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Checking in after quite a while

Tamlen's picture
Tamlen
Posts: 264
Joined: Jan 2018

Hello, everyone -

I've been gone from the forum for quite a while, taking a break from talking and thinking constantly about cancer. For those who have joined the forum since I was here last, I was diagnosed almost two years ago with Stage IV, Grade 1 endometrioid adenocarcinoma. I'll update my forum profile shortly to reflect current status.

I've been heavily focused on living with cancer instead of dying from it, even despite the dire Stage IV diagnosis. I was pretty debilitated after chemo and the constant pain caused by my current meds, not recognizing my newly chunky self in the mirror and grieving the loss of my previously active and athletic self.

In recent months I've been working hard to get back into shape, hiking a nearby mountain with my dog (and sometimes my husband) pretty much every morning before work. Even though I still don't feel like myself, I'm starting to feel much stronger and happier again. I've been so afraid of getting lymphedema and I've been relieved to feel my legs feeling thinner and more muscular inside my jeans.

I was lucky to get some excellent results from chemo, which shrunk and mostly killed the mets to my lungs (the only place I've ever had mets). The Aromasin I'm on now also seems to have contributed to bringing those suckers to their knees.

I had my first scan in 6 months on Friday. After 18 months of scans every 3 months, waiting 6 was a bit scary. I just got word: No evidence of disease. Can't quite believe it, know that it may not last for years or even a year, but am still singing from the rooftops today.

And thanking you all for so much good advice and support over the journey so far. Thanks to what I learned here I have no neuropathy and was able to navigate surgery and chemo far better than I would otherwise. You all are a blessing.

cmb's picture
cmb
Posts: 551
Joined: Jan 2018

Tamlen, so happy to hear that you are feeling stronger and happier now. And the latest scan showing that you're NED is really great news! Thanks for the update.

LisaPizza's picture
LisaPizza
Posts: 324
Joined: Feb 2018

What a wonderful result! And lovely timing ro share it, as I am having a 6 month CT today. Happy to hear things are improving  and you're finding your way. 

Fridays Child
Posts: 183
Joined: Jul 2019

Good luck with your scan, Lisa, and please keep us posted with your results!

Tamlen's picture
Tamlen
Posts: 264
Joined: Jan 2018

I hope all goes wonderfully with your scan results!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1683
Joined: Jun 2015

Great to hear from you Tamlen. Very special to have the update you have shared with all of us. Congrats on NED. May you continue the dance for many years to come.

Love and Hugs

Cindi

Armywife's picture
Armywife
Posts: 428
Joined: Feb 2018

Oh, Tamlen - this is wonderful news!  I also heard those beautiful NED words last week after my 2-year scan.  I fully understand the tension of living in this new world - trying to find  a balance between thinking about it all the time and trying to forget about it.  I admire your persistence and success in becoming strong and athletic again.  Thank you, thank you for coming back and giving us continued hope.  I was also Stage IVB, but Grade 2.  So thankful to know we are both still hanging in there.

Tamlen's picture
Tamlen
Posts: 264
Joined: Jan 2018

It is amazing to here those words, isn't it? And you with Grade 2, too. What a milestone!

barnyardgal
Posts: 261
Joined: Oct 2017

That is wonderful news!! Congratulations.

I just had my yearly scan (I was 3a) and still NED as well. Such a relief.

Enjoy climbing mountains!

Tamlen's picture
Tamlen
Posts: 264
Joined: Jan 2018

It's so wonderful to read here how so many of us with advanced stage cancer have gotten to NED. It's uplifting to see it.

Was waiting a whole year a nail-biter?

EZLiving66's picture
EZLiving66
Posts: 1434
Joined: Oct 2015

Glad to hear such wonderful news! I love your attitude - "I've been heavily focused on living with cancer instead of dying from it,......" That is something we should all learn to do.  Please pop in once in a while to keep us updated on your good news.

Love,

Eldri

Fridays Child
Posts: 183
Joined: Jul 2019

Thanks for updating us with your NED scan results!  I was diagnosed in Jan 2018 with recurrence/metastasis but so far have not yet achieved a NED scan.  Hope I can join that club before long.

zsazsa1
Posts: 504
Joined: Oct 2018

Hooray!!! Love to hear how active you are, so focused on living and doing.  I too am a member of the NED club - just had scans done last week, NED.  I've come to think I'm going to be living and planning in chunks, from NED exam to NED exam, for the time being.

CheeseQueen57's picture
CheeseQueen57
Posts: 935
Joined: Feb 2016

What wonderful news!

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2802
Joined: Mar 2013

Ah Tamlen, thank you for checking in and letting us know how you are doing.  I pray for your continued success in health!

Forherself's picture
Forherself
Posts: 437
Joined: Jan 2019

Your spirit was missed, but you sound like you have reached a good place.  Thank you for sharing, and checking in.

 

Tamlen's picture
Tamlen
Posts: 264
Joined: Jan 2018

Thanks for all the love and support, everyone. We went out for a celebration dinner last night. My husband couldn't stop grinning and I was positively giddy.

janaes
Posts: 800
Joined: May 2016

Tamlen

Gladto hear you moving forward in your journey. Sounds like you have done a lot a good for yourself. Keep up the good work

Northwoodsgirl
Posts: 571
Joined: Oct 2009

So very happy for you Tamlen!!!  I totally get your decision to focus on trying to get active and feel more like your “before” self. The anxiety between or as one approaches their scan appointment is something none of us ever gets use to. Here’s to many years of dancing with NED dear one!

((Hug))

Lori

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