CSN Login
Members Online: 6

You are here

5 year+ survivors of endometrial cancer

tinacap77
Posts: 29
Joined: Oct 2020

Are there any 5 year + survivors of endometrial cancer in this group? If so, would you mind replying with your diagnosis and treatment you had completed? I would really appreciate it as it gives many of us hope as we charter these unknown waters....Thank you.

ConnieSW
Posts: 1546
Joined: Jun 2012

Many of us and many more who have moved on with their lives and no longer come here.  Click on my name and it will bring you to my data. 

tinacap77
Posts: 29
Joined: Oct 2020

What was your original diagnosis? Did you only do the brachytherapy or did you do external as well? Congratulations and thank you for responding.

ConnieSW
Posts: 1546
Joined: Jun 2012

UPSC 1A.  No external radiation.

oldbeauty
Posts: 303
Joined: May 2012

Hello tinacap77, please click on my screen name for my story.  I have lived with this disease for 15 years, and am about to pursue my 5th treatment to keep it under control.  You will find an active and supportive group here.  Best wishes, Oldbeauty

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1745
Joined: Jun 2015

Hi Tinacap77. I actually hit my 5 year post treatment anniversary 2 days ago! I had the standard treatment of 6 carbo/taxol and then 5 treatments of brachy therapy. I had UPSC stage 1A.

As the other ladies said, there are lots of us that are still around. Many come and go on the board. Others stop visiting after they have completed everything.

There is a lot of information here that can help you through your journey. A couple of older threads are worth the read: 'ladies going through chemo' and 'let's talk about radiation'. 

Come back with any questions.

Love and Hugs,

Cindi

cmb's picture
cmb
Posts: 645
Joined: Jan 2018

Cindi,

Great news about hitting the five-year milestone! Hope you can find some way to celebrate, despite the restrictions.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1745
Joined: Jun 2015

Thanks CMB! Time has really flown by.  I'm grateful for every day.

Love and Hugs,

Cindi

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2878
Joined: Mar 2013

Yeah, Cindi!  I hope you celebrated!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1745
Joined: Jun 2015

Thanks NoTime. I haven't formally celebrated yet. My 5 year check up is next week. Maybe my husband and I can get some 'to go' food for a change! lol.....

I still wake up feeling happy and healthy every day. What a gift! I know I'm one of the very fortunate ones.

Love and Hugs,

Cindi

tinacap77
Posts: 29
Joined: Oct 2020

Thank you fir your support and info about some old posts that are still relevant.

EZLiving66's picture
EZLiving66
Posts: 1469
Joined: Oct 2015

Hi Tina! I was diagnosed with UPSC, Stage II or III (incomplete staging), Grade 3 in September of 2015. I had a total hysterectomy followed by three chemotherapies of Taxotere and Carboplatin. The plan was for six but after the third chemo I had a mild stroke and the chemo was stopped. My oncologist/gynecologist did not recommend radiation but told me when and if it came back, they could do it then. 

So far, knock-on-wood, it hasn't come back. I still have some nasty side-effects from the chemo but have a good life - we sold our business, retired, and moved to a 55+ community in Florida.

I hope this helps! You can read all about my journey on my blog.

Love,

Eldri 

MoeKay
Posts: 319
Joined: Feb 2004

Hello Tina,

I was diagnosed with surgical stage 1C, clinical stage 2B, grade 2, endometrioid adenocarcinoma in April 1999.  The reason for the two stages is that my gynecologic oncologist did not agree with the pathologist's staging.  My gyn-onc was convinced that my tumor had invaded the cervix, while the pathologist concluded that it had not.  Also, the staging system has changed since my diagnosis, so there is no longer a stage 1C.  I had a radical hysterectomy, pelvic and paraaortic lymphadenectomy (removal of 30 lymph nodes), and bilateral salpingo-oophorectomy.  After surgery, due to a number of risk factors for recurrence including extensive LVSI, tumor deeply invasive into the myometrium (approximately 80%), and tumor arising in the lower uterine segment, I had five weeks of external radiation, followed by two days in isolation in the hospital for vaginal brachytherapy, which was the way internal radiation was done 21 years ago when I was treated. 

Wishing you the best!

 

 

Fridays Child
Posts: 204
Joined: Jul 2019

In 2012 I was diagnosed with endometrial adenocarcinoma, Grade 1, stage 1a.  Hysterectomy was followed by brachytherapy.  I was pronounced free of cancer.  Two years later I had a CT scan for hip pain, but it was negative.  Four years after that an MRI showed a pelvic mass that had invaded my hip joint.  Subsequent PET scan showed lesions in both lungs. At this point I had external pelvic radiation and chemo. It has now been three years since the recurrence was discovered.  I'm taking Megace to control it and they refer to it as stable disease.

Good luck to you!

Kathy G.'s picture
Kathy G.
Posts: 222
Joined: Dec 2012

Hi Tina!

I have been one of the fortunate ones as I was diagnosed early with stage 1/grade 1 endometrial cancer in 2012. It was the 'garden variety' kind, and it only invaded 11% into the uterine wall.

I required surgery and follow up appointments. No chemo or radiation.

