Hail Mary...chemo-immunotherapy last option

Options
Pclark21st
Pclark21st Member Posts: 126
in Head and Neck Cancer #1

My Thomas had his nodule removed, but they were not able to get clear margins.  Has limitations of weight and activity.  At same time we noticed another nodule appearing in same area.  Had PET scan and it showed multiple sights...in and around lungs but the worse is his original sight shows a BOT tumor compromising his eating and breathing.  This is our last ditch effort.  We immediately started 2 chemos and keytruda infusions.  Have to come home with a bag and pump for the keytruda to be administered for 4 additional days at home.  We go back every 3 weeks and between 2nd and 3rd treatment we will know if this is working.  If not, we tackle that. 

 

He has an amazing spirit.  We will not allow our energy to be spent in a deep dark hole.  He plans to go to VT for his annual softball tournament.  He cant play but he can keep score and partake in his favorite sport.  We also took in a Redsox game and I'll get him tix for yet another.  We will continue to live until we are told we cannot.

 

If you pray, please say them.  If you chant, please do them.  If you sacrifice chickens, go ahead.  We need the universe to give us a break in this journey.

Comments

  • wbcgaruss
    wbcgaruss Member Posts: 2,276 Member
    edited August 2019 #2
    Options
    Pclark21st This Post

    Answers the question I sent to you in a private message. This is certainly not what was hoped and prayed for but as you say "We will continue to live until we are told we cannot" and that is a good way to look at it and keep forging ahead as best you can. I had you in my prayers and will continue to do so. Praying for the chemos to turn the corner for Thomas. You folks are the epitome of the saying so oft-repeated on this forum--NEGU (Never Ever Give Up) I am sure many will support you and pray for you in this difficult time and for every posting, there are many in the background. We are with you-God Bless

    Check this link you will probably have to copy and paste it in your browser hoping it gives you comfort----

    https://www.joyinthehome.com/31-bible-verses-for-families-affected-by-cancer/

  • Sabrina23
    Sabrina23 Member Posts: 103 Member
    #3
    Options
    Thomas will be in our prayers pclark21st

    Thomas will be in our prayers for a full recovery.  All things are possible with God.  It is never too late for miracle to happen and in Thomas's case we know that miracle can happen. 

  • swopoe
    swopoe Member Posts: 492
    #4
    Options
    Yes! Keep living! I wish you

    Yes! Keep living! I wish you had clear margins, but sounds like a good plan in place. Prayers being sent!

  • Pclark21st
    Pclark21st Member Posts: 126
    #5
    Options
    wbcgaruss said:

    Pclark21st This Post

    Answers the question I sent to you in a private message. This is certainly not what was hoped and prayed for but as you say "We will continue to live until we are told we cannot" and that is a good way to look at it and keep forging ahead as best you can. I had you in my prayers and will continue to do so. Praying for the chemos to turn the corner for Thomas. You folks are the epitome of the saying so oft-repeated on this forum--NEGU (Never Ever Give Up) I am sure many will support you and pray for you in this difficult time and for every posting, there are many in the background. We are with you-God Bless

    Check this link you will probably have to copy and paste it in your browser hoping it gives you comfort----

    https://www.joyinthehome.com/31-bible-verses-for-families-affected-by-cancer/

    Thank you

    Thank you

  • Pclark21st
    Pclark21st Member Posts: 126
    #6
    Options
    Sabrina23 said:

    Thomas will be in our prayers pclark21st

    Thomas will be in our prayers for a full recovery.  All things are possible with God.  It is never too late for miracle to happen and in Thomas's case we know that miracle can happen. 

    Thank you Sabrina

    Thank you Sabrina

  • Pclark21st
    Pclark21st Member Posts: 126
    #7
    Options
    swopoe said:

    Yes! Keep living! I wish you

    Yes! Keep living! I wish you had clear margins, but sounds like a good plan in place. Prayers being sent!

    Thank you so much

    Thank you so much

  • phrannie51
    phrannie51 Member Posts: 4,716
    edited August 2019 #8
    Options
    Praying.....

    Hat Keytruda is as good to your hubby as it has been to me. Hugs!

    p

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #9
    Options
    Team Pclark21st

    Pclark21st,

    I like your husbands spirt (and yours too).

    I will pray, I may chant, I won’t sacrifice Miss Amy (my wife’s chicken) and I agree, “you deserve a break”.

    Matt

  • Pclark21st
    Pclark21st Member Posts: 126
    #10
    Options
    phrannie51 said:

    Praying.....

    Hat Keytruda is as good to your hubby as it has been to me. Hugs!

    p

    Thanks Phrannie.  I'm hoping

    Thanks Phrannie.  I'm hoping for good things to come from thos cocktail

  • Pclark21st
    Pclark21st Member Posts: 126
    #11
    Options
    CivilMatt said:

    Team Pclark21st

    Pclark21st,

    I like your husbands spirt (and yours too).

    I will pray, I may chant, I won’t sacrifice Miss Amy (my wife’s chicken) and I agree, “you deserve a break”.

    Matt

    Thanks Matt.  

    Thanks Matt.  

  • Drivingdaisy
    Drivingdaisy Member Posts: 263
    #12
    Options
    phrannie51 said:

    Praying.....

    Hat Keytruda is as good to your hubby as it has been to me. Hugs!

    p

    Phrannie 51

    You are looking fantastic,  I’m so impressed by you & your spirit.  Hope you are well & enjoying life!  Hugs, Lisa

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    edited August 2019 #13
    Options
    Introducing Miss Amy (just incase anybody (H&N) wanted to know)

    Pclark21st,

    I have spoken to Miss Amy about your suggestion of a possible “chicken sacrifice” as part of your Hail Mary to find an effective treatment for your husband’s cancer and she said “bock, bock, bock”,  which translates into. “Thank you for asking, but I will (instead) join the prayer chain for your husband”.   Miss Amy really is a special bird to us.

    I hope your husband had a good day and I hope he was able to participate in those things he loves to do.

    Prayers from Matt

     

    ma

  • wbcgaruss
    wbcgaruss Member Posts: 2,276 Member
    #14
    Options
    CivilMatt said:

    Introducing Miss Amy (just incase anybody (H&N) wanted to know)

    Pclark21st,

    I have spoken to Miss Amy about your suggestion of a possible “chicken sacrifice” as part of your Hail Mary to find an effective treatment for your husband’s cancer and she said “bock, bock, bock”,  which translates into. “Thank you for asking, but I will (instead) join the prayer chain for your husband”.   Miss Amy really is a special bird to us.

    I hope your husband had a good day and I hope he was able to participate in those things he loves to do.

    Prayers from Matt

     

    ma

    What a Nice lookin Gal

    And that Miss Amy is obviously no dummy!

Discussion Boards