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How is Everyone?

Annabelle41415's picture
Annabelle41415
Posts: 6512
Joined: Feb 2009

I'm just posting this to see how people are doing through all of this.  If you all get a chance, please let us know how you are feeling, if your family is ok and just a quick update on your condition.

We are both feeling fine, and all of our children (8 and 14 grandchildren) are doing well.  Everyone has stayed in for the most part, except for shopping and most business is closed here in Michigan, except essential workers.

We have been hit hard in the Detroit area, and continue to see cases rise daily.  When we go out for groceries we wear masks and gloves.  Fortunately, my husband had this stuff in his workshop before the shut-in since everyone is out of gloves and masks on-line and in store.

You all are in my prayers daily and hope that we can get back to normal very soon. Wishing all of you safety during this and hope that someone can help those of you that can't get out or is too dangerous to do so.

Hugs!

Kim

SnapDragon2's picture
SnapDragon2
Posts: 304
Joined: Nov 2019

Happy you all are OK and taking the precautions.  My family is good.  Everyone is sheltered in as much as possible. I only go out for chemo and IV C and wear a mask at both places.  My son said tonight the covid pandemic is something he hopes to never see again.  He is in his 20's.  Me too son, me too.  

abita's picture
abita
Posts: 803
Joined: Dec 2017

Oh my goodness. For some reason I thought you had posted that you didn't see how covid-19 was any worse than the flu. Sorry thought that was you. This past few weeks have been a blur. 

I am in NYC. It is terrifying here.

SnapDragon2's picture
SnapDragon2
Posts: 304
Joined: Nov 2019

You should think about journaling covid and chemo in NYC.  It is history in the making.  Just my thought.

Hang in there!  Stay safe!!!!!

Canadian Sandy's picture
Canadian Sandy
Posts: 627
Joined: Jul 2016

 My partner of 30 years passed last Friday and being stuck inside alone is pretty hard to cope with. I wasn't allowed in the nursing hone so couldn't support him in his last few days. I am strong and will cope but it sure is dang hard. Hang in there everyone.

beaumontdave's picture
beaumontdave
Posts: 1055
Joined: Aug 2013

I'm so sorry to hear this, that's a big loss for anyone, Sandy, even in normal times. It really hurts to think of people being alone in those last moments, and so many are now. You have my thoughts and sympathy. As for the check-in, we're all good in Southern Cali, had a great bunch of rainy days and now it's warm and sunny. I and the boy are stocked up and set to ride this thing out, and as we're "essential" we get work to do.  Slower than normal, but enough to keep us from going stir crazy. I feel great, had my Onc. phone call appointment, and spend more time talking about his goings on, good for another six months. Stay safe everybody...............................................Dave

Annabelle41415's picture
Annabelle41415
Posts: 6512
Joined: Feb 2009

I'm so sorry to hear this, and had to be very hard for you not being able to be with him in his final days. 

Kim

SnapDragon2's picture
SnapDragon2
Posts: 304
Joined: Nov 2019

Sandy,  my heart breaks for you.  I wish you so much comfort with all the years of wonderful memories to help you thru.  

Ruthmomto4's picture
Ruthmomto4
Posts: 659
Joined: May 2013

I am so very sorry to hear this. I can't imagine how sad you are feeling and then all of this on top of it. It's just not right sending you a virtual hug since that's all we are allowed.

Tueffel
Posts: 94
Joined: Feb 2020

I hope for everyone that these scary times will get over soon. 

My dad is okay. Chemo number 3 was yesterday and he is now at home. CT and tumor board if he can have surgery will be soon. For now in the area where my parents live we have around 100 cases. Most of them at home. I was worried because the oncology and the pulmonology are in the same hospital. But as far as I know they asked for 2 people from Italy. I need to mention we live in the north of Germany. A dufferent situation cause we do have less cases than US.

My mom takes all precautions. Masks, gloves and desinfection. For weeks you could not get desinfection in drug stores. I dont know why but I had something in my bathroom. Good coincidence!

Our neighbours were tested for coronavirus but it was negative. We live on a farm, so social distancing is easy. They are only going out for doctor visits and shopping. I think our GP only does chemo patients right now because he has no protective gear. 

Otherwise grandparents, neighbours and my sister are taking precautions. 

I am 800km away in another country and will stay here. I had the possibility to go home but plane and train was too risky. Unfortunately half of my year travelled home. I do think med students should know better. We are all young so I think we are more like spreaders than actually getting sick. But even I am as a healthy person scared. I dont want to infect others and young people also died. 

