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Scan Results not posted yet

abita's picture
abita
Posts: 1014
Joined: Dec 2017

My scan results are not on the portal yet. Rather than be reasonable and think, they have been so packed lately, it makes sense that they are behind in reading scans, I can't stop worrying that it is something so bad that my oncologist is making sure they don't put it up before he meets with me. Why are scan results always so terrifying even when you are confident the results will be okay?

myAZmountain
Posts: 399
Joined: Apr 2018

And we know how our entire lives seem to hang in the balance at scan time. My last scan was last month, and the contrast dye really made me feel horrible--I don't know if its becasue I recieved an extra dose because the cheap IV catheter came apart and sprayed the first dose all over me and they gave me more or if my body has just had enough. I have decided just to do bloodwork next time, tired of the drugs and exposure to radiation. I pray your results show nothing new and nothing grew Abita!! 

abita's picture
abita
Posts: 1014
Joined: Dec 2017

Thank you! I get a scan every 8 weeks. The contrast always makes me nauseous. 

sgold88
Posts: 44
Joined: Oct 2020

We are thinking of you and praying for positive news.  

SandiaBuddy's picture
SandiaBuddy
Posts: 1172
Joined: Apr 2017

Taking two benadryl before the scan with contrast dye has really helped me with the side effects.

myAZmountain
Posts: 399
Joined: Apr 2018

Hey SandiaBuddy, have you ever seen any literature on Benadryl and cancer--any pros or cons ? I ask because I usually take a Tylenop PM for sleep. Thx!!

SandiaBuddy's picture
SandiaBuddy
Posts: 1172
Joined: Apr 2017

I have been off the research treadmill lately, but I do not recall any relationship between benadryl and cancer--it did have a link to dementia though, if I recall correctly.  Melatonin might be a better sleep inducer, since it is supposed to reduce cancer risk (and coronavirus as well. . .).

SnapDragon2's picture
SnapDragon2
Posts: 516
Joined: Nov 2019

Mhmm, you been slacking on posting research papers! LOL

Merry Christmas to you and family!

worriedson714's picture
worriedson714
Posts: 253
Joined: Dec 2019

Praying you get good results and I know how you feel my dad's scan results are still sitting in his portal he doesn't want to know them until we see onc good luck 

SnapDragon2's picture
SnapDragon2
Posts: 516
Joined: Nov 2019

I pray you have good results!

Merry Christmas!!!

FarmLife4
Posts: 9
Joined: Dec 2020

Based on my pt. portal,  I wouldn't make a determination of the results good/bad just because they haven't been posted.  My tumor marker test's were posted before I received my CRC diagnosis and they were crazy high.  I had a CT scan a week ago and it haven't posted. It's my 1st CT after 4 chemo. treatments. I emailed my Dr. today and asked if I could see the actual CT at my appt. tom. and he said "no problem, clearly the initial response is great" which I am thrilled.  Praying your results are good too!

NewHere's picture
NewHere
Posts: 1333
Joined: Feb 2015

I have had varaiances in posting, and it is difficult not to worry what it may mean.   Hang in there, thoughts with you and look forward to seeing you post good things shortly :)

abita's picture
abita
Posts: 1014
Joined: Dec 2017

Posted one minute after midnight. two remain unchanged, 2 slightly increased. In the past, he has always brushed off when they are minimally increased. I woder when all these minimal increases are enough to start to be concerned. But nothing new, so for now, I am going to take this as live to breathe another day while I wait for my cure to be discovered!

Thanks for all the support!

Wait, that is so weird. The prior sizes are wrong. And one is way off. 

NewHere's picture
NewHere
Posts: 1333
Joined: Feb 2015

Slight increase depending on size, differences and the rest can be within margin of error.  Then they often go back and remeasure old scans.  So an increase may not be as big when remeasuring.