However, as evidenced by Friday's Child post even early stage cancer can reoccur. While I don't feel the intense anxiety about a possible recurrence I used to I think the fear will always be in the back of my mind.

 

That being said I would point out cancer no longer rules my thoughts on a regular basis. I try to focus on gratitude. So many others have had more difficult struggles yet have fought and carried on for many years. We have witnessed that here on the board.

Have faith!

 

Kathy

jan9wils's picture
jan9wils
Posts: 152
Joined: Mar 2017

Six years living with this disease. You can read about the various treatmnts I have had if you click on my picture. I think it likely there are many of us living with this cancer for 5+ years.

Jan

els19
Posts: 91
Joined: Jun 2014

I was diagnosed in April of 2014 of UPSC lllc. I made it almost 6 years NED when I recurred last August. I'm currently in treatment. But don't let my recurrence make you think this isn't a success story. I did have almost six years without any treatment and I'm still hoping for the best. Sometimes cancer is treated as a chronic illness and in the almost seven years I've been following this board I've seen many go through treatment again with success. Many others are doing well and check in on anniversaries. So, yes there are five year survivors out there! 

els19
Posts: 91
Joined: Jun 2014

I was diagnosed in April of 2014 of UPSC lllc. I made it almost 6 years NED when I recurred last August. I'm currently in treatment. But don't let my recurrence make you think this isn't a success story. I did have almost six years without any treatment and I'm still hoping for the best. Sometimes cancer is treated as a chronic illness and in the almost seven years I've been following this board I've seen many go through treatment again with success. Many others are doing well and check in on anniversaries. So, yes there are five year survivors out there! 

yetti's picture
yetti
Posts: 43
Joined: May 2019

 I WILL BE 2 yrs NED APRIL 18 2021, AS MOST OF YOU SURVIVORS IT HAS  BEEN A ROUGH  F ING ROAD !  I WAS DX JUNE 2018 with stage 4 B endometrial cancer figo 2 had metastasized to lungs and omentum, I had 6 rounds of chemo laproscopic hysterectomy and

3 more chemos with Avastin !  Im on letrozole as a hormone blocker  Bc I'm hr + pR+  hormone driven cancer, my last chemo

was March 29 2019 !  And will be my final one !  I don't plan on any more chemo, regardless of any recurrence  !  I don't have the fight in me to go through that hell again! I lost most of my hair I looked like riff raff from Rocky horror picture show! I had it shaved bald , believe it  or not it is still  short and has come in thin thanks to letrozole!  Im very dissatisfied in my hair growth over a year 1/2 and still short thin and ages me  I was 59 in Dec but look 👀 and feel 65  ! Cancer the gift that just keeps on giving !

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2878
Joined: Mar 2013

yetti, I am sorry to hear about your hair.  I remember being bald and how much I hated it.  I hope you can find a better place with it. 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2878
Joined: Mar 2013

UPSC Stage 1A on 4/5/12.  (not that I know the date!) six chemo and both external and brachy radiotherapy

cheerful
Posts: 266
Joined: Apr 2011

Hi Tinacap 77:

 I was diagnosed in February of 2011 with Stage 1 of UPSC and was given 6 rounds of carboplatin and taxol and 3 rounds of brachytherapy.  I started chemo in April of 2011 and completed chemo in August of 2011.  I then started 3 rounds of brachytherapy in Sept of 2011 and finished in mid October of 2011.   I have been seeing an oncologist once a year to be sure everything is okay and most likely will be seeing him for the rest of my life.  UPSC, as you know, is a very scary cancer so don't leave it to chance - go for checkups and bloodwork as well.

 

Fayard's picture
Fayard
Posts: 438
Joined: May 2011

Hola,

Yes, there are many. I have been cancer free for almost 10 years after ending treatment. Click on my name to see details. 

Good bless everyone!

Frances081920
Posts: 24
Joined: Aug 2020

Hello Fayard, that is very inspiring, no recurrence. I have just finished chemo and vaginal brachytherapy for stage 2 UPSC, I pray my treatment is as effective. Do you take any supplements?

ncg007
Posts: 136
Joined: Nov 2015

I completed treatment 5 years ago this month for Stage IIIC1, Grade 3, Mixed 50% Endometrioid Adenocarcinoma (EAC) and 50% Uterine Serous Carcinoma (USC).  Treatment began with having both radiation and chemo on my first day of treatment; 2 rounds of Cisplatin 3 weeks apart along with 28 external radiation treatments.  Followed by 4 rounds of carboplatin/paclitaxel targeted 3 weeks apart. 

Kaleena's picture
Kaleena
Posts: 2057
Joined: Nov 2009

Hi Tina:

Diagnosed in September 2005 with Grade 2, Stage 3A Endometrial Adenocarcinoma.   It was questionable as to what the primary was as they never did find one.  I had it in my cervix, uterus and left ovary.  I had chemo and brachytherapy.  Since then I have had 2 recurrences (without treatment, just surgery).   Still working, etc.

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

Yes, I was diagnosed August 2015 and I will be 5 years post treatment thisAugust.

Subscribe to Comments for "5 year+ survivors of endometrial cancer"