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No "BINGO" called yet

mojogirl67
Posts: 308
Joined: Oct 2018

Hey guys..I am still here. It has been over a month since I had have the stroke like symtoms and Hawaii came to a halt.From everthing I have read, two months is average to survived this without treatment. They started me on steriods which I'll call the drug from hell. I didn't even recognize my own face .I have stopped all steriods and it was the best decision I ever made. I recognize me finally inside and out. I am taking high dose Bowelia (frankcinese) and bioavailabl theracurmin.  Both of these are powerful antii-inflammoratory supplements..with Boswalia proven to reduce brain edema and it does NOT have the side effects of steriods.. I have said before that I may die in my sleep tonight but I will go MY way. They say 2-4 % get brain mets., It's crazy. My oncologist was shocked that my lung tumors had never bothered me in any way and showed little growth in 2 years and now this...I still believe that the human cell is being destroyed with a constant battering of of environment and from 5g...this is NOT progress. 

I seriously dont fear or look at death like most do.I guess that's why wake up and am like "ok"? are we going on a trip today??..I'm ready..bags all packed. lol..I know, bad sense of humor lol ...With the way that my luck runs, I will be caught in limbo and lingering...For someone who was so active and mobile, it sucks. No being able to drive sucks..I am not in any pain....no symptoms other than recoverimg from steroid swelling...that has been worse than aything else...I have also been a loner my so having pepole around ALL the time is a big change. I'm am grateful even if wasn't MY plan. I want thank each of of you for the love,hugs.tears, and just "reaching out". CANCER SUCKS and nobodody knows more than those who themselves within this forum.

Trubrit's picture
Trubrit
Posts: 5389
Joined: Jan 2013

Every day with you around, is precious.  

I am very glad that you are not in pain. That makes the end much more traumatic, not just for yourself, but those around you.  So, keep up doing what you are doing, and we will pray that the pain stays silent. 

It is always a blessed day, when you post - even if we know the news may never be the words we want to hear.  Your honesty is a gift to those who are looking death in the face. May we all come to have your strenght. 

Cyber hugs!

Tru

SnapDragon2's picture
SnapDragon2
Posts: 472
Joined: Nov 2019

You have no idea how much I love you!

Research Benagene.  Might buy more time, Idk.

Kazenmax's picture
Kazenmax
Posts: 447
Joined: Feb 2016

Well sh!t. I'm sorry you're having a tough time. It sucks that's this is happening. I'm so glad you have no pain. I hope you can get outside in the sun and relax. I wish there was some way to let you know how much your posts have meant to me. You are a free spirit and whatever happens next, I hope you can sail through it.

All my love

K

 

 

 

 

 

 

 

SandiaBuddy's picture
SandiaBuddy
Posts: 1167
Joined: Apr 2017

I am glad to hear that you are still here and will have the opportunity to see the Spring--that has always been my favorite season, and I am thankful for each one I can experience.  It is good to hear that the supplements are helping you.  I wish you all the best during these difficult times.

Canadian Sandy's picture
Canadian Sandy
Posts: 689
Joined: Jul 2016

It's hard to find the right words to say mojo. Just know that my heart goes out to you and many prayers also. I believe that a higher power is guiding you along. Be strong!

abita's picture
abita
Posts: 978
Joined: Dec 2017

I am happy for you that you are still able to maintain feeling good and enjoying your time.

NewHere's picture
NewHere
Posts: 1292
Joined: Feb 2015

My thoughts are with you.  I sent you a PM about some things to check into.  Maybe can help with low side effects....

myAZmountain
Posts: 389
Joined: Apr 2018

Sad we missed an opportunity to meet in Hawaii --hope that the days ahead are full of peace and joy, and I hold out hope that a miracle will happen! Me ke aloha nui !!

Annabelle41415's picture
Annabelle41415
Posts: 6692
Joined: Feb 2009

Duplicate.

Annabelle41415's picture
Annabelle41415
Posts: 6692
Joined: Feb 2009

I'm so glad that you posted as I've been thinking about you so much when coming on this board.  It's good to hear you aren't in pain and you are living the life that you wanted.  Steroids can be terrible when the side effects kick in.  My hope is that you continue to live life to your fullest and come back here to share your great attitude with others. 

Kim

feckcancer
Posts: 140
Joined: Jun 2018

it's always good to hear from you. 

AnneO1965's picture
AnneO1965
Posts: 179
Joined: May 2019

I am ever so glad to see your post. Thanking the power that is that you are not in any pain.  I too am of the loner type, and being stuck inside because of COVID and now chemo, my family is IRRITATING me in the most loving manner...  LOL  I've even resorted to locking my bedroom door, but the grandgirls will sit in the hallway and talk to me through the door. LOL no PEACE I tell ya.

My hope for you is that your days are as many as you are not in pain, and not a day more. That you feel the love your family and friends have for you until the end. That when you wake up and realize you are still here that you say "ok, I'm here, let's do this". 

Much love and kisses and squishes to you Mo, I'm with you spiritually and really wish I had gotten to know you years and years ago.  I'm ever so glad that I did get to "meet" you though, you are my soul sister.

beaumontdave's picture
beaumontdave
Posts: 1115
Joined: Aug 2013

Those steroids do mess with one's self-image, as well as all the other side effects. The chubby face thing bugged Cindy quite a bit, but swelling in the brain is a particularly delicate thing, so she abided it for awhile. I'm glad your alternates are working well, and you find your center, with all that swirls around you. Having been through so much with cancer, I imagine most of us feel acutely alone with our issues and mortality. I did feel that way somewhat before, and I certainly do now, I regret that my belief and respect for most disaffected folks, has suffered a bit in the process. I'm sorry your stifled by your circumstances, not driving and the like, but you ever seem to meet the difficult things head on. Spring is here and I hope you're finding the best parts of it, while going about your day. Here the blossoms and the fragrance strike me daily, and I work on being at least as grateful as I am annoyed by life's inconveniences, lol. I'm glad you feel well and that you checked in, hugs and love.....................................................Dave

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