the time you want to decrease the immune system response so the immune system does not attack the CNS. Unfortunately if your immune system is diminished it also decreases the activity to fight mutated cells. I think I read that even longer time on steroids might do it. So if you are immunocompromised you do have a higher risk. Transplant patients have the same problem unfortunately. 

Unfortunately at this time a drug against T cells was the best option, we did not expect cancer cells to be there and now doctors are running out of options. Maybe if the comonoscopy was done a year later while my dad was immunocompromised things would be different but these thoughts are useless. 

Jnap26
Posts: 5
Joined: Dec 2019

Davejc6,

Yes, I had the colonoscopy 11/14/19 and surgery 11/20/19. 

davejc6
Posts: 11
Joined: Apr 2021

Well an update since most people don't . Had my colonoscpy. Doc found 5 polyps 4 very small but one whooper at 16mm. Sent out for tests but she told me 99% she is sure not to worry about it. 

Anyway it's been a week hopefully no news is good news. The cologuard did work and got me to the doctor, but like most other post it was a expensive as now i'm paying for much of the procuedure. 

Poeple who are worried about the  pep and fasting and a camera in the backside need not worry. It kinda felt good and cleansing LOL 

Anyway I would never do Cologuard again. 

Trubrit's picture
Trubrit
Posts: 5511
Joined: Jan 2013

It is good to hear from you, and to find out that you have had your scope, got rid of pesky polyps and feel pretty confident that all is well. I hope you find out for sure soon, and you can get on with your life. 

It is a happy day when we can say goodbye to someone, and know they are heading off to live a long, full life. We don't get that often enough here. 

Tru

NewHere's picture
NewHere
Posts: 1340
Joined: Feb 2015

It does.  In fact I asked my doctor to remove my thumb when they did it.  She was counting down and i think I mentioned that when she hit 9 on counting down from 10 to 1.   Still questionable whether my thumb is still there ;)  (WE GOTTA KEEP LAUGHING)

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