2.5 years for my cystic ccrcc

lobbyist0724
lobbyist0724 Member Posts: 484 Member

Hi all,

I have been having some pretty bad scanxiety this time causing some physical issues like loss of voice and gum infection. I have never known stress can contribute to such a problem. High ferritin perhaps from my fatty liver and etc.

The good news is my 2.5 years scan (this time chest X-ray + US again) came back clear yesterday: NED! 

Also, for those of you who have cystic related rcc, more research suggests a better prognosis and low risk of metastases. Please try to stay positive. I know it is easy to say than done, I am a perfect example! I am now on an 8 months scan instead of 6 months.

Once again, I wish you all good health and the best outcome from treatment!

Cheers!

 

Comments

  • daisybud
    daisybud Member Posts: 529 Member
    Congrats!

    Congrats on being ned! I passed 3 years and the scans still scare the crap out of me.

  • eug91
    eug91 Member Posts: 367 Member
    NICE!

    Congratulations! 

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Just getting started.

    May you have many more visits from Uncle Ned.

     

     

     

     

    icemantoo

  • lobbyist0724
    lobbyist0724 Member Posts: 484 Member
    daisybud said:

    Congrats!

    Congrats on being ned! I passed 3 years and the scans still scare the crap out of me.

    Thank you, I guess it really

    Thank you, I guess it really depends on the personality especially when I do live with order anxiety issues :)

  • lobbyist0724
    lobbyist0724 Member Posts: 484 Member
    Thank you eug91 and iceman!

    Thank you eug91 and iceman!

  • stub1969
    stub1969 Member Posts: 954 Member
    Good news, Lobbyist

    Thanks for sharing your good news!  I know there are doubters out there, but scanxiety is a real thing.  We all have to cope with it otherwise it will negatively impact our lives.

    Let Old Uncle NED know he can pack his bags and travel to the midwest around late June to visit me for my scans.

    Stub

  • lobbyist0724
    lobbyist0724 Member Posts: 484 Member
    edited May 2019 #8
    stub1969 said:

    Good news, Lobbyist

    Thanks for sharing your good news!  I know there are doubters out there, but scanxiety is a real thing.  We all have to cope with it otherwise it will negatively impact our lives.

    Let Old Uncle NED know he can pack his bags and travel to the midwest around late June to visit me for my scans.

    Stub

    Thank you Stub

    Thank you Stub, I will definitely tell Uncle NED to visit you!!

    In fact, I started a poll in a FB kidney cancer survivor group and realized there are so many long-term survivors. One lady has been a survivor for more than "31 YEARS" and another lady has been over "50 YEARS" she got hers when she was 5! 

    So please everyone (including myself), let's try to stay positive!