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I don't have too much to say at this point in my life

donna_lee's picture
donna_lee
Posts: 901
Joined: Feb 2009

I didn't have lap or robotic surgery, no drugs or radiation, or a lot of the problems some of you have encountered.  I hit the road the first time with Stage 4, T2N2M1 in 2006.  Then had recurrences in single nodes in 2007 and 2008.  Three major surgeries and monitoring since then.  I'm still not enjoying the CT's with barium sulfate and what it does to my colon to flush out the contrast dye.  But if it's the only way they can determine if the RCC has returned, I'll put up with the test.

Had my CT last week (the first one in nearly 2 years), and saw my Onc. yesterday.  I'm good to go for another 6 months with a NED.  I picked up my chart notes from early Sept. and the final line said, "clinical remission."  That's the first time that phrase has been used.  Hooray!

I'm happy, the family is happy.  I even bought some fall plants today so I can dig in the dirt over the weekend.

Hope this finds you thinking positive thoughts and doing well.

Hugs, donna_lee

APny's picture
APny
Posts: 1949
Joined: Mar 2014

Happy to hear your NED status and the remission comment. Have fun planting and enjoy the good news! Hugs back at you.

Bay Area Guy's picture
Bay Area Guy
Posts: 385
Joined: Jun 2016

Congratulations on the NED, the remission and on being one tough lady!

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

So happy for you and your family!

thingone
Posts: 39
Joined: Feb 2019

This is one more milestone in your successful long journey. Congrat!

eug91's picture
eug91
Posts: 158
Joined: Jan 2019

Congrats, Donna! 

a_oaklee
Posts: 447
Joined: Nov 2013

Donna, your story is fantastic.  Such a long time and you havent taken drugs or radiation.  Impressive.  Happy for you.  My husbands scans are annual.  Has that ever been suggested to you?

Allochka's picture
Allochka
Posts: 874
Joined: Nov 2014

You are happy, family is happy and we are happy! Congratulations! 

stub1969's picture
stub1969
Posts: 800
Joined: Jul 2016

You have so much to say and wisdom to share.  You give hope to others....when first diagnosed that's the one thing we all cling to.

Take care!

Stub

 

donna_lee's picture
donna_lee
Posts: 901
Joined: Feb 2009

Yes, I have had lots of scans.  Every 3-4 months in the beginning, expecially when they found enlarging nodes in the comparison scans.  After about 5 years, the scans were every 6 mo; and then they found something in my thyroid gland.  Went thru an US, nuclear uptake on the thyroid test and even a biopsy.  It was just an enlarged node.  Then we started back a every 6 mo, finally went to yearly.  Two years ago they found a "something" in my lung.  3 CT's later and it had shrunk because it was a residual infection I'd been treated for.  So now I'm on a 2 year schedule, I think.

As long as I check the NO box on the sheet of symptoms and my labs look adequate, it will probably stay that way.

Thanks, y'all for caring. ( I have to practice my drawl as we're going to see my brother in Auburn, AL and see the AU-Georgia fb game.)

donna_lee

JoeyZ's picture
JoeyZ
Posts: 205
Joined: Mar 2018

Remission is a fantastic word! So is NED! May you forever keep both. I agree, you contribute a lot here. Don't ever think we don't want y'all around! Cool

JoeyZ's picture
JoeyZ
Posts: 205
Joined: Mar 2018

posted twice for some reason...

DanielQ's picture
DanielQ
Posts: 32
Joined: Sep 2019

This is awesome and encouraging!!

Scottie22's picture
Scottie22
Posts: 67
Joined: Apr 2013

Congratulations on your results.  Sharing with all on this site gives so much hope and inspiration especially to those starting out on this journey. So happy for you!

Joan

icemantoo's picture
icemantoo
Posts: 3227
Joined: Jan 2010

Donna,

 Or should I say Older Than Ice.

 

I think you arre the omly one on her older than me. May Uncle Ned keep flyong between the Northwest to Southeast to care for both of us. 

 

 

 

 

 

icemantoo

donna_lee's picture
donna_lee
Posts: 901
Joined: Feb 2009

And I could say at not at the bottom of a Glacier, but even they have problems, sometimes.  Glad to see you back on the board.

And surgery? went well?

Hugs, donna_lee

Mighty Frog's picture
Mighty Frog
Posts: 140
Joined: Jul 2017

HI! Donna! Foremost Congralution! And Keep it up! 

 

lobbyist0724's picture
lobbyist0724
Posts: 389
Joined: Sep 2016

Hi Donna, congratulations! Your strong is always inspiring and encouraging. 

So happy for you, enjoy!

Angiebby75's picture
Angiebby75
Posts: 192
Joined: Aug 2017

Congratulations!! Great news.

Manufred's picture
Manufred
Posts: 239
Joined: May 2017

Not much to say, but you say it very well.

Life goes on,

Best Wishes, Fred

Apaugh's picture
Apaugh
Posts: 851
Joined: Aug 2016

May you forever keep being NED

Hug,

Annie

Dominick0711's picture
Dominick0711
Posts: 90
Joined: Jan 2019

Wow that's such great news!  Thank you for sharing!  It's an inspiration to others

Deanie0916
Posts: 259
Joined: Nov 2016

On your good news! Thank you for all of your faithful good advice for so many. You were one of the first to encourage me after my joining.

Darron's picture
Darron
Posts: 308
Joined: Jun 2013

I underatand Your sentiment, congratulations!

Mighty Frog's picture
Mighty Frog
Posts: 140
Joined: Jul 2017

Hi! Donna!

Foremost! Congratulation on your NED & Thank you! for sharing this wonderful news with us. Keep it up & Be strong....!

Mighty Frog

AnnissaP's picture
AnnissaP
Posts: 631
Joined: Sep 2017

Wonderful news! Congratulations!

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