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Lymphoma-versary

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

This morning, I realized that I recently passed the 7 year anniversary, without notice, of my lymphoma diagnosis. (9/28/12) That the day passed without my realizing it, I take as a good sign, one I never thought I would see.  

Love and healing to all,

Rocquie

 

ShadyGuy
Posts: 411
Joined: Jan 2017

I had not thought about it but next Saturday will be 8 years since my official diagnosis. Thanks for reminding me. We have much to be grateful for!

Almost70now's picture
Almost70now
Posts: 29
Joined: May 2019

Hi Rocquie, and Shady Guy,

  June I passed my 9 year mark since diagnosed. I did remember mine, only because we were dealing with a close friend that has since passed from his cancer. I'm thankful every single day. To us and everyone else for continued success! Love...Sue

FNHL-stage3-grade2-typA-diagnosed June 2010

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3309
Joined: May 2012

Sue and all,

I went 10 years in August, 2009 regarding the HL-III.   I go 5 years with Stage II Prostate in November (biopsy, 2014).

It is wonderful to read of so many being well after so long.   And I mean this totally as an optimistic observation:   very, very few have reported death from Lymphoma here over the years.    At Prostate, it is a pretty regular thing.....

lindary's picture
lindary
Posts: 658
Joined: Mar 2015

Mid-Dec it will mark 5 years since I was diagnosed. Not sure if I will be aware of that in Dec since our older daughter is having her first baby (a girl) around mid-Dec. I am sure my mind will be on other things. 

Rosa851
Posts: 2
Joined: Jul 2019

Hi , My mother has splenic marginal zone lymphoma (NHL) with involvment of eyes and lymph nodes , she passed 5 years from initial diagnosis and shehad splengtomy  (2014)in first line of treatment and she had 2 times relapse more in lymph nodes and now  it should be start the treatment with rithoximab alone and l want know if everybody has exprience about this lymphoma and similar to my mother's lymphoma give a littele information about relapse and how often relapse can be happen ? 

yesyes2
Posts: 589
Joined: Jul 2009

I guess i'm currently the old one here, first diagnosed Jan. 2008, treated with Rituxian only.  Relapsed June 2009 and finished RCHOP in March 2010.  So I'm eleven years, soon to be twelve since diagnosis and ten since finishing treatment. Because of my RA just this past Friday I had my 49th infusion. To be totally honest I do worry what that much of a drug is doing to me, but also being in my eary 70s I don't worry as much as if I were younger.  I'm not sure I remember the anniversaries but I do remember the day I had an ultrasound and was told there was a problem.  It was my son's birthday, Nov. 29th.  Perhaps that's the connection for me.

illead's picture
illead
Posts: 844
Joined: Aug 2012

Bill was diagnosed July '11 and has relapsed 3 times.  Happily we just got his pet results on Tues. and all is well.  He is on Revlimid/rit  but is taking a break from the rit for 6 mos. to see if it will help his chronic sinus infection which has been very hard on him.  His onc is making an appt for him at UC Davis with a specialist so maybe he can do better than our local ENTs.

Happy anniversary everyone

B & B

ShadyGuy
Posts: 411
Joined: Jan 2017

I hope Bill is able to shake his sinus infection soon. Mine started in January '18 while on chemo. My onc kept telling me to go to an ENT which I did - in fact I went to several. An ENT's answer to everything is antibiotics. Nothing worked. I had head scans, MRIs and many different antibiotics. It was terrible! Finally I went to a major cancer center which said I should immediately stop Rituxan. Whammo. In less than 2 months that nasty infection which I had for 16 mos healed right up. No antibiotics. Never again will I trivialize a sinus infection!  They are serious business. Once again I wish Bill the best.

Rosa851
Posts: 2
Joined: Jul 2019

Tanks for all for your information . I wish health for all of cancer patients.

illead's picture
illead
Posts: 844
Joined: Aug 2012

Thanks for the support.  It has been a few days over 2 months since Bill's last rituxan infusion and the sinus infection is still raging. He had rituxan with chemo when first diagnosed in 7/11 and then every 2 months for 2 yrs. after that.  Dr Wang at MDA started him on monthly rituxan the end of '17, and his onc here changed that to every 2 mos. a year later, so he has had a lot.  Hopefully in the next 4 mos. he will notice a difference.  I really doubt if the specialist at UC Davis will have a magic answer but we may as well see what he says.  We have heard horror stories about surgery so don't think we will opt for that.  You are right, sinus infections are horrible and there isn't a lot of sympathy for the victims, it's usually "Well, you can live with that."  Undecided

Becky

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