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Question for those of you with lymphedema

Tamlen's picture
Tamlen
Posts: 281
Joined: Jan 2018

For any of you who have developed lymphedema: Was severe knee pain an early symptom for any of you?

I have no swelling at all and doctor checks say no sign of lymphedema, and my knee pain could easily be attributable to the aromatase inhibitor I'm on. But, since a lot of the pain is directly behind my kneecaps, I'm wondering about fluid buildup being a possible cause.

Thanks!

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

I would try and see a PT that knows lymphedema. It has relieved my pain so much!

Tamlen's picture
Tamlen
Posts: 281
Joined: Jan 2018

I had read that before posting, yes! So glad you're getting relief. I didn't realize from reading that post that knee pain had been an early symptom of your lymphedema. How did it progress from there?

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

My swelling had been gradual and would go down at night so I did not realize how much the swelling impacted my legs, knees, etc. Now that the swelling has been reduced, the muscles and nerves are not so tight and the knee pain is only from my OA. I am so much better.

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