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Lonsurf results so far

Posts: 5
Joined: Jun 2017

This is my first post. I have been reading this board for some time. I felt it was time to report this to other members.


I had been on every other chemo treatment available to me with moderate sucess, and they all quit working. I have colon cancer with mets tp liver, lungs, and peritoneal lining. I was diagnosed in Febuary 2017. I also have the Kras mutation, so treatment has been difficult. I have had some sucess with other chemo coctails.

I finally ran out of treatments that were working, and was put on Lonsurf. I have will begin 4th month of it next week. I  realise it might quit working at any time. But I just finished my scan this Monday, and was surprised to see the results. My scan showed all positive. All the mets had shrunk or were gone. I feel very good about this of course, because from what I had read, Lonsurf was not very effective. This is my last alternative, so I can only hope.

I am 81 yearsold and in reasonably good health, except for cancer. Also the side effects of Lonsurf have really not been that bad. Some of the usual chemo effects, but very toleralble at least for now. I thought the rest of the board might be interested in this treatment.

 Hope I can continue to post good news.




Grampa2017's picture
Posts: 6
Joined: Oct 2017

That's great news, I pray you continue to due this good.


Posts: 5
Joined: Jun 2017

Thanks Mitch



Kazenmax's picture
Posts: 450
Joined: Feb 2016

So glad to hear this is working for you. Here’s to many more good scans!


Posts: 405
Joined: Apr 2018

It gives us all hope to hear of success when all of the other treatments stopped working. I have KRAS mutation too, oncologists never expressed much concern about it but I know it is not the best hting to have. Praying for continued good results for you!

Trubrit's picture
Posts: 5462
Joined: Jan 2013

I've heard so few, so I am happy to hear that it is working well for you. 

Continue to live life to the fullest, and pray that those mets keep shrinking and disappearing. 

We welcome to the forum, and we're so happy that you have decided to post. 

JanJan63's picture
Posts: 2482
Joined: Sep 2014

Hooray for you! That's wonderful!! It's crazy how chemos differ in side effects and results from patient to patient. 


Posts: 5
Joined: Jun 2017

Thanks to all of you who wished me continued sucess. I hope all the same for you. I will post again as soon as I know if this will continue


Ruthmomto4's picture
Posts: 696
Joined: May 2013

i hope it keeps making you better!!

Posts: 5
Joined: Jun 2017

Thanks again.


Annabelle41415's picture
Posts: 6711
Joined: Feb 2009

That is good news.  If you ever need any questions answered we are a group of people, but since you said you have been lurking for some time now you already know that.  Hope you continue to do well.


Posts: 5
Joined: Jun 2017

Thanks Kim



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