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Awaiting test results for likely lymphoma

JackieInRichmond
Posts: 6
Joined: Oct 2018

Hi, I originally joined as caregiver but then had brain MRI due to visual flashes etc and was told I had a likely low grade glioma. Was given streroids which made the 'tumor' disappear by the time of scheduled (not done) biopsy. So this pointed to edema and likely lymphoma (MSK opinion) as that is classic response to steroids. Cat scan revealed enlarged lymph node in chest. On to pulmonologist soon. So many appointments! Guessing it is metastacizing to brain. Getting PET scan today. Amazing how different this is than the ease with which they diagnosed my partner's cancer. Reading so many comments here. Quite reticent to do chemo as it has caused so many side effects in many here as well as my partner (now stage lV mbc with mets.)

PBL
Posts: 182
Joined: Jul 2016

Hi Jackie,

Sorry your health issues have brought you here...

You should soon have a clearer idea of what it is you are facing, and then will be the time to discuss treatment options.

One thing I can say at this point though, is that sometimes there is no other choice than to subject yourself to those treatments, as they are the only solution to buy you some more time on this planet. In the event it does turn out to be lymphoma and depending on type, then that extra time could measure in years - and although some side effects may be unavoidable, they could be quite mild and still leave you with a rather good quality of life. Something worth pondering, perhaps...

Do keep us posted on your results. I wish you the most favorable diagnosis.

PBL

JackieInRichmond
Posts: 6
Joined: Oct 2018

Thanks PBL

po18guy
Posts: 989
Joined: Nov 2011

Sorry to hear this. Guesses, no matter how educated, remain just that. Only a pathology report based on a biopsied tissue sample, will provide a solid diagnosis. Central Nervous System lymphoma is quite rare, but still treatable.

As to lymphoma metastasizing, it pretty much does that as a matter of course. It is a "liquid" cancer that flows in your lymphatic system (part of your circulatory system) and your blood.

It can be stage IV and remain just as treatable as at stage I. I have been at stage IV with two different lymphomas and both, as well as a third marrow cancer (MDS) are gone. Wasn't exactly easy, but it was doable.

As to chemo, I am currently on my 20th drug, and have been in constant treatment for either lymphoma, MDA or post transplant GvHD for eleven years now.

JackieInRichmond
Posts: 6
Joined: Oct 2018

Thanks Biopsies Speak. True!

ShadyGuy's picture
ShadyGuy
Posts: 386
Joined: Jan 2017

Make sure at least two labs look at the biopsy. Good luck!

DJS628
Posts: 47
Joined: Mar 2018

Jackie,

So sorry you have joined us (and that your partner also has cancer, too?).  Life isn't fair, is it?  :-(

 

By now, I hope you've had a biopsy and know for sure what's going on.  Come back and let us know how you're doing.  We are a good support group.

Sending good thoughts and prayers your way.

---Debbie

po18guy
Posts: 989
Joined: Nov 2011

Well???

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