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PSA Nadir of 0.3 1year after Radiation on Jan 2017 and last reading of 2.3 in March of 2021

JJMWFF1955
Posts: 20
Joined: Apr 2017
Old Salt
Posts: 803
Joined: Aug 2014

What kind of treatment did you have so far?

Clevelandguy
Posts: 688
Joined: Jun 2015

Hi,

Your PSA might be bouncing around after your radiation treatment.  Old Salt is right, more info would certainly help.  I have included a link about PSA bounce you can read.  And remember, three data points make a trend so another few PSA reading should let you know whats going on.

https://www.health.harvard.edu/blog/what-is-a-psa-bounce-20090929196

Dave 3+4

JJMWFF1955
Posts: 20
Joined: Apr 2017

I had Axumin scan a week ago and the scan showed that the cancer has masticized to two lymph nodes. The oncologist put me on Eligard yesterday and wants to put me on Erleada in a few weeks after he gets it approved but problem is the Health Insurance company calls yesterday after i get home and denies this drug.  It cost $13000 a month and that I cannot afford unless the incurance helps. I am 81 years old now and have been fighting PCa for over 4 years now. This denial has caused me to become very depressed about this disease and now I am wondering that does a man that is trying to get cured of PCa need to be rich to afford treatment?  

Does anyone have any knowledge about Erleada?  

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3647
Joined: May 2012

JJ,

I assume you are on Medicade ?  Or an Advantage plan ?  I am not familiar with either of your drugs, but unless they are still experimental, there should be some way to get them paid for.   Ask your doctor for alternatives if not.    I was on chemo for a different cancer in 2009 for six months.   The DRUG COST was $50,000 per month, which did not include doctor or scan fees, or labs.   I asked the doctor about this later, and he said "that was the ASKING price.  What insurance would actually PAY, and what the pharmacy GOT, was WAYY less, and always is."

Do not give up on this fight.

JJMWFF1955
Posts: 20
Joined: Apr 2017

right i am on Medicare Advantage plan 

JJMWFF1955
Posts: 20
Joined: Apr 2017

have not been on this forum for while so that is why you see bits and pieces but it's not easy to get treatment when your health company starts denying almost everything you need to get treatment.  I don't know if it is because I am on Medicare advantage or not but I have two Doctors working on this and both are in agreement. All I need is more cooperation with my health care company. 

Georges Calvez
Posts: 526
Joined: Sep 2018

Hi there,

Could you provide us with more details on your treatment and your PSA results please?
Obviously you have results between January 2017 and March 2021.
The search function on this site is not a lot of use, I have tried looking for your previous posts, and I was unable to find them.
Thanks in advance.

Best wishes,

Georges

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3647
Joined: May 2012

George C said, politely and very accurately, that Search and Cross-Reference capabilities here, eh, suck....

 

JJMWFF1955
Posts: 20
Joined: Apr 2017

was Nadir of 0.3  one year after Rad which was in 2018 then slowly went up to 2.3 in March of 2021 and the found cancer in the two of lymph nodes so now I'm back on Eligard and supposed to go on Erleada but since denied by my health insurance now I have to get back with Urologist to see what can be done. 

hopeful and opt...
Posts: 2326
Joined: Apr 2009

....is the best qualified doctor to evaluate and administer drugs to treat...not the urologist.........best

Josephg
Posts: 287
Joined: Jan 2013

As Hopeful stated, the Medical Oncologist is the person that I as a layperson strongly suggest that you have as the medical professional managing your PCa care.  They are best qualified to prescribe the correct drugs at the appropriate time during your ongoing treatments, as there are many drug treatment options available (specific drugs and treatment durations).  Since Day #1, I've had a Medical Oncologist overseeing my medical care during my PCa journey.  I've had Surgeons and Radiation Oncologists come and go, when recommended by my Medical Oncologist, but my Medical Oncologist has always been the leader of my team of medical professionals, and will remain so until the end.

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