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I don't have too much to say at this point in my life

donna_lee's picture
donna_lee
Posts: 1003
Joined: Feb 2009
Oct 02, 2019 - 4:34 pm

I didn't have lap or robotic surgery, no drugs or radiation, or a lot of the problems some of you have encountered.  I hit the road the first time with Stage 4, T2N2M1 in 2006.  Then had recurrences in single nodes in 2007 and 2008.  Three major surgeries and monitoring since then.  I'm still not enjoying the CT's with barium sulfate and what it does to my colon to flush out the contrast dye.  But if it's the only way they can determine if the RCC has returned, I'll put up with the test.

Had my CT last week (the first one in nearly 2 years), and saw my Onc. yesterday.  I'm good to go for another 6 months with a NED.  I picked up my chart notes from early Sept. and the final line said, "clinical remission."  That's the first time that phrase has been used.  Hooray!

I'm happy, the family is happy.  I even bought some fall plants today so I can dig in the dirt over the weekend.

Hope this finds you thinking positive thoughts and doing well.

Hugs, donna_lee
APny's picture
APny
Posts: 1998
 Joined: Mar 2014
Oct 02, 2019 - 6:13 pm

Happy to hear your NED status and the remission comment. Have fun planting and enjoy the good news! Hugs back at you.
Bay Area Guy's picture
Bay Area Guy
Posts: 501
 Joined: Jun 2016
Oct 02, 2019 - 7:05 pm

Congratulations on the NED, the remission and on being one tough lady!
daisybud's picture
daisybud
Posts: 508
 Joined: Jan 2016
Oct 02, 2019 - 7:42 pm

So happy for you and your family!
thingone
Posts: 41
 Joined: Feb 2019
Oct 02, 2019 - 9:18 pm

This is one more milestone in your successful long journey. Congrat!
eug91's picture
eug91
Posts: 315
 Joined: Jan 2019
Oct 02, 2019 - 11:46 pm

Congrats, Donna! 
a_oaklee
Posts: 567
 Joined: Nov 2013
Oct 03, 2019 - 1:18 am

Donna, your story is fantastic.  Such a long time and you havent taken drugs or radiation.  Impressive.  Happy for you.  My husbands scans are annual.  Has that ever been suggested to you?
Allochka's picture
Allochka
Posts: 950
 Joined: Nov 2014
Oct 03, 2019 - 8:48 am

You are happy, family is happy and we are happy! Congratulations! 
stub1969's picture
stub1969
Posts: 888
 Joined: Jul 2016
Oct 03, 2019 - 8:58 am

You have so much to say and wisdom to share.  You give hope to others....when first diagnosed that's the one thing we all cling to.

Take care!

Stub

 
donna_lee's picture
donna_lee
Posts: 1003
 Joined: Feb 2009
Oct 03, 2019 - 4:21 pm

Yes, I have had lots of scans.  Every 3-4 months in the beginning, expecially when they found enlarging nodes in the comparison scans.  After about 5 years, the scans were every 6 mo; and then they found something in my thyroid gland.  Went thru an US, nuclear uptake on the thyroid test and even a biopsy.  It was just an enlarged node.  Then we started back a every 6 mo, finally went to yearly.  Two years ago they found a "something" in my lung.  3 CT's later and it had shrunk because it was a residual infection I'd been treated for.  So now I'm on a 2 year schedule, I think.

As long as I check the NO box on the sheet of symptoms and my labs look adequate, it will probably stay that way.

Thanks, y'all for caring. ( I have to practice my drawl as we're going to see my brother in Auburn, AL and see the AU-Georgia fb game.)

donna_lee
JoeyZ's picture
JoeyZ
Posts: 210
 Joined: Mar 2018
Oct 05, 2019 - 7:18 pm

Remission is a fantastic word! So is NED! May you forever keep both. I agree, you contribute a lot here. Don't ever think we don't want y'all around! Cool
JoeyZ's picture
JoeyZ
Posts: 210
 Joined: Mar 2018
Oct 05, 2019 - 7:19 pm

posted twice for some reason...
DanielQ's picture
DanielQ
Posts: 32
 Joined: Sep 2019
Oct 06, 2019 - 1:48 pm

This is awesome and encouraging!!
Scottie22's picture
Scottie22
Posts: 83
 Joined: Apr 2013
Oct 07, 2019 - 1:00 pm

Congratulations on your results.  Sharing with all on this site gives so much hope and inspiration especially to those starting out on this journey. So happy for you!

Joan
icemantoo's picture
icemantoo
Posts: 3334
 Joined: Jan 2010
Oct 07, 2019 - 4:16 pm

Donna,

 Or should I say Older Than Ice.

 

I think you arre the omly one on her older than me. May Uncle Ned keep flyong between the Northwest to Southeast to care for both of us. 

 

 

 

 

 

icemantoo
donna_lee's picture
donna_lee
Posts: 1003
 Joined: Feb 2009
Oct 07, 2019 - 5:31 pm

And I could say at not at the bottom of a Glacier, but even they have problems, sometimes.  Glad to see you back on the board.

And surgery? went well?

Hugs, donna_lee
Mighty Frog's picture
Mighty Frog
Posts: 152
 Joined: Jul 2017
Oct 07, 2019 - 10:04 pm

HI! Donna! Foremost Congralution! And Keep it up! 

 
lobbyist0724's picture
lobbyist0724
Posts: 452
 Joined: Sep 2016
Oct 08, 2019 - 7:48 am

Hi Donna, congratulations! Your strong is always inspiring and encouraging. 

So happy for you, enjoy!
Angiebby75's picture
Angiebby75
Posts: 209
 Joined: Aug 2017
Oct 12, 2019 - 7:11 pm

Congratulations!! Great news.
Manufred's picture
Manufred
Posts: 241
 Joined: May 2017
Oct 13, 2019 - 7:34 am

Not much to say, but you say it very well.

Life goes on,

Best Wishes, Fred
Apaugh's picture
Apaugh
Posts: 856
 Joined: Aug 2016
Oct 16, 2019 - 7:57 pm

May you forever keep being NED

Hug,

Annie
Dominick0711's picture
Dominick0711
Posts: 93
 Joined: Jan 2019
Oct 16, 2019 - 8:32 pm

Wow that's such great news!  Thank you for sharing!  It's an inspiration to others
Deanie0916
Posts: 403
 Joined: Nov 2016
Oct 25, 2019 - 9:12 pm

On your good news! Thank you for all of your faithful good advice for so many. You were one of the first to encourage me after my joining.
Darron's picture
Darron
Posts: 310
 Joined: Jun 2013
Dec 01, 2019 - 5:28 am

I underatand Your sentiment, congratulations!
Mighty Frog's picture
Mighty Frog
Posts: 152
 Joined: Jul 2017
Dec 04, 2019 - 12:57 am

Hi! Donna!

Foremost! Congratulation on your NED & Thank you! for sharing this wonderful news with us. Keep it up & Be strong....!

Mighty Frog
AnnissaP's picture
AnnissaP
Posts: 632
 Joined: Sep 2017
Dec 05, 2019 - 12:39 pm

Wonderful news! Congratulations!
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