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Platelets down. Treatment delayed 1 week

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi ladies I went to have my third treatment today and my platelet count was down to 40 so they had to delay treatment. Rescheduled for next week hoping that my accounts are backup has anyone experienced this?

I can't believe that there isn't a shot or pill or something to boost your platelet count. They just informed me that if it didn't come back up but I would have to have a platelet transfusion hoping that I don't need! They seem to feel confident that in a week that counts will be back up to resume treatment. Of course this has my head spinning ! 

janaes
Posts: 776
Joined: May 2016

Im so sorry your treatment was delayed. What a bummer. I never had a treatment delayed so i dont know how that feels. I took the neulasta shot after evry treatment and that was supposed to keep my numbers up. I guess it worked. It did have side effects though. Since its been so long i cant remember all the details so hopefilly others will chime in for help on this one.

 

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi Jane, thanks!

it was such a bummer when you're all hooked up and prepared to go and then the blood work comes back and they say you can't have treatment. they have not mentioned that neulasta shot to me maybe I should inquire about it at my next visit.

Armywife's picture
Armywife
Posts: 320
Joined: Feb 2018

I think this is very common!  Mine went low but not low enough to delay.  My white count went low enough that I had to have Neulasta shots after the last three chemos.  A friend in treatment now has had a platelet infusion and done great.  Hang in there!  You'll bounce back!

Feelingalone74
Posts: 236
Joined: Jun 2019

Army Wife, they did say this was common and alsso however they did say it if it doesn't come back I might have to have a platelet infusion. But they said they try to avoid having to do that .  Hoping that by next Wednesday numbers are back up to where it needs to avoid that and resume treatment. 

Thanks so much, I hope so! 

zsazsa1
Posts: 346
Joined: Oct 2018

Don't worry.  It WILL come back up.  I had borderline low platelets before even beginning chemo, because of an enlarged spleen for no known reason.  Anyway, my platelets dropped steadily throughout treatment, and I think that cycles 4, 5, and 6 were every 4 weeks instead of every 3 weeks.  The platelet count recovers dramatically right at about 3.5 weeks after each round of chemo.  I'm sure yours will.  But I suspect that you'll be on an every 4 week schedule for the rest of chemo.  

Platelet transfusions are usually not necessary.  As long as you're not on a blood thinner, you don't have to worry about a major bleeding episode.  But just in case you were engaging in activities with high risk of impact, particularly head trauma, you might want to not do those things right now.  I'm sorry, but absolutely NO roller derby participation until those platelets are back up!

Hang in there!  I'm about 6 months out from chemo, 4 months out from radiation.  Honestly, I'm forgetting it, the way that one forgets the pain of childbirth.  You'll be done soon, too, and will recover rapidly after the last cycle.

Feelingalone74
Posts: 236
Joined: Jun 2019

Thanks zsazsa1! Yes, I'm on a blood thinner so for a blood disorder so I always have to be extra careful. And dang no roller derby!!!

ILOL . I'll keep u posted if they changed my treatment to every 4 weeks.ugh that will delay the final treatment day even longer! Deep breathe I tell myself.  I have only had 2 chemo treatments so this was just after the 2nd one.

Thank you I will be glad when I'm done too and put this all behind me amd glad it's like forgetting child birth. :-)

Ok , about the melatonin.  

Feelingalone74
Posts: 236
Joined: Jun 2019

Zsazsa1,  u mentioned your 6 months out from chemo. Do u mind me asking a personal question...how much has your hair grown in the 6 months? U don't have to answer if you don't want to I'm just trying to get an idea of how long it will take for my hair to grow after I've completed my treatment.

zsazsa1
Posts: 346
Joined: Oct 2018

I think  my last carboplatin was 6 months ago, and I'd say the hair is 2.5 inches.  It's soft, curly, and I'm thrilled to have it!  For comparison, my daughter buzzed her head in April (much to my dismay), and hers is fully grown in, to a nice boy cut, must be 5 inches.  The difference must be age, health, post-chemo status, radiation.

zsazsa1
Posts: 346
Joined: Oct 2018

BTW, I found info online that melatonin might increase platelet count, and I tried it during my period of low platelets.  It did absolutely nothing for me.

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

before treatment number 6. It took only 2-3 days for my count to bounce back. My dose was reduced for the last 2 treatments. I wasn't happy about that but I've been NED for 7 years.  So, just keep your eye on the goal. 

