daily steroids

Hi All-

I am currently undergoing my second round of chemo. I have a lot of pain from my rectal tumor and it hurts the most when I am sitting in a chair. This has lead to me missing a lot of work. I take morphine, acetominiphine, and gabapentin every day but they only make the pain manageable for staying home and laying on my bed. I've noticed that the first 2 days when I am doing chemo, I have reduced pain, and I assume it is because of the steroids. I am wondering if anyone here has been given a prescription for daily steroids to address pain while undergoing chemo? I don't know if its the kind of drug that would interfere with chemo if taken on a daily basis. I thought I would like to hear from you all before I ask my oncologist about this.

Thanks-

Kelley

Comments

  • abita
    abita Member Posts: 1,109 Member
    edited January 2021 #2
    I have never been given a

    I have never been given a daily steroid. I did get a prescription to take it the day before my infusion as extra allergy med when I was taking FOLFOX after I became VERY allergic to oxaliplatin. And I have a steroid mouthwash for when I get mouth sores really bad. Not answering you question, but just pointing out that I have taken steroids outside of infusion. There is the question though if the steroid messes up your sleep. I mean, I know from the mouthsores that pain overrides a lot of other issues. But for me, I get like 0 hours sleep the first night of steroid, and that it takes me almost a week to recoup the sleep loss of first two days

  • abita
    abita Member Posts: 1,109 Member
    edited January 2021 #3
    I wonder if there is a

    I wonder if there is a steroid cream you could use. But as I type that I realize that my thoughts of how I can't feel anything on my stomach along my incision from liver resection is completely different because your pain is from the inside, whereas my stomach is numb from the outside

  • abita
    abita Member Posts: 1,109 Member
    edited January 2021 #4
    sorry I clicked twice

    I wonder if there is a steroid cream you could use. But as I type that I realize that my thoughts of how I can't feel anything on my stomach along my incision from liver resection is completely different because your pain is from the inside, whereas my stomach is numb from the outside

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,256 Member
    edited January 2021 #5
    Prednisone

    I took prednisone for joint and back pain.  It helped a lot.  But there are long-term effects of steriod use.  For me, the prednisone exacerbated heart problems caused by the chemo, so I discontinued using it.  But pain is insiduous.  Sometimes it seems it is worth making compromises, despite the risks.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    Pain

    My rectal pain was terrible where it wasn't possible for me to sit comfortably.  They put me on protofoam which is a suppository that helped me immensely.  Between the tumor and the radiation, my rectal area hurt for quite some time.  I've never heard of a steroid directly, but the protofoam has  hydrocortisone in it which helped.

    Kim

  • KelleyTX
    KelleyTX Member Posts: 36
    edited January 2021 #7
    Thanks everyone for your

    Thanks everyone for your posts. 

    Kelley