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17th PET/CT Scan

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Been living with stage IV kidney cancer for 6+ years now. Just had my 17th PET/CT.  New progression in soft tissues. Dang. So, Cabometyx out; Lenvatinib/Everolimus in.

I was on Cabometyx for only 6 months. It was tough: I lost 35 lbs, dropping from 170 to 135, making me weak and unsteady.

I'm looking forward to the short break before starting the Lenvatinib/Everolimus combo.

a_oaklee
Posts: 523
Joined: Nov 2013

I wish you lots of luck on the new combo you are going to start.  My husband took Envirolimus back in 2012.  I dont believe they were doing combos at that time.  His bone mets and primary tumor quickly shrunk by 50%.  He was taken off of it to have surgery.  The medicine was much easier to tolerate than Votrient.  After surgery he has been on Inlyta since 2013 and doing well thankfully.  He has had every bone met zapped.  I wish you the very best on this new medication.  

eug91's picture
eug91
Posts: 254
Joined: Jan 2019

Good luck with the new combo treatment. You've got this! 

stub1969's picture
stub1969
Posts: 864
Joined: Jul 2016

Sorry to hear about the cabo experience and the progression.  You're handling this news with such confidence.  I know you have a great team of doctors working with you on a plan.  I pray for better days where the cancer stops in its tracks and you gain those pounds back.  

Good luck, buddy!  Stub

(Have you been able to continue to work through the cabo experience?)

Bryn1108's picture
Bryn1108
Posts: 91
Joined: Jul 2017

Praying hard for you and Doctors for wisdom.  

Deanie0916
Posts: 320
Joined: Nov 2016

It sounds like you and your docs have a plan. Best wishes and prayers for healing.

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