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi Connie, they were surprised that after 2 treatments my platelets were so low. Hoping this doesnt happen every time to delay treatment even longer but good to know that a lower dose might help and not effect me cure wise. And what a great inspiration you are to me. 7 years out !!! Yay , you go girl!!! I hope to beable to come back here and say the same thing.  

Thank you! I wish more survivors came back on and said hey I'm  doing great!!! This is something those of us just getting started need to hear! 

Wishing u continued good health :-))))

 

Feelingalone74
Posts: 236
Joined: Jun 2019

Yay Connie... congrats on being 7 years out!!!!! 

Your an inspiration!!!! I need to hear this!!!

Fridays Child
Posts: 75
Joined: Jul 2019

Feelingalone, they gave me Neulasta (the arm injector that you may have seen on commercials) after all of my full dose chemo treatments.  If you have that, they'll probably tell you it can cause bone pain.  They might suggest Claritin to help, but any antihistamine you find effective may help.  Be sure to check with your doctor about which one you want to take and their recommendations as to schedule.

Feelingalone74
Posts: 236
Joined: Jun 2019

Thanks Friday'schild I have seen Neulasta on commercials. Oddly enough they haven't suggested that to me.  I will ask them about it being this happened just after my 2nd chemo treatment.

Thanks for your suggestion!

zsazsa1
Posts: 346
Joined: Oct 2018

Neulasts is for increasing neutrophils, which are a subset of white blood cells.  Completely different from platelets.

I was on a blood thinner through most of chemo, because when they put in my port, I got a blood clot in a neck vein near the port.  My oncologist was afraid of killing me with a bleed from low platelets.  I did stop my blood thinner on my own just before my 6th round of chemo, because I had declined the last dose of Taxol (due to neuropathy), and she warned me that the hematologic toxicity of the Carboplatin could be WORSE without the Taxol!  And she was right.  My platelets dropped into the 40s after that last round (good thing I had stopped the blood thinnner).  It took about 4 weeks to bounce back.  Then whole pelvic radiation really did a number on my bone marrow - all three lines depressed, and they still haven't come back.

But I really am doing so well now, feeling great.  You will too, soon.  Just hang in there.  You will enjoy life again very soon, and hopefully it will never come back, and this will have just been a bump in the road of life.

Fridays Child
Posts: 75
Joined: Jul 2019

Sorry about that.  I was referring to Armywife's mention of Neulasta, but no, it's not for platelets.  I should have clarified.

Armywife's picture
Armywife
Posts: 320
Joined: Feb 2018

I knew the difference and just wasn't clear in my statements - was saying my platelets didn't go low enough to cause a problem, but my white counts did and I needed Neulasta.  Also that I have a friend who just had a platelet infusion to boost her so she can continue chemo, and had no problems with it.  I'm sorry if I was unclear!  

Feelingalone74
Posts: 236
Joined: Jun 2019

Zsazsa1 I'm so glad to hear that u are feeling so well now!!! Such great news!!! 

And thank u for saying I will soon as well and that I will enjoy life again soon and that I hope it never comes back again! I sure hope not for u and all the ladies on here and for myself. My husband tells me too that this is just a bump in the road like u said. I sure do hope so! Somedays I ask myself will my life ever be normal again.

I am on a blood thinner for a blood disorder that I've had for 8 years. So I called the Center today to ask should I be worried about low platelets effecting my protime for my blood disorder but she said they are different factors in your blood.  I sure hope I dont get a cut ir anything. I'm certainly going to be extra careful!

janaes
Posts: 776
Joined: May 2016

Zsazsa1,

Im glad you clearified what the nuelasta shot is used for. That is really good information.

Feelingalone74
Posts: 236
Joined: Jun 2019

Yay platelets back up. 40 to 195. Ugh bittersweet.  Want treatment over but nervous about new chemo(cisplatin)with radiation tomorrow.

Feeling nervous!

suzycruise76's picture
suzycruise76
Posts: 98
Joined: Mar 2019

stay strong,you will do it! Smile

All the best,

Suzy

Quilter_1's picture
Quilter_1
Posts: 53
Joined: Mar 2019

Hang in there.  You will get through this. 

Feelingalone74
Posts: 236
Joined: Jun 2019

Thanks so much Suzy and Cindi! 

I'm trying to be strong but sometimes the uncertainties get to me more than I wish they would. 

