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Stage IV - Pushing 5 Years - A Bit of Good News On Chemo Working

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

I have cancer everywhere, lymph nodes, lungs, muscle and spine. (My first warning sign something was wrong was the end of December, 2014.  Not officially diagnosed until the end of January, 2015.  First surgery February, 2015.)   It came back inoperable two years ago.  My scan this week showed that the spinal tumors are stable and perhaps even improving.  First time I have seen the words possibly improving.  This is after 20 FOLFORI treatments (Avastin added about 10 treatments in.) 

My last CT scan of lungs & lymph nodes also was overall positive.  Looks like everything was stable or showing signs of being knocked out.  There were two that looked like pehaps they were growing, but the largest lung tumor finally stopped growing. Again, this was after many treatments.  I did not think it would work on the big one after not stopping growing after the first 18 or so.  

I am guessing they will schedule me for another CT in about a month or so (will be about three months since last scan).  Hoping the two renegade tumors get back in line.  Yeah, chemo stinks, but seeing possible improvement makes it easier.  And seeing some things respond when I thought they were not going to - after 18 treatments or so - was something I was not expecting.  

 

 

Trubrit's picture
Trubrit
Posts: 4859
Joined: Jan 2013

Run with it as fast as you can.  Actually, that is what is helping along with the chemo, the fact that you keep yourself active - as much as you are able.  That and being positive.

I think this is how we all feel, reading your good news.     

happy guys emoticon .    I'm the fat one in the middle. 

Tru

Tru

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

You know it Tru, I ain't stopping

abita's picture
abita
Posts: 649
Joined: Dec 2017

I am so happy for you that you have mostly positive results. It can't have been easy going through so much treatment with not a lot of good news. Shows your strength that you persevered. 

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

As I tell people, I have a healthy disconnect with what is going on.  I know what is happening.  I know how it sometimes stinks real bad.  But I push that away whenever it creeps in.  Not saying it does not hit me now and again, it does.  But pushing that away and trying to remain positive gets me through.  Again, not all puppy dogs and candy, but I have been lucky. 

Canadian Sandy's picture
Canadian Sandy
Posts: 512
Joined: Jul 2016

Way to go New! You have so much to deal with and yet such a positive attitude. I am happy for you.

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

Not easy all the time, but I try to be as positive as possible.  Right now I am on my chemo bottle, just got hooked up, and on for 48 hours.  But jumping into this thread and seeing everyone makes me smile.  Going to couch surf, watch some tv, have some food.  Just a really good day again even with that stupid thing plugged into my chest :)

MeAndMine
Posts: 53
Joined: Aug 2019

That’s so great to hear! You kept going and kept up your treatments and it’s paying off. Wonderful news!

MeAndMine
Posts: 53
Joined: Aug 2019

Accidental double post, but good news is worthy of an extra ”Yay!”  

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

And it deserve a double thanks :)

abrub's picture
abrub
Posts: 2097
Joined: Mar 2010

Having just embarked on indefinite Folfiri (with Avastin to be added in the near future.)  Thank you for always being there for me.

Alice

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

Anything and anytime I can help you with this, I will.  Just got hooked up a few hours ago.  And having a really good time of it.  Something to keep in mind that I am starting to see - even if one session was bad - ones after can be a lot easier.  I am actually amazed on how well today is going.  Other than feeling a little loopy, nothing so far, not even the part during infusion where sometimes I feel bad.

Kazenmax's picture
Kazenmax
Posts: 357
Joined: Feb 2016

We are with you all the way! Sending love and strength for the next scan!

k

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

Would be AWESOME to see everything stopping in its tracks.  Not saying having to be on chemo is on my Top 10 list ;), but doing this every three weeks is so worth it.  Plus it gives me an excuse just to watch TV and not feel too guilty..Laughing

beaumontdave's picture
beaumontdave
Posts: 997
Joined: Aug 2013

A great response to the chemo and great you're handling it all. Time to treat yourself to whatever your favorite thing is. With me that's some kind of fancy food, these days. If I can ask one dumb question though, having looked at it from all angles for years now, what is your avatar? A duck? A bird? I'm stumped.............................................Dave

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

It is a photo I took while scuba diving.  Part of the whole porcuipine family - I think I id'd it right.  A little loopy on chemo now.  I have these all indexed, but going off the top of my head.  I cannot wait to dive again.  One of the things I love is taking underwater photographs and video.  

Annabelle41415's picture
Annabelle41415
Posts: 6222
Joined: Feb 2009

Sounds like all in all the treatments seem to be working, and keeping most of them stable.  You have endured a lot, and it is about time that you get some encouraging results.  Thanks for the update and enjoy the news.

Kim

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

Makes the treatments easier to take for sure.  And I have a few trips coming up between sessions- moved one to two week interval in fact to make sure to be able to fly with no issue - which is making me smile.

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