I have contacts to Italy with an exchange student. I am in between of "I want to help" and "I dont know if I could take it as a doctor right now". 

I will continue to pray for everyone around the world! Hopefully it will get better!

Stay safe!

Trubrit's picture
Trubrit
Posts: 5175
Joined: Jan 2013

I live in a very small, rural town in Northern Nevada, and had our first case last week, and the numbers are climbing. 

My Army son is doing fine, and my hometown son is also. My husband has a part-time job at Walmart, and I worry about that, but we need the money, so we hope for the best. 

My part-time job is no more, for now, at least.  I get up my canyon early in the mornings, and walk, walk, walk.  Keeps me alive. has kept me alive these past six years. 

I am so very sorry, Canadian Sandy, for the loss of your beloved partner.  

It is a wild ride, for sure. 

Keep on keeping on.

Tru

danker
Posts: 1247
Joined: Apr 2012

I currenly live in a retirement facility in the Chigago area.  We don't have any cases of the virus here.  But they are keeping us pretty much isolated so the home remains that way.

It is sort of like being in jail (solitary confinement) only with nice apts & good meals.  I think they are going overboard, but I can understand their concern to keepp the virus out of our facility!!!

Banana23
Posts: 4
Joined: Nov 2019

I am going to my 9th out of 12 treatment tomorrow. my oncologist called today and recommended we cancel the last 3 the risk of contracting The virus outweighs the benefit of finishing the last 3 treatments. Has anyone else had their treatments canceled or postponed due to the virus? Hoping this is the right decision. 

Trubrit's picture
Trubrit
Posts: 5175
Joined: Jan 2013

I am sorry your treament has been cancelled.  I am seven years out from chemo, but I only had 9 treatments.

I am Stage IV and six years (this month) with No Evidence of Disease.   Just wanted to let you know that no going to 12, may not make an impact.

Tru 

SandiaBuddy's picture
SandiaBuddy
Posts: 1089
Joined: Apr 2017

I did less than four months (discontinued because of heart problems) and I have made it three years NED.

Annabelle41415's picture
Annabelle41415
Posts: 6512
Joined: Feb 2009

There are others that haven't finished the whole rounds either.  I'm so glad you will have had 9 of the treatments.  Wishing you the best.

Kim

zx10guy
Posts: 266
Joined: Dec 2013

I wouldn't stress too much about it.  Frankly, I'm a bit surprised 12 cycles are still being used for first line chemo with our disease.  There was a large study where a determination was being done to see if 6 cycles was as effective as 12.  From what I gather, the additional cycles wasn't as beneficial over the potential long term side effects.  I have heard some practices have gone to 6 cycles over 12.

Canadian Sandy's picture
Canadian Sandy
Posts: 627
Joined: Jul 2016

Thanks for the thoughts. 

AnneO1965's picture
AnneO1965
Posts: 148
Joined: May 2019

I'm so sorry Sandy, I understand how rough that has to be. My thoughts and prayers are with you.

I had my CT and colonoscopy appointments cancelled due to the virus, No reschedule as of yet, as they have no clue when this will all be over. I'm ok with it as I did get the all clear from the bloodwork alone, and the CT was just to calm my nerves. The colonoscopy can wait a little while as it wasn't critical. I'm sure when this is said and done the docs will be playing catch up for all the critical people that had to miss appts.

I'm going stir crazy. My two grand daughters have been out of school for a month and it's still up in the air if they are done for the year.  Have you ever been trapped with TWO teenage girls? Oh my word... The name calling... The bickering... The DRAMA...  Luckily we live out in the boonies in Louisiana, so they can be threatened with outside chores if they don't settle down. LOL

Everyone is fine, no signs of the Rona amongst the entire family, and we all count ourselves lucky. My daughter won't let me go anywhere, and I think she's being a little over cautious, but this too shall pass.

I wish you all good health, stay safe, and lots of virtual hugs and kisses.

abita's picture
abita
Posts: 803
Joined: Dec 2017

Please be considerate of those of us living where people are dying at such a rate that there are refrigerated trucks being used as morgues and everyone is terrified of getting it and dying in a tent hospital, to not refer to covid-19 as "the rona". This isn't a joke to be given a cute nickname.