It's hard to get out of the truck on treatment day but I put my best feet forward and here I sit praying that the chemo makes me NED forever!

I hope all you ladies on here are doing and feeling great!!!

Warmly, Michelle 

janaes
Posts: 776
Joined: May 2016

Feelingalone, Im so glad you get to resume chemo. It sounds like it was today. I hope it goes well for you today. Maybe your done. Want you to know Im thinking about you.  You going to make it through this ya know. You keep going one day at a time and it will be over one day.

Feelingalone74
Posts: 236
Joined: Jun 2019

Thank you so much Jane for thinking of me! As you know treatment day goes comfortably. But yes with one treatment at a time it's one step closer to being done. Wishing these next few months to go by quickly! Resting at home now, drinking lots and getting things done when I can. Again thanks for keeping me in your thoughts

I hope that you're having a great day!

Warmly,  Michelle 

barnyardgal
Posts: 222
Joined: Oct 2017

I'm glad you were able to get treatment. Praying NED for all of us!

Feelingalone74
Posts: 236
Joined: Jun 2019

Yes I was to Barnyard gal! One more step to being done!

Yes I pray every day for the same thing for everyone on here! 

Hope your having a great day!

Warmly, Michelle 

MAbound
Posts: 874
Joined: Jun 2016

You are really doing great in spite of the ups and downs. We call this journey through treatment a roller coaster because of all of those ups and downs. Some days are just peachy and others are the real pits. You are getting there and I hope you feel good about what you have been able to accomplish so far. See...you are stronger than you knew!

Kaleena's picture
Kaleena
Posts: 1978
Joined: Nov 2009

I don’t know why but I do recall that I would drink a small glass of red wine.  It had to be red wine too.  I forget what it helped with since that was back in 2005. But my nurse indicated it was fine to have a glass

Anyway I hope it all works out for you and you can finish treatment.    That’s enough bumps in the road!   We can sure use some smooth sailing!

Kathy

Feelingalone74
Posts: 236
Joined: Jun 2019

Kathy I'll have to inquire about the red wine. 

Thanks!

zsazsa1
Posts: 346
Joined: Oct 2018

Michelle, glad to hear you are moving ahead with treatment.  Half way through!  

Feelingalone74
Posts: 236
Joined: Jun 2019

Thank u zsazsa1! Yes, half way there!!! Thankfully.  I will be so happy when it's over and I can resume work and hopefully my normal life.Keep saying I can do this even on the hard days! 

clebo99
Posts: 1
Joined: Sep 2019

Hi.  My wife is having a similiar issue.  She has recurring inflamatory breast cancer (that has spread to her lymph nodes).  She has had 3 chemo sessions but her 4th had to be cancelled last week due to her white blood cells being too low.  She's supposed to go today but they need to do blood work first.  Hopefully she can have her treatment as it seems to be working.  I hope everything works out well for you.  

Take care.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2597
Joined: Mar 2013

clebo99, I am sorry to hear what your wife is going through.  Please know that none of us fight alone.  The power of the support from our family and friends helps heal as well.  

Feelingalone74
Posts: 236
Joined: Jun 2019

thank you.

I hope all goes well with your wife! Prayers to her. 

lovemyhubby
Posts: 27
Joined: Jan 2018

Those darn platelets!  Everyone‘s body has a different reaction to being subjected to chemo and radiation. Some weather it remarkably well. My platelets and neutrophils both tanked after my first infusion. I had delays after each infusion despite a 25% reduction in dose. Had platelet issues during radiation as well which caused a 3 week suspension after my 11th radiation. I don’t tell you this to scare you. I finished chemo in December 2017 and radiation in May 2018. I am thankfully NED. It is frustrating and scary to experience delays and dose reductions and Neulasta shots but for the majority of us we do get through it. I have thought about you a lot since your initial post. Hang in there and continue to let us know how you are doing. 

Feelingalone74
Posts: 236
Joined: Jun 2019

Lovemyhubby, I'm sorry for your experience with delays but glad u got through all your treatment and especially that your are NED!!!

Thank you for continuing to think of me! So grateful for u all who do. I think and pray for u all even if I have got on much. I was relieved when my treatment was only postponed for a week.  I'm hoping next weeks goes smoothly without delays but I am on Day 11th radiation and hoping for it not to be causing problems with my platelets or anything else. It's all so scary at times.  I keep saying 1 day at a time...but it still can be hard. 

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