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So Glad We're Back!

EZLiving66's picture
EZLiving66
Posts: 1471
Joined: Oct 2015

I was really getting worried when this board was down for so long! What if we lost each other forever?? I wish there was some way CSN could keep track of posters. When I don't see someone for a while, I just hope and pray that they are doing so well, they no longer need our support. I know some of us are connected on other platforms like Facebook and email and that's great. But, others are not. 

Love,

Eldri

Anonymous user (not verified)

I know I don't post often, but I missed reading about all of the members victories and some set backs.  Hi EZliving66, stay safe in Florida with this new virus.   Hugs

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I was devastated when the site was down for 3 weeks with no communication about if it ever was coming back. And it inconveniently happened right when I found out I had a reoccurence and I chose not to tell anyone right away. But I was comforted by the fact that I had all of you to share with...but then I didn't. I was really mad to think I potentially had lost touch with all of you permanently.  I hope ACS knows how dependent we've become on this site and how devastating it would be to lose it. Nothing to toy with. This is serious stuff. 

Forherself's picture
Forherself
Posts: 506
Joined: Jan 2019

problems.  It does help to be able to share here.  I was so disappointed that we might be cut off from each  of the mebers here.     I hope your Oncologist finds something to stop your tiny recurrence from finding any way of growing.   And congratulationson your sons engagement.  

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

hope this gets posted  Thank goodness I can now send - was blocked for last 24 hrs. to send

EZLiving66's picture
EZLiving66
Posts: 1471
Joined: Oct 2015

Donna Faye, I was blocked too. I emailed CSN because I was so upset. Thankfully, I was able to post today!!!

Love,

Eldri

janaes
Posts: 800
Joined: May 2016

I dont post nears as often as i used to but when the site went down i was worried i would also loose all of you permanatly. I didnt like it. I thought it was just me that was block for quite a while until i found the page saying that CSN was down. Im glad we are back up too.

janaes
Posts: 800
Joined: May 2016

I dont post nears as often as i used to but when the site went down i was worried i would also loose all of you permanatly. I didnt like it. I thought it was just me that was block for quite a while until i found the page saying that CSN was down. Im glad we are back up too.

LisaPizza's picture
LisaPizza
Posts: 340
Joined: Feb 2018

I don't know why they don't use Twitter or Facebook to keep survivors updated during these things. Seems ridiculous, given that it's not exactly a rare occurence.

zsazsa1
Posts: 553
Joined: Oct 2018

I am SO glad that the website is back! I already knew how valuable the support was to me, but I didn't realize how ALONE I would feel without the website.  This thread format allows us to have discussions, share information, get to know and support each other.  I prefer it greatly to any of the Facebook sites.  And fortunately, no information was lost.  Welcome back.

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