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Oct 09, 2019 - 11:04 pm
Hi girls, I am back with more worries. Several months ago I posted about my CA125 going up for the first time in 8 yrs post chemo, and it turned out to be from pelvic inflamation due to periformis injection with steroids, 2 days prior to getting my blood analysis. Got that scare out of the way, and now I have another one. Maybe you will have some knowledge you can share. This past Friday, while peeing there was blood when I wiped myself. It was like a glob of blood, not a flood, but not just a spot, and that was it. Not a drop since then. September 18 my CA 125 was 5, and has always been a true indicator for me. I have read up on it some, and it can be from thinning of the vagina causing it to bleed, or a tear in the vaginal cuff, etc. I cannot tell that there is anything wrong with me physically. I am 75 so I don't run the 100 yard dash anymore, but I do ride my horse several times a week, and have the energy to do it. The irony of this is that I just had my port out and I had it 8 years and 8 months. Appreciate any comments. |
Joined: Jan 2017
Not the same but curious
Your post caught my eye as I have something going on, not same, but connected. I am 79, and stopped dilating last Jan. due to bleeding from blood thinners and radiated vagina. I am 18 mos.NED until I had a CT last week and it showed a golf size mass of liquid. I am going off blood thinners so doc can do a pelvic. I had 8 brachys so very closed vagina. Gyn/onc doc thinks it is perhaps blood or just fluid but we have to see. I had hoped things in the vagina were done but not so. So, depending on your vagina's condition, it might just be something breaking loose. Do have it checked out. But I know how you feel. I feel good and was planning getting back on my horse this month and now this. Darn! Keep us posted.
Joined: Jan 2018
Single Bleeding Incident
About six months after I finished treatment (chemo and external radiation) I had vaginal bleeding one Sunday. It was bright red and made a sizeable spot, with lesser amounts the rest of the day. I had just had my three months cancer follow-up exam a couple of weeks before, where everything looked fine.
Although I called the gynecological oncologist's office the next morning, I was already scheduled that day to see my primary care physician for a regular checkup. Since she had done my pap smears and pelvic/rectal exams for many years before I had cancer, the nurse at the gynecological oncologist's office agreed that the PCP should check out a possible cause of the bleeding.
The PCP did a thorough vaginal/rectal exam, but found nothing that would explain the bleeding (which had already stopped overnight). I didn't not have any more bleeding. However, just to be on the safe side, the gynecological oncologist ordered a CT-scan when I went for my next follow-up exam with him a couple of months later. The CT-scan didn't show any sign of cancer.
I still don't know why I had the bleeding – I hadn't done anything out of the ordinary the day before. It was worrisome, but it hasn't recurred. Another CT-scan last February was also negative for cancer.
So I can't shed any light on why you had bleeding, but I know that I felt better after my PCP did her exam and didn't find anything that looked amiss. It may be worth it for your piece of mind to schedule a doctor visit.
I'm glad to hear that the rise in CA125 was due to just the steroids and that all is well on that front, especially since it has been a reliable indicator for you.
Joined: Oct 2018
I'd call your doctor. Common
I'd call your doctor. Common things happen commonly, and UTIs happen very commonly in older women - can be without the usual painful, frequent urination. And of course you could have a break in the vaginal cuff. After all this time, I'm it's unlikely to be a recurrence.
Joined: Dec 2009
Bleeding years after cancer and chemo
Thank you all for your comments. They are very helpful, and I feel better already. I have contacted a gyno/oncol and they are going to set me up with an appointment, but you know that will probably take weeks..
Joined: Oct 2009
Spotting years later
I agree with the others that for peace of mind see your physician. Sometimes women have a bit of a prolapse of the vaginal wall and as a result tissues can fall down and be irritated by toilet paper. Also as mentioned a urinary tract infection or early bladder infection is possible. It sounds like even the horseback riding could cause some irritation. Glad you have an appointment.
Lori
Joined: Nov 2009
Going through similar
Hmmm. Last Tuesday this happened to me. I am 59 years old. i do get stomach pains which I have been keeping track of and I had them last weekend (and today). Then Tuesday (15th) I was not myself at work. Had a slight headache and lower back ache. When I went home I went to the bathroom and was surprised to see what appeared to be a light period (I wear bladder pads). When I wiped it was red and pink. Then after awhile pink and that's it. I called my doctors on Wednesday and then called gyne/onc who I have an appointment with on Thursday (24th)
I did have a recurrence at the vaginal cuff and along the rectum. I had that surgery in 2018 with a positive lymph node. Because it was all removed I had no treatment I have scans scheduled with my surgical doctor (who I follow up with) on December 5th I'll let you know what goes on Thursday
Joined: Jan 2019
Good luck tomorrow
Hopefully it will be a benign bleed. Praying for you. I admire your attitude too. Hugs to you.
