Really good news
which I am happy about for now, because I know it can all change in an instant. After 2 years of being really sick, 5 years at stage 4 right now my husband is showing NED and all his blood work is normal, except one liver enzyme due to his stent in his liver. The narrowing in his ducts are just narrowing and it looks like the radiation destroyed the tumor he had in his bile duct.
He has not had any chemo in his pump since December and even then it was 1/4, at least I think it was it might have been November, no systemic since 2018. He let his hai pump die because it caused him so many problems.
Cautiously optimistic.....
