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Bleeding years after cancer and chemo

snyderpm
Posts: 40
Joined: Dec 2009

Hi girls, I am back with more worries.  Several months ago I posted about my CA125 going up for the first time in 8 yrs post chemo, and it turned out to be from pelvic inflamation due to periformis injection with steroids, 2 days prior to getting my blood analysis.  Got that scare out of the way, and now I have another one.  Maybe you will have some knowledge you can share. 

This past Friday, while peeing there was blood when I wiped myself.  It was like a glob of blood, not a flood, but not just a spot, and that was it.  Not a drop since then.  September 18 my CA 125 was 5, and has always been a true indicator for me.  I have read up on it some, and it can be from thinning of the vagina causing it to bleed, or a tear in the vaginal cuff, etc.  I cannot tell that there is anything wrong with me physically.  I am 75 so I don't run the 100 yard dash anymore, but I do ride my horse several times a week, and have the energy to do it.  The irony of this is that I just had my port out and I had it 8 years and 8 months.  Appreciate any comments.

Donna Faye's picture
Donna Faye
Posts: 372
Joined: Jan 2017

Your post caught my eye as I have something going on, not same, but connected. I am 79, and stopped dilating last Jan. due to bleeding from blood thinners and radiated vagina. I am 18 mos.NED until I had a CT last week and it showed a golf size mass of liquid. I am going off blood thinners so doc can do a pelvic. I had 8 brachys so very closed vagina. Gyn/onc doc thinks it is perhaps blood or just fluid but we have to see. I had hoped things in the vagina were done but not so. So, depending on your vagina's condition, it might just be something breaking loose. Do have it checked out. But I know how you feel. I feel good and was planning getting back on my horse this month and now this. Darn! Keep us posted.

cmb's picture
cmb
Posts: 469
Joined: Jan 2018

About six months after I finished treatment (chemo and external radiation) I had vaginal bleeding one Sunday. It was bright red and made a sizeable spot, with lesser amounts the rest of the day. I had just had my three months cancer follow-up exam a couple of weeks before, where everything looked fine.

Although I called the gynecological oncologist's office the next morning, I was already scheduled that day to see my primary care physician for a regular checkup. Since she had done my pap smears and pelvic/rectal exams for many years before I had cancer, the nurse at the gynecological oncologist's office agreed that the PCP should check out a possible cause of the bleeding.

The PCP did a thorough vaginal/rectal exam, but found nothing that would explain the bleeding (which had already stopped overnight). I didn't not have any more bleeding. However, just to be on the safe side, the gynecological oncologist ordered a CT-scan when I went for my next follow-up exam with him a couple of months later. The CT-scan didn't show any sign of cancer.

I still don't know why I had the bleeding – I hadn't done anything out of the ordinary the day before. It was worrisome, but it hasn't recurred. Another CT-scan last February was also negative for cancer.

So I can't shed any light on why you had bleeding, but I know that I felt better after my PCP did her exam and didn't find anything that looked amiss. It may be worth it for your piece of mind to schedule a doctor visit.

I'm glad to hear that the rise in CA125 was due to just the steroids and that all is well on that front, especially since it has been a reliable indicator for you.

zsazsa1
Posts: 466
Joined: Oct 2018

I'd call your doctor.  Common things happen commonly, and UTIs happen very commonly in older women - can be without the usual painful, frequent urination.  And of course you could have a break in the vaginal cuff.  After all this time, I'm it's unlikely to be a recurrence.

 

snyderpm
Posts: 40
Joined: Dec 2009

Thank you all for your comments.  They are very helpful, and I feel better already.  I have contacted a gyno/oncol and they are going to set me up with an appointment, but you know that will probably take weeks..

Northwoodsgirl
Posts: 570
Joined: Oct 2009

I agree with the others that for peace of mind see your physician. Sometimes women have a bit of a prolapse of the vaginal wall and as a result tissues can fall down and be irritated by toilet paper. Also as mentioned a urinary tract infection or early bladder infection is possible. It sounds like even the horseback riding could cause some irritation.  Glad you have an appointment. 

Lori

Kaleena's picture
Kaleena
Posts: 1980
Joined: Nov 2009

Hmmm. Last Tuesday this happened to me.  I am 59 years old.   i do get stomach pains which I have been keeping track of and I had them last weekend (and today).    Then Tuesday (15th) I was not myself at work. Had a slight headache and lower back ache.   When I went home I went to the bathroom and was surprised to see what appeared to be a light period (I wear bladder pads).  When I wiped it was red and pink.  Then after awhile pink and that's it.   I called my doctors on Wednesday and then called gyne/onc who I have an appointment with on Thursday (24th)

I did have a recurrence at the vaginal cuff and along the rectum.  I had that surgery in 2018 with a positive lymph node.   Because it was all removed I had no treatment   I have scans scheduled with my surgical doctor (who I follow up with) on December 5th     I'll let you know what goes on Thursday

 

Forherself's picture
Forherself
Posts: 324
Joined: Jan 2019

Hopefully it will be a benign bleed.   Praying for you.   I admire your attitude too.  Hugs to you.

suzycruise76's picture
suzycruise76
Posts: 121
Joined: Mar 2019

crossing my fingers for you!Smile

Suzy

Armywife's picture
Armywife
Posts: 362
Joined: Feb 2018

Praying now for both of you!  Let us know how these appointments go.

