Really good news

Ruthmomto4
Ruthmomto4 Member Posts: 706 Member

which I am happy about for now, because I know it can all change in an instant. After 2 years of being really sick, 5 years at stage 4 right now my husband is showing NED and all his blood work is normal, except one liver enzyme due to his stent in his liver. The narrowing in his ducts are just narrowing and it looks like the radiation destroyed the tumor he had in his bile duct. 

He has not had any chemo in his pump since December and even then it was 1/4, at least I think it was it might have been November, no systemic since 2018. He let his hai pump die  because it caused him so many problems. 

Cautiously optimistic.....

«1

Comments

  • JanJan63
    JanJan63 Member Posts: 2,478
    Hooray!!!

    Oh my goodness! That's absolutely awesome news!! I'm always stunned when stage four people become NED. Who'd have thought it was possible? It gives the rest of us so much hope!! I am SO happy for you both! What a wonderful break from all the crap!

    Hugs!

    Jan

  • mojogirl67
    mojogirl67 Member Posts: 306
    Great News

    Wonderful news! Sending good energy and prayers for many more years to come of NED! Your seat as a caregiver is not easy and I wish you strength to keep fighting with him!! Hugs to you both!! ..M

  • suzycruise76
    suzycruise76 Member Posts: 159 Member
    Wonderful

    news,congratulations! It is so helpful to read story like yours. 

    All the best to you and your husband,

    Suzy

  • abita
    abita Member Posts: 1,109 Member
    I am so happy for you! And as

    I am so happy for you! And as I love to have hope, was all his cancer removed surgically? I am hoping that chemo can get someone to ned.

  • Trubrit
    Trubrit Member Posts: 5,625 Member
    Insert Happy Dancing Man

    i am at the airport right now, and HDM is at home, on my computer.  He will arrive late to this very wonderful party. 

    Dont worry about what ‘may’ show up in the future; celebrate now. 

    Tru

  • Msboop15
    Msboop15 Member Posts: 83 Member
    edited April 2019 #7
    Wonderful news!

    Always so good to hear NED, especially Stage 4. Reminds us it is possible. 

    Elaine

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member
    Yes

    except for a rare spread of a tumor inside his bile duct which was treated with some doses of hai pump chemo and SBRT radiation therapy (14 doses)

    i guess technically one was ablated during his second resection 

     

    i am am editting this to say when pathology came back on the resected tumors they were 95% necrotic which was an excellent response. If chemo can’t get you to Ned there are lots of other non surgical options like radiation and ablation that can get you there.

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,256 Member
    Congratulations

    Congratulations!  It is always inspiring to hear good news.  

  • abita
    abita Member Posts: 1,109 Member

    Yes

    except for a rare spread of a tumor inside his bile duct which was treated with some doses of hai pump chemo and SBRT radiation therapy (14 doses)

    i guess technically one was ablated during his second resection 

     

    i am am editting this to say when pathology came back on the resected tumors they were 95% necrotic which was an excellent response. If chemo can’t get you to Ned there are lots of other non surgical options like radiation and ablation that can get you there.

    That is encouraging! Thanks!

    That is encouraging! Thanks!

  • myAZmountain
    myAZmountain Member Posts: 417 Member
    Terrific News!

    Wonderful to hear he is NED ! Love to hear it is possible at Stage 4!!

  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    WooHooo

    That is wonderful news.  He's been through a lot so I'm glad that he can sigh a little bit of relief.  Thanks for sharing.

    Kim

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member
    JanJan63 said:

    Hooray!!!

    Oh my goodness! That's absolutely awesome news!! I'm always stunned when stage four people become NED. Who'd have thought it was possible? It gives the rest of us so much hope!! I am SO happy for you both! What a wonderful break from all the crap!

    Hugs!

    Jan

    Thank you Jan!

    we are going to enjoy the three months until the next scan and blood test!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member

    Great News

    Wonderful news! Sending good energy and prayers for many more years to come of NED! Your seat as a caregiver is not easy and I wish you strength to keep fighting with him!! Hugs to you both!! ..M

    Thank you!

    i hope your starting to feel better and the chemo is leaving your body for good!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member
    Trubrit said:

    Insert Happy Dancing Man

    i am at the airport right now, and HDM is at home, on my computer.  He will arrive late to this very wonderful party. 

    Dont worry about what ‘may’ show up in the future; celebrate now. 

    Tru

    Thank you!!!

    no worries! I hope you made it home safely!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member
    Msboop15 said:

    Wonderful news!

    Always so good to hear NED, especially Stage 4. Reminds us it is possible. 

    Elaine

    Thank you!

    Just taking it cautiously to the next scan!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member

    Terrific News!

    Wonderful to hear he is NED ! Love to hear it is possible at Stage 4!!

    Thank you!

    i am just enjoying the next three months, and happy Birthday!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member

    Congratulations

    Congratulations!  It is always inspiring to hear good news.  

    Thank you!

    hoping it lasts a while!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member
    edited May 2019 #19

    WooHooo

    That is wonderful news.  He's been through a lot so I'm glad that he can sigh a little bit of relief.  Thanks for sharing.

    Kim

    Thank you Kim!

    good news was a welcome change! Today is actually a year to the day of his second liver resection.

  • Ruthmomto4
    Ruthmomto4 Member Posts: 706 Member

    Wonderful

    news,congratulations! It is so helpful to read story like yours. 

    All the best to you and your husband,

    Suzy

    Thank you!

    Hoping we get through the next round in three months! Cautiously optimistic..

  • Kazenmax
    Kazenmax Member Posts: 458 Member
    edited May 2019 #21
    Always wonderful to hear NED!

    Always wonderful to hear NED! You both have been through so much. Now try to relax and enjoy. 

    K