AnneO1965's picture
AnneO1965
Posts: 148
Joined: May 2019

I'm so sorry if you took what I said to be inconsiderate. "The Rona" is what everyone in my area is calling this virus. It is my natural tendency to find humor in every situation, and I realize that not everyone has the same outlook I do. That being said, my heart goes out to anyone and everyone that has gotten sick from this and who are fighting for thier lives. I say a prayer every day for those that are ill, for those that are considered "essential" workers, and for the doctors, nurses and first responders that are putting their own lives at risk to care for other people.

Once again, I'm sorry if I offended you.

abita's picture
abita
Posts: 803
Joined: Dec 2017

It is kind of the same as if someone were making jokes about Katrina while the storm surges were covering the Gulf Coast. 

I did make humorous comments about my surgeries so I get keeping humor, but it is just so terrifying. 

Annabelle41415's picture
Annabelle41415
Posts: 6512
Joined: Feb 2009

Yes, my grandkids are out of schools and driving their parents crazy.  Our school has been cancelled for the year, but it has to be made up now through home schooling.  I'm thinking if that was me teaching my kids their lessons now, I'd be lost as education has changed so much through the years.

Just get the scans when you can and look forward to great results.

Put those girls to work, it keeps them out of trouble LOL.

Kim

Ruthmomto4's picture
Ruthmomto4
Posts: 659
Joined: May 2013

Teenage girl and that's enough for me two goodness! I hope you have a place you can hide! Lo stay safe from this thing, my husband is in total lockdown in this house I agree with your daughter! 

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

We've all got it. I'm doing well, feel fine, but confirmed positive. Husband was hospitalized for 4days, but is home and recovering well. Adult daughter, who was visiting from Nepal,is quite ill, with very severe coughing.

my chemo is on hold. We are all in formal quarantine indefinitely.  However, wer hanging in there.

Alice

danker
Posts: 1247
Joined: Apr 2012

Glad to hear your husband is improving!  Now we need the same for your daughter.  May we all be well and get through this!!!

 

Hugs to all!

Kazenmax's picture
Kazenmax
Posts: 416
Joined: Feb 2016

I’m so sorry Sandy. I can’t imagine. Sending you hugs and love.

k

cinda
Posts: 63
Joined: Jul 2019

Hi everyone. I'm doing OK. really scared of the virus, my husband has copd and type 2 diabetes. Its just starting here. 14 cases in town. my husband feels I.m overeating. But I feel what I feel.For now  OK ,hugs and prayers to all of you and you're familys

Tom M.
Posts: 144
Joined: May 2019

Haven't been here in awhile. Hoping everyone is doing okay in these crazy times. Iam doing very well. Feeling good. I started a 6 round treatment in Feb. 4 down 2 more to go. Possible liver surgery. I see her the end of this month. My scan said NED in Feb so I'm guessing I will be scaned again end of this month. Missed you all. lost my password and I'm not very good with this modren tech stuff. Anyway got it going again and this time I wrote everything down.

Trubrit's picture
Trubrit
Posts: 5175
Joined: Jan 2013

Here's to another NED at the end of the month. 

Tru

Tom M.
Posts: 144
Joined: May 2019

Thank you,Tru.

Annabelle41415's picture
Annabelle41415
Posts: 6512
Joined: Feb 2009

So good to hear that you are NED.  It's good to see you post again and glad you wrote down the info so that you can visit us more often.  Take care and wishing you well.

Kim

Tom M.
Posts: 144
Joined: May 2019

Thanks, Kim

SnapDragon2's picture
SnapDragon2
Posts: 304
Joined: Nov 2019

Hi Tom,  its good to hear from you.  I am happy your treatment is working and you are NED!  I was following you and wondering where you went off to :)  I am having round 4 on Monday, scan afterward.  

Stay safe!

Tom M.
Posts: 144
Joined: May 2019

Thanks Snap Dragon2, I'll be praying for you. Good Luck!

k8's picture
k8
Posts: 33
Joined: Oct 2018

Husband had his follow up colonoscopy in Albany April 1. Was a bit nervous with all that's going on in the world. He was only appt. for this day so all worked out well. So far NED and doctor said to come back in 2 years.

So sorry for your loss Sandy. I know how difficult this must be. My thoughts and prayers are with you.

Stay safe all.

Kate

Trubrit's picture
Trubrit
Posts: 5175
Joined: Jan 2013

That must have been music to your ears. 

Congratulations on hubby for being NED. 

Here is a little man for you both, to help you celebrate.

Tru

Canadian Sandy's picture
Canadian Sandy
Posts: 627
Joined: Jul 2016

Thank you Kate.......your thoughts are much appreciated. Hope your hubby does well.

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