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Oct 02, 2019 - 4:34 pm
I didn't have lap or robotic surgery, no drugs or radiation, or a lot of the problems some of you have encountered. I hit the road the first time with Stage 4, T2N2M1 in 2006. Then had recurrences in single nodes in 2007 and 2008. Three major surgeries and monitoring since then. I'm still not enjoying the CT's with barium sulfate and what it does to my colon to flush out the contrast dye. But if it's the only way they can determine if the RCC has returned, I'll put up with the test. Had my CT last week (the first one in nearly 2 years), and saw my Onc. yesterday. I'm good to go for another 6 months with a NED. I picked up my chart notes from early Sept. and the final line said, "clinical remission." That's the first time that phrase has been used. Hooray! I'm happy, the family is happy. I even bought some fall plants today so I can dig in the dirt over the weekend. Hope this finds you thinking positive thoughts and doing well. Hugs, donna_lee |
Joined: Mar 2014
Happy to hear your NED status
Happy to hear your NED status and the remission comment. Have fun planting and enjoy the good news! Hugs back at you.
Joined: Jun 2016
Congratulations on the NED,
Congratulations on the NED, the remission and on being one tough lady!
Joined: Jan 2016
Great news!
So happy for you and your family!
Joined: Feb 2019
One more milestone!
This is one more milestone in your successful long journey. Congrat!
Joined: Jan 2019
AWESOME
Congrats, Donna!
Joined: Nov 2013
Donna, your story is
Donna, your story is fantastic. Such a long time and you havent taken drugs or radiation. Impressive. Happy for you. My husbands scans are annual. Has that ever been suggested to you?
Joined: Nov 2014
You are happy, family is
You are happy, family is happy and we are happy! Congratulations!
Joined: Jul 2016
My dear Donna
You have so much to say and wisdom to share. You give hope to others....when first diagnosed that's the one thing we all cling to.
Take care!
Stub
Joined: Feb 2009
For a_oaklea
Yes, I have had lots of scans. Every 3-4 months in the beginning, expecially when they found enlarging nodes in the comparison scans. After about 5 years, the scans were every 6 mo; and then they found something in my thyroid gland. Went thru an US, nuclear uptake on the thyroid test and even a biopsy. It was just an enlarged node. Then we started back a every 6 mo, finally went to yearly. Two years ago they found a "something" in my lung. 3 CT's later and it had shrunk because it was a residual infection I'd been treated for. So now I'm on a 2 year schedule, I think.
As long as I check the NO box on the sheet of symptoms and my labs look adequate, it will probably stay that way.
Thanks, y'all for caring. ( I have to practice my drawl as we're going to see my brother in Auburn, AL and see the AU-Georgia fb game.)
donna_lee
Joined: Mar 2018
Remission is a fantastic word
Remission is a fantastic word! So is NED! May you forever keep both. I agree, you contribute a lot here. Don't ever think we don't want y'all around!
Joined: Mar 2018
oops
posted twice for some reason...
Joined: Sep 2019
Congratulations!
This is awesome and encouraging!!
Joined: Apr 2013
Congratulations Donna
Congratulations on your results. Sharing with all on this site gives so much hope and inspiration especially to those starting out on this journey. So happy for you!
Joan
Joined: Jan 2010
Older than dirt
Donna,
Or should I say Older Than Ice.
I think you arre the omly one on her older than me. May Uncle Ned keep flyong between the Northwest to Southeast to care for both of us.
icemantoo
Joined: Feb 2009
Hey, but Ice melts
And I could say at not at the bottom of a Glacier, but even they have problems, sometimes. Glad to see you back on the board.
And surgery? went well?
Hugs, donna_lee
Joined: Jul 2017
Congratulation! You're the inspiration & Hope!
HI! Donna! Foremost Congralution! And Keep it up!
Joined: Sep 2016
Hi Donna, congratulations!
Hi Donna, congratulations! Your strong is always inspiring and encouraging.
So happy for you, enjoy!
Joined: Aug 2017
Congratulations!! Great news.
Congratulations!! Great news.
Joined: May 2017
Eloquence
Not much to say, but you say it very well.
Life goes on,
Best Wishes, Fred
Joined: Aug 2016
Congratulations!
May you forever keep being NED
Hug,
Annie
Joined: Jan 2019
Wow that's such great news!
Wow that's such great news! Thank you for sharing! It's an inspiration to others
Joined: Nov 2016
Congratulations
On your good news! Thank you for all of your faithful good advice for so many. You were one of the first to encourage me after my joining.
Joined: Jun 2013
Great news
I underatand Your sentiment, congratulations!
Joined: Jul 2017
Congratulation!
Hi! Donna!
Foremost! Congratulation on your NED & Thank you! for sharing this wonderful news with us. Keep it up & Be strong....!
Mighty Frog
Joined: Sep 2017
Wonderful news!
Wonderful news! Congratulations!