So Glad We're Back!

EZLiving66
EZLiving66 Member Posts: 1,483 Member
in Uterine/Endometrial Cancer #1

I was really getting worried when this board was down for so long! What if we lost each other forever?? I wish there was some way CSN could keep track of posters. When I don't see someone for a while, I just hope and pray that they are doing so well, they no longer need our support. I know some of us are connected on other platforms like Facebook and email and that's great. But, others are not. 

Love,

Eldri

Comments

  • Unknown
    Unknown
    edited March 2020 #2
    Yes, I'm glad to see we're back

    I know I don't post often, but I missed reading about all of the members victories and some set backs.  Hi EZliving66, stay safe in Florida with this new virus.   Hugs

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    edited March 2020 #3
    Stronger Words

    I was devastated when the site was down for 3 weeks with no communication about if it ever was coming back. And it inconveniently happened right when I found out I had a reoccurence and I chose not to tell anyone right away. But I was comforted by the fact that I had all of you to share with...but then I didn't. I was really mad to think I potentially had lost touch with all of you permanently.  I hope ACS knows how dependent we've become on this site and how devastating it would be to lose it. Nothing to toy with. This is serious stuff. 

  • Donna Faye
    Donna Faye Member Posts: 427 Member
    edited March 2020 #4
    locked out

    hope this gets posted  Thank goodness I can now send - was blocked for last 24 hrs. to send

  • janaes
    janaes Member Posts: 799 Member
    edited March 2020 #5
    I dont post nears as often as

    I dont post nears as often as i used to but when the site went down i was worried i would also loose all of you permanatly. I didnt like it. I thought it was just me that was block for quite a while until i found the page saying that CSN was down. Im glad we are back up too.

  • janaes
    janaes Member Posts: 799 Member
    edited March 2020 #6
    I dont post nears as often as

    I dont post nears as often as i used to but when the site went down i was worried i would also loose all of you permanatly. I didnt like it. I thought it was just me that was block for quite a while until i found the page saying that CSN was down. Im glad we are back up too.

  • LisaPizza
    LisaPizza Member Posts: 358 Member
    #7
    I don't know why they don't

    I don't know why they don't use Twitter or Facebook to keep survivors updated during these things. Seems ridiculous, given that it's not exactly a rare occurence.

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    edited March 2020 #8
    Donna Faye said:

    locked out

    hope this gets posted  Thank goodness I can now send - was blocked for last 24 hrs. to send

    Donna Faye, I was blocked too

    Donna Faye, I was blocked too. I emailed CSN because I was so upset. Thankfully, I was able to post today!!!

    Love,

    Eldri

  • zsazsa1
    zsazsa1 Member Posts: 568 Member
    #9
    I am SO glad that the website

    I am SO glad that the website is back! I already knew how valuable the support was to me, but I didn't realize how ALONE I would feel without the website.  This thread format allows us to have discussions, share information, get to know and support each other.  I prefer it greatly to any of the Facebook sites.  And fortunately, no information was lost.  Welcome back.

  • Forherself
    Forherself Member Posts: 1,018 Member
    #10
    CheeseQueen57 said:

    Stronger Words

    I was devastated when the site was down for 3 weeks with no communication about if it ever was coming back. And it inconveniently happened right when I found out I had a reoccurence and I chose not to tell anyone right away. But I was comforted by the fact that I had all of you to share with...but then I didn't. I was really mad to think I potentially had lost touch with all of you permanently.  I hope ACS knows how dependent we've become on this site and how devastating it would be to lose it. Nothing to toy with. This is serious stuff. 

    I am so sorry to hear about your

    problems.  It does help to be able to share here.  I was so disappointed that we might be cut off from each  of the mebers here.     I hope your Oncologist finds something to stop your tiny recurrence from finding any way of growing.   And congratulationson your sons engagement.  

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