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Apr 16, 2020 - 12:50 pm
I just had my regular follow up 2 days ago. As it turned out, I got a twofer out of it because I had a UTI and she took care of that for me. This marks 2 years post treatment (or close to it)! She scheduled my next follow up for 4-6 months instead of 3-4. It's nice to note that this makes me happy now instead of anxious, as it would have earlier on. I felt so doomed for the longest time, and I'm still well aware of my higher risk, but things do improve slowly :)
She still wants another CT at that time though, which makes me sigh, because obviously there's no point unless the risk of finding something is high enough.
For easy reference, I had stage 3a (met to left ovary), grade 2, type 1, hysterectomy and bilateral oophorectomy, chemo, and external rads. Surgery in November 2017, finished chemo April 2018 and rads June 2018.
I'm a little ambivalent about the phrase cancer free. As we all know, you never really know if you are cancer free. But I'm free from known cancer recurrence or treatment, so I'm going with it. |
Joined: Jun 2016
Congratulations
These milestones matter and are to be celebrated! These are such tough times to be in treatment or recently finished and on high alert for recurrence. I'm almost 4 years out of treatment and the worry never really leaves, but it's definitely easier to forget about it for longer and longer periods of time which really helps for sleeping better at night! Be sure to treat yourself somehow to recognise the progress you are making.
Joined: Mar 2019
Congratulations, what a happy
Congratulations, what a happy milestone.
Joined: Jul 2018
Woo Hoo LisaPizza!
Congrats! Always great to hear and celebrate milestones.
xxoo
Denise
Joined: Jul 2019
Congratulations!
Congratulations, Lisa!! What great news! (Well, except for the UTI, but that's being handled). You could always say "no evidence of disease" if you like that phrase better. Best wishes for many more clear checkups!
Joined: Jan 2019
I love hearing this news
We are more aware of it than most people. Anyone could be diagnosed tomorrow. You get more time between visits which is so nice too. N E D.
Joined: Feb 2018
Wonderful news!
So happy for you, Lisa! And I love it that your provider wants scans! I am just a few months ahead of you - diagnosed April 2017 with Stage IVB, Grade 2 - and I had to ask for a scan at the 1-year and 2-year marks! My provider says that protocol is to wait for symptoms to scan....and I never had symptoms to begin with!
Joined: Oct 2017
Yay Lisa! I'm right there
Yay Lisa! I'm right there with you. Checkup next week and then every 6 months. 3a as well. I had 2 CT scans recently thanks to my ruptured appendix. First one showed abcesses on liver but gone on second CT so it was just caused by appendix mess.
Joined: Feb 2018
Awesome Twinsy! :)
Awesome Twinsy! :)
Joined: Jan 2018
Celebrate!
I know that I was very happy when I reached the 2-year post treatment mark too. So I hope that you're able to do something to celebrate this great milestone, even given the strange circumstances we all are in right now.
Joined: Jun 2017
Congratulations!
What great news! So happy for you!
Joined: Mar 2017
Great News!
I'm so happy for you. NED is a reason to celebrate so cheers to you-"clink".
Joined: Jan 2017
Way to go !!!!
GREATTTTTTTTTTTTTTTTTTTTTTTTTTTTTT
Joined: Jun 2015
So happy to celebrate this
So happy to celebrate this milestone with you! Congrats Lisa!
Love and Hugs,
Cindi
Joined: Mar 2013
Lisa, I'm sorry I missed your
Lisa, I'm sorry I missed your "party"! I hope you are still celebrating. Hugs
Joined: Jan 2018
Congrats!
So happy for you -- such wonderful and uplifting news for all of us, too. I'm NED for 18 months now, Stage 4B, last scan in Feb, now at 6-month intervals.
Joined: Feb 2018
Fantastic!
Fantastic!
Joined: Jan 2018
Good news indeed!
Tamlen,
Happy to hear that you're still NED.
Joined: Feb 2018
Tamlen!
That is fabulous news. We 4B girls are so blessed!
Joined: Feb 2018
Thank you everyone :)
Thank you everyone :)
Joined: Feb 2018
AWESOME!!
Congratulations!! WHoot Whoot I just celebrated my 2 year cancer free on April 10 I have a check up in May then the doc says we can start spacing the appiintments out more. I had a Stage 2 grade 2 adenocarcinoma in my uterus. I hope and pray your journey cointues hedaing in a positive direction and keep hitting those awesome milestones!!
Joined: Feb 2018
High five!
High five!