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Not giving up!!

Flufff's picture
Posts: 68
Joined: Apr 2019

Ive just booked an appt with my GP, to discus some repurposed drugs I've found.

LDN, dipyridamole and disulfiram. I hope he will prescribe it to me. Already on the COC protocol.

I refuse to give up. I have so much to live for still. All 3 children are still living at home. I need to stickl around for them as long as possible. I-m taking so many supplements too. C vit liposomal among many others. It give me back some of the power..

So.. GAME ON, stupid UPSC:!!!!! :)

Forherself's picture
Posts: 535
Joined: Jan 2019

So good to hear from you Fluff.   You seem to be in such good health otherwise that it seems to fight it is a good choice.   I don't know the medication, but I hope your GP prescribes it.  I remember someone saying they took anti inflammatories too.  Cancer cells use the process of inflammation to access our blood and lymph supply so it seems logical to prevent that process.  Of course it is something else you would need to ask your GP about.  You are in my prayers every night.

NoTimeForCancer's picture
Posts: 2888
Joined: Mar 2013


Posts: 1553
Joined: Jun 2012

I can feel your strength and determination through your words.  I am so proud of you.

Yeo's picture
Posts: 27
Joined: Nov 2019

You rock and things always change.  Sending prayers and positive energy to you.

Posts: 27
Joined: Aug 2020

wow that is inspiring, can you please let us know what your doctor says about the drugs and if you get them presccribed? very interesting, keep fighting, you do have a lot to live for.

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

Fluff, your name does not match that warrior heart I see! I went back and read your About Me page and some recent posts. You have been fighting with all you have and that will help your treatment. I truly believe that the heart and mind have as much to do with the battle as the meds and with your fighting spirit, your meds will do their best. I discussed the HIPEC with my onc, but at 80, not a good fit. Keep researching and pushing the docs to do their best for you. I am going to call you Woman who Stands and Fights! Hugs,df

BluebirdOne's picture
Posts: 396
Joined: Jul 2018

Thank you for coming back to update us. We are so rooting for you and your family. Please know that I am thinking about you and hoping for the best! 



Kaleena's picture
Posts: 2064
Joined: Nov 2009

That a Girl!   Sending you Hugs!


Posts: 103
Joined: Jun 2014

I love your attitude! You have to keep fighting and hopefully you will find what works! Sending hugs and prayers your way!

dgrdalton's picture
Posts: 152
Joined: Jun 2017

Hugs and prayers that you get the drugs and they work for you!


pato58's picture
Posts: 120
Joined: Jun 2018

Mental attitude is powerful!
Thinking of you :)

Posts: 45
Joined: Mar 2017

That's awesome! I read your other post the other day and I was genuinly thinking of you. :) 

Wish you the best! 

jan9wils's picture
Posts: 157
Joined: Mar 2017

Atta Girl! I love your attitude.

Armywife's picture
Posts: 452
Joined: Feb 2018

Determination is powerful!  I firmly believe in research and advocating for yourself.  I've had to do it constantly since treatment began, and it has paid off (although it's exhausting.)  Hugs!

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