CSN Login
Members Online: 5

You are here

I’m Back!

txbarton's picture
Posts: 89
Joined: Aug 2009

I joined the prostate cancer forum Fall 2009 just before my robotic, radical prostatectomy.  My PSA was undetectable for 5 years.  Then I ate some bad duck in late summer 2014, got campilobacter infection, caused renal failure, creatinine went to 6.7.   After 4 days in ICU they decided to scan my kidneys to see if there was any physical damage and found a "shadow."  Referred to a urologist who perfomed a left nephrectomy on me, kidney and tumors removed were the size of a football. Pathology showed clear cell renal carcinoma. During the pre-op labs they discovered my PSA was back (0.21). 3 months after my nephrectomy I began radiation and androgen deprivation therapy for my recurrent PC.

I was in semiannual CT scans for ~3 years then moved to annual. My first annual scan showed tumors in my pancreas. Had a robotic distal pancreatectomy and splenectomy Sept 2018 and put back on semiannual scans. Again,pathology showed clear cell renal carcinoma. 3 scans in a row were good. 

My wife's annual mammogram in late Sept this year showed a tumor.  She had a bilateral mastectomy in late Oct. My semiannual scan 2 weeks later revealed 3 new renal cell tumors around my diaphragm and are inoperable. Referred to a medical oncologist who is planning to put me in 2-year, Yervoy-OPDIVO immunotherapy shortly after interventional radiology confirms the diagnosis with a needle biopsy. 

At least my PSA is staying undetectable!

Does anyone on the forum have experience with the Yervoy-OPDIVO protocol?  Potential side effects are pretty scary. 

More as my journey continues. 

Not relevant to this forum but I cannot express strongly enough the importance of annual mammograms!  My wife has always had good reports until this one. They caught it early and saved her life!

Subscribe to Comments for "I’m Back!"