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It's been a while..

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

Hey guys!

 

Its been a while since I have been on this board.  I was diagnosed in August 2017 with a 4.5 CM and had a partial Right Nephrectomy in September 2017.  CCRCC Stage 1 Grade 2.  Fast forward to last Thursday at my scans a small cyst that was being monitored for 2 years took up the dye.  It seems there is a small 2.0 or smaller mass inside the cyst that is now taking the dye.  It also grew slightly from my last scans.  This is considered a new occurence and not a recurrence or metastasis.  I was told CCRCC has a 2 to 4 percent chance of occuring in both kidneys. Not exactly the way I wanted to be in the Top 2%!! I am having a partial nephrectomy on the 16th as well as following with genetic testing and lifelong monitoring.  At least this time I know what to expect with the surgery and recovery.  Not that I am looking foward to it but the only unknowns now are is it also CCRCC or something else.  I hope all you have been doing ok since my last post here. 

 

 

eug91's picture
eug91
Posts: 157
Joined: Jan 2019

Sorry you had to rejoin us under such circumstances, but thanks to your monitoring, you've caught it early. Plus you've already been through it once before and know that you're gonna do great. We're with you and we'll be thinking of you. Please let us know how it goes. 

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

Thank you!  I don't really know why I stopped visiting here other than I am in some really good facebook groups and I resumed normal life.  I am grateful for the fact that now I won't have to ask for scans after 5 years!  I was already planning how I could work in regular scans after they deemed me no longer needing them. 

thingone
Posts: 39
Joined: Feb 2019

I am terribly sorry to hear that. You had successfully gone thought the first one, you will definitely succeed in dealing with the second one. Before my nephrectomy surgery, my doctor told me he did not worry about my kidney mass found in early stage as it is pretty much curable through a surgery procedure. Right after the surgery, he told me I could live another fifty years. Best wishes

Allochka's picture
Allochka
Posts: 874
Joined: Nov 2014

Angie, this is an unpleasant news, but now you know what to expect, you know it can and will be cured by surgery and that life will go on.

Good luck with the surgery and keep us posted. 

Janet920's picture
Janet920
Posts: 12
Joined: Feb 2019

I wish you well. 

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

Than you everyone... Even with knowing what to expect this time I still find myself having moments of being weepy about it all. 

icemantoo's picture
icemantoo
Posts: 3227
Joined: Jan 2010

Not fun going to a second Rodeo. Mine was last week after 17 years NED. No more Prostate. Hopefully this  will ne  the last time repeat performance for you.

 

 

 

 

 

icemantoo

eug91's picture
eug91
Posts: 157
Joined: Jan 2019

Angie- The mental part of the entire process is taxing and exhausting. You're only human. Just like we have to take care of our bodies, don't forget to take care of your mind and spirit. 

Next time you feel weepy, let yourself be weepy. Let it out. Then maybe treat yourself to something nice. You're gonna get through this and you're gonna do great. We're with you! 

 

Jan4you's picture
Jan4you
Posts: 1322
Joined: Oct 2013

Well, Angie, glad you returned to us, but sorry its another occurance. Are they sure its cancer? Sorry for second guessing. I also have a cyst in the remaining kidney and done with my Urologist/surgeon's follow up. I wonder if I should have it monitored. 

Good luck and let us know how you are doing ok?

Sending you HOPE, COURAGE and HEALING!

Healing hugs,

Jan

Deanie0916
Posts: 259
Joined: Nov 2016

To you for hope and healing.

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