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Nov 26, 2019 - 6:25 pm
I joined the prostate cancer forum Fall 2009 just before my robotic, radical prostatectomy. My PSA was undetectable for 5 years. Then I ate some bad duck in late summer 2014, got campilobacter infection, caused renal failure, creatinine went to 6.7. After 4 days in ICU they decided to scan my kidneys to see if there was any physical damage and found a "shadow." Referred to a urologist who perfomed a left nephrectomy on me, kidney and tumors removed were the size of a football. Pathology showed clear cell renal carcinoma. During the pre-op labs they discovered my PSA was back (0.21). 3 months after my nephrectomy I began radiation and androgen deprivation therapy for my recurrent PC. I was in semiannual CT scans for ~3 years then moved to annual. My first annual scan showed tumors in my pancreas. Had a robotic distal pancreatectomy and splenectomy Sept 2018 and put back on semiannual scans. Again,pathology showed clear cell renal carcinoma. 3 scans in a row were good. My wife's annual mammogram in late Sept this year showed a tumor. She had a bilateral mastectomy in late Oct. My semiannual scan 2 weeks later revealed 3 new renal cell tumors around my diaphragm and are inoperable. Referred to a medical oncologist who is planning to put me in 2-year, Yervoy-OPDIVO immunotherapy shortly after interventional radiology confirms the diagnosis with a needle biopsy. At least my PSA is staying undetectable! Does anyone on the forum have experience with the Yervoy-OPDIVO protocol? Potential side effects are pretty scary. More as my journey continues. Not relevant to this forum but I cannot express strongly enough the importance of annual mammograms! My wife has always had good reports until this one. They caught it early and saved her life! |