CSN Login
Members Online: 0

You are here

Really good news

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

which I am happy about for now, because I know it can all change in an instant. After 2 years of being really sick, 5 years at stage 4 right now my husband is showing NED and all his blood work is normal, except one liver enzyme due to his stent in his liver. The narrowing in his ducts are just narrowing and it looks like the radiation destroyed the tumor he had in his bile duct. 

He has not had any chemo in his pump since December and even then it was 1/4, at least I think it was it might have been November, no systemic since 2018. He let his hai pump die  because it caused him so many problems. 

Cautiously optimistic.....

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Oh my goodness! That's absolutely awesome news!! I'm always stunned when stage four people become NED. Who'd have thought it was possible? It gives the rest of us so much hope!! I am SO happy for you both! What a wonderful break from all the crap!

Hugs!

Jan

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

we are going to enjoy the three months until the next scan and blood test!

mojogirl67's picture
mojogirl67
Posts: 250
Joined: Oct 2018

Wonderful news! Sending good energy and prayers for many more years to come of NED! Your seat as a caregiver is not easy and I wish you strength to keep fighting with him!! Hugs to you both!! ..M

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

i hope your starting to feel better and the chemo is leaving your body for good!

suzycruise76's picture
suzycruise76
Posts: 98
Joined: Mar 2019

news,congratulations! It is so helpful to read story like yours. 

All the best to you and your husband,

Suzy

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

Hoping we get through the next round in three months! Cautiously optimistic..

abita's picture
abita
Posts: 656
Joined: Dec 2017

I am so happy for you! And as I love to have hope, was all his cancer removed surgically? I am hoping that chemo can get someone to ned.

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

except for a rare spread of a tumor inside his bile duct which was treated with some doses of hai pump chemo and SBRT radiation therapy (14 doses)

i guess technically one was ablated during his second resection 

 

i am am editting this to say when pathology came back on the resected tumors they were 95% necrotic which was an excellent response. If chemo can’t get you to Ned there are lots of other non surgical options like radiation and ablation that can get you there.

abita's picture
abita
Posts: 656
Joined: Dec 2017

That is encouraging! Thanks!

Trubrit's picture
Trubrit
Posts: 4890
Joined: Jan 2013

i am at the airport right now, and HDM is at home, on my computer.  He will arrive late to this very wonderful party. 

Dont worry about what ‘may’ show up in the future; celebrate now. 

Tru

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

no worries! I hope you made it home safely!

Msboop15's picture
Msboop15
Posts: 81
Joined: Apr 2019

Always so good to hear NED, especially Stage 4. Reminds us it is possible. 

Elaine

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

Just taking it cautiously to the next scan!

SandiaBuddy's picture
SandiaBuddy
Posts: 907
Joined: Apr 2017

Congratulations!  It is always inspiring to hear good news.  

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

hoping it lasts a while!

myAZmountain
Posts: 275
Joined: Apr 2018

Wonderful to hear he is NED ! Love to hear it is possible at Stage 4!!

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

i am just enjoying the next three months, and happy Birthday!

Annabelle41415's picture
Annabelle41415
Posts: 6242
Joined: Feb 2009

That is wonderful news.  He's been through a lot so I'm glad that he can sigh a little bit of relief.  Thanks for sharing.

Kim

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

good news was a welcome change! Today is actually a year to the day of his second liver resection.

Kazenmax's picture
Kazenmax
Posts: 357
Joined: Feb 2016

Always wonderful to hear NED! You both have been through so much. Now try to relax and enjoy. 

K

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

i will try, it’s been dampened a bit by the loss of our sweet dog Sophie on monday. My heart is still broken so it felt wrong to be happy about the good news. 

beaumontdave's picture
beaumontdave
Posts: 1003
Joined: Aug 2013

Great to hear, after such a fight that your winning some rounds. Enjoy the break............................................Dave

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

that’s a perfect way to put it!! we will enjoy this round for 3 months and wait to see how the next one plays out. :)

Subscribe to Comments for "Really good news "