I think you probably have seen me mention studies where radiologists given 50 scans and come up with different readings, including when looking at a duplicate of the same scan.  So try not to worry too much.  Go with breathe and wait for cure.

abita's picture
abita
Posts: 1014
Joined: Dec 2017

I do remember! Thanks!

Annabelle41415's picture
Annabelle41415
Posts: 6694
Joined: Feb 2009

Praying for great scan results and that you can breath a sigh of relief.

Kim

abita's picture
abita
Posts: 1014
Joined: Dec 2017

It was 1.4 x 1.3 cm on the last scan. This report has it as 3 x 1.6 cm on the last scan and 3.3 x 1.6 cm now. So either this one more than doubled in size while the other 3 remained the same or increased by a tiny amount, OR, the radiologist messed up. Or maybe this radiologist includes the inflammation part with the size. In the past they have specifically pointed out that there is increased impaction around this one.

SnapDragon2's picture
SnapDragon2
Posts: 516
Joined: Nov 2019

AH, the waiting and stress is over once more!  Yes, breathe!!!

If its correct then still good report of only .3 increase, right?

Are you going to have them reevaluate it?

abita's picture
abita
Posts: 1014
Joined: Dec 2017

no, because I get a scan every 8 weeks. He seemed happy enough when telling me all good and stable. Thanks

myAZmountain
Posts: 399
Joined: Apr 2018

Abita did you get bloodwork as well? Hope your Blood counts and CEA were all good--

abita's picture
abita
Posts: 1014
Joined: Dec 2017

My wbc and neutrofil were decent, just in the range. Condisering they used to drop so low on folfox that I would have to skip, I think just in the range is okay. My red cell counts are always a little low. I forgot to ask my oncologist if I should be taking iron pills.

My CEA went back up to 3.5. It had been steadily rising from 1.2, got up to 3.7, then 3.3, and now back up to 3.5. It does worry me. ANd I am glad he does it after the scan, or I would be freaked that some new tumor appeared. I happen to have allergies, and some of the radiologists have commented on the inflammation around my tumors, so I try to tell myself that is why it has risen. I did have a hot spot on my pet scan almosst two years ago that was 50 50 chance cancer cells in it, BUT, I am hoping the chemo worked on it if it was, because on all my scans since started treatment, it is marked as no swelling.

myAZmountain
Posts: 399
Joined: Apr 2018

I have had more than one incident with radiology misreading scans. I always get the CD of the scan, and I found peace of mind by going to a lung surgeon that specialises in cancer, He sits down and we look at the scans together and he shows me the nodules and their status. There is sometimes a very slight size discrepancy that he attributes to where the CT scan "slice" hit, the width of the slice, whether or not you inhaled and if you were slightly off balance lying on the stretcher. This last time they had actually given me the wrong CD, as soon as he looked at it he said, thats not you ! and raised holy heck with the Radiology dept. The previous radiologist read the prior scan completely different as well--I would get the CD 's of all your scans and try and find someone you trust to read them and show them to you on the screen--it made me feel confident that the nodules were staying dormant for the time being. 

Trubrit's picture
Trubrit
Posts: 5424
Joined: Jan 2013

Even if they did mention some slight increases, knowing is definitely better than sitting around waiting and worrying.  

Ask your Onc, next time, just what determinds a 'slight' increase to a major increase and when he/she would start to worry. That might at least eliviate some of your concerns. 

Enjoy your Christmas or winter season depending on your belief.  Just enjoy life, every season. 

Tru

abita's picture
abita
Posts: 1014
Joined: Dec 2017

Oh my goodness!!!!!! Maybe I am doing well! I did NOT ask, on his own, he has my nextscan 12 weeks after the last one!!!!! A few scans ago, I asked if we could possibly go to 12 weeks, and he unwilling compromised to 10 saying that there were things he was watching. And then he went back to 8. Now, maybe he is on vacation at the 8 week mark, so is why 12 week this time, or he saw how all the long wait times at msk are bringing me down,, but I am going to tell myself that it is because I am doing well!!!!!

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