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USPC recurrence

Flufff's picture
Flufff
Posts: 10
Joined: Apr 2019

Hi gals. 

 

Have any of you with UPSC not have a recurrence?  It seems like it inevitable, to get one or more recurrences. :( would be great to hear from people that didn't have a recurrence (yet)

 

:)

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1523
Joined: Jun 2015

Hi Fluff, 

I am 4 years out from my hysterectomy and 3.6 years out from treatment. No recurrence. There are many ladies on this board that had UPSC that are also NED. I'm sure some will chime in shortly.  The anxiety from having this crappy cancer does reduce over time. At least it has for me. I hope that will be the case for you as well. There are so many variables with this and none of us can ever be sure that a recurrence won't happen. 

Love and Hugs,

Cindi

EZLiving66's picture
EZLiving66
Posts: 1338
Joined: Oct 2015

Hi there, Fluff! I will be four years in September from my hysterectomy - Stage II or III, UPSC. So far, knock-on-wood, no recurrence. I know it sometimes looks bleak because this form of uterine cancer is very aggressive but, for me, so far, so good (that's a lot of commas - LOL). I take 2000 mg of Metformin every day but other than that, nothing else for the UPSC. I have a lot of problems with neuropathy in my feet, fingers, tongue, and eye but I deal with it. Started using CBD oil and it has really helped.

I decided a long time ago that I'm not going to spend (much) time worrying about it but am going to have the best life possible in the time I have left. 

Love,

Eldri

Abbycat2's picture
Abbycat2
Posts: 642
Joined: Feb 2014

 

Hi Flufff,

I had a hysterectomy and oopherectomy close to 6 years ago, followed by Taclitaxel/Carboplatin chemotherapy (standard 6 treatments). I had a positive wash (cancer floating around in my paritoneal cavity).  I was diagnosed with advance UPSC, stage 3a. I did not need any form of radiation treatment. I am still here, alive and well with no sign of a recurrence. UPSC, if it does return, usually does so within 6 months to 1.5 years, as it is aggressive. My gyn oncologist told me after 3 years that he didn’t think my cancer would come back. Don’t ever give up hope!

Cathy

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1523
Joined: Jun 2015

Hey Cathy, Nice to see you! Hope all is well and you are thriving.

Love and Hugs,

Cindi

It happened to Me's picture
It happened to Me
Posts: 204
Joined: Apr 2014

I had my UPSC surgery 6 years ago this past Friday.  Abbycat2 and I have similar stories.  I have been deemed "cured" by my gyn oncologist as I have past the 5 year NED mark this past Jan.    I was Dx UPSC Stage 3a on June 19, 2013, had surgery in July and started my 6 rounds in Aug, ending Jan. 2, 2014.  I was not a candidate for radiation.  I am doing well.  Praising God for healing me.  I know that recurrence is possible but am believing that it never will come back.

Jeanette

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1523
Joined: Jun 2015

Hey Jeanette, Glad to see you as well! I know it helps the newbies to see some of us long term suvivors. Congrats on passing that 5 year mark! 

Love and Hugs,

Cindi

MAbound
Posts: 854
Joined: Jun 2016

Excellent! And with an aggressive type, too! I will be dancing on air when I reach that milestone. Congratulations and thanks for coming back!

ConnieSW's picture
ConnieSW
Posts: 1432
Joined: Jun 2012

It was great to hear from you and that you are doing so well. Congrats!

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