Joined: Mar 2019
Kaleena,
crossing my fingers for you!
Suzy
Joined: Feb 2018
Snyder and Kaleena
Praying now for both of you! Let us know how these appointments go.
Joined: Nov 2009
Good news
Good news. Nothing out of ordinary. The doctor only said if I should have another episode to call and then they would move my scans up. Otherwise good to go!
Thanks for the prayers!
Joined: Mar 2019
Congratulations,
good to have a peace of mind
!
Joined: Feb 2018
Yes!
Great news!
Joined: Jan 2019
What a relief to hear
Blessed news. Enjoy your weekend.
Joined: Mar 2011
Yahooo!
Wonderful news!!!!!!!
Joined: Jun 2012
Hey, Laura
Good to hear from you.
Joined: Mar 2011
Thanks Connie
Hope all is well by you... all good by me!
Joined: Jun 2015
Great News Kaleena. So happy
Great News Kaleena. So happy to see it. I hope you continue to dance with NED for years!
Love and Hugs,
Cindi
Joined: Jan 2018
Glad to hear that all is well
Glad to hear that all is well on the bleeding front, Kaleena.
Joined: Jun 2012
Good news
way to go!
Joined: Nov 2009
Thanks everyone! I wish
Thanks everyone! I wish everyone a great weekend.
Hugs!!!!!
?❤️
Joined: Oct 2017
Great news!
Great news!
Joined: Jan 2019
Snyderpm any news?
We wait with you. You are in my prayers.
Joined: Oct 2009
Thinking of you as Dec. 5 approaches
Kaleena, Thinking if you as Dec. 5th scanning appointment approaches.
Lori
Joined: Nov 2009
Thanks Lori! I have so much
Thanks Lori! I have so much going on. Besides me now feeling a small lump in my thigh I really am feeling down. My husband just had a lung biopsy and we are waiting for the results. it has been there on previous scans but given the fact he had pancreatic cancer they are being cautious. so they are testing to see if it's a spread, a lung cancer, or hopefully a benign inflammation. And in one week his stomach got bloated. It's hard to see him be worried and upset.
Didn't mean to let all that out but I've been holding it in Anyway thanks for the well wishes for my scans I'll let you know how it goes Have a great Thanksgiving
Kath
Joined: Jun 2016
Let it out
Hey!
You've been a good listener for everyone else's worries for quite a few years now, so go ahead and take a turn to vent about what-all you are dealing with. Sheesh! The waiting is always the hardest and to be in the midst of it again just before the holidays has gotta suck big time. I'm really hoping that all of this turns out ok for you and your husband, but if not, you know we're here for you whatever you need from us.
Hugs and Prayers....Pat
Joined: Mar 2011
Thinking of you
I haven't been on the board in awhile and just saw this... I'm so sorry you're going through this Kathy. You are always in my prayers... and incase I haven't said it lately... I $*#& hate cancer.
Joined: Oct 2015
Oh Kathy, the waiting can be
Oh Kathy, the waiting can be excruciating! We always expect the worst but who can blame us? I'm hoping and praying nothing comes of it for either you and your husband. (((Kathy)))
Love,
Eldri
Joined: Oct 2009
Lots going on!
You really have a lot going on! I am praying your thigh lump is just a lipoma.
I can only imagine what you and your beloved have been and are going through. Ugghhh!
My husband’s brother was just diagnosed with pancreatic cancer. We won’t know much until after he meets with oncologist on Friday. Anyway, praying that you receive good news with your upcoming scan. Also praying for your husband and his biopsy report. It’s unbelievable how much cancer there is in some families and our world.
Lori
Joined: Jan 2019
Kaleena I hope
you know that this IS the place to share those feelings. Sharing with family sometimes makes more problems. I pray that both your results are good news. I know how you feel about the lump. Everything seems ominous after a cancer diagnosis. Chances are it is benign in your thigh. I had a pinched nerve in my back and of course the thought crossed my mind that it could be a recurrence. It wasn't. Huggs to you.
Joined: Jan 2018
Kaleena
Kaleena
I'm sorry that you and your husband are experiencing such worries right now. And it's always difficult when these things crop up around a holiday since it can take longer to schedule tests or get results.
I hope you get some good news soon and can enjoy a peaceful Thanksgiving.
Joined: Oct 2018
So sorry that you are going
So sorry that you are going through this now. I'm hoping that you and your husband can channel your inner Scarlet O'Hara and just say, "I can't think about it today. I'll think about it (after the holiday). And hoping that the scans are all negative.
Joined: Mar 2013
Kathy and snyderpm, you are
Kathy and snyderpm, you are both in my thoughts. Please let us know how things go. You are always encouraged to tell us what is going on with no judgement. It is a safe place.