Kaleena's picture
Kaleena
Posts: 1980
Joined: Nov 2009

Good news.   Nothing out of ordinary.    The doctor only said if I should have another episode to call and then they would move my scans up.   Otherwise good to go!

Thanks for the prayers!

 

suzycruise76's picture
suzycruise76
Posts: 121
Joined: Mar 2019

good to have a peace of mind Smile!

Armywife's picture
Armywife
Posts: 362
Joined: Feb 2018

Great news!

Forherself's picture
Forherself
Posts: 324
Joined: Jan 2019

Blessed news.  Enjoy your weekend.   

 

laura25's picture
laura25
Posts: 178
Joined: Mar 2011

Wonderful news!!!!!!!  

ConnieSW's picture
ConnieSW
Posts: 1462
Joined: Jun 2012

Good to hear from you. 

laura25's picture
laura25
Posts: 178
Joined: Mar 2011

Hope all is well by you... all good by me!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1617
Joined: Jun 2015

Great News Kaleena. So happy to see it.  I hope you continue to dance with NED for years!

Love and Hugs,

Cindi

cmb's picture
cmb
Posts: 469
Joined: Jan 2018

Glad to hear that all is well on the bleeding front, Kaleena.

ConnieSW's picture
ConnieSW
Posts: 1462
Joined: Jun 2012

way to go!

Kaleena's picture
Kaleena
Posts: 1980
Joined: Nov 2009

Thanks everyone!    I wish everyone a great weekend.  
Hugs!!!!!

?❤️

barnyardgal
Posts: 251
Joined: Oct 2017

Great news!

Forherself's picture
Forherself
Posts: 324
Joined: Jan 2019

We wait with you.  You are in my prayers.

Northwoodsgirl
Posts: 570
Joined: Oct 2009

Kaleena, Thinking if you as Dec. 5th scanning appointment approaches. 

Lori

Kaleena's picture
Kaleena
Posts: 1980
Joined: Nov 2009

Thanks Lori!   I have so much going on.  Besides me now feeling a small lump in my thigh I really am feeling down.  My husband just had a lung biopsy and we are waiting for the results.  it has been there on previous scans but given the fact he had pancreatic cancer they are being cautious.   so they are testing to see if it's a spread, a lung cancer, or hopefully a benign inflammation.   And in one week his stomach got bloated.    It's hard to see him be worried and upset.   

Didn't mean to let all that out but I've been holding it in   Anyway thanks for the well wishes for my scans    I'll let you know how it goes   Have a great Thanksgiving   

Kath

 

MAbound
Posts: 988
Joined: Jun 2016

Hey!

You've been a good listener for everyone else's worries for quite a few years now, so go ahead and take a turn to vent about what-all you are dealing with. Sheesh! The waiting is always the hardest and to be in the midst of it again just before the holidays has gotta suck big time. I'm really hoping that all of this turns out ok for you and your husband, but if not, you know we're here for you whatever you need from us.

Hugs and Prayers....Pat

laura25's picture
laura25
Posts: 178
Joined: Mar 2011

I haven't been on the board in awhile and just saw this... I'm so sorry you're going through this Kathy.  You are always in my prayers... and incase I haven't said it lately... I $*#& hate cancer.  

EZLiving66's picture
EZLiving66
Posts: 1396
Joined: Oct 2015

Oh Kathy, the waiting can be excruciating! We always expect the worst but who can blame us? I'm hoping and praying nothing comes of it for either you and your husband. (((Kathy)))

Love,

Eldri 

Northwoodsgirl
Posts: 570
Joined: Oct 2009

You really have a lot going on!  I am praying your thigh lump is just a lipoma.

I can only imagine what you and your beloved have been and are going through. Ugghhh!

My husband’s brother was just diagnosed with pancreatic cancer.  We won’t know much until after he meets with oncologist on Friday. Anyway, praying that you receive good news with your upcoming scan. Also praying for your husband and his biopsy report. It’s unbelievable how much cancer there is in some families and our world. 

Lori

Forherself's picture
Forherself
Posts: 324
Joined: Jan 2019

you know that this IS the place to share those feelings.  Sharing with family sometimes makes more problems.  I pray that both your results are good news.  I know how you feel about the lump.  Everything seems ominous after a cancer diagnosis.  Chances are it is benign in your thigh.   I had a pinched nerve in my back and of course the thought crossed my mind that it could be a recurrence.  It wasn't.   Huggs to you.

cmb's picture
cmb
Posts: 469
Joined: Jan 2018

Kaleena

I'm sorry that you and your husband are experiencing such worries right now. And it's always difficult when these things crop up around a holiday since it can take longer to schedule tests or get results.

I hope you get some good news soon and can enjoy a peaceful Thanksgiving.

zsazsa1
Posts: 466
Joined: Oct 2018

So sorry that you are going through this now.  I'm hoping that you and your husband can channel your inner Scarlet O'Hara and just say, "I can't think about it today.  I'll think about it (after the holiday).  And hoping that the scans are all negative.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2699
Joined: Mar 2013

Kathy and snyderpm, you are both in my thoughts.  Please let us know how things go.  You are always encouraged to tell us what is going on with no judgement.  It is a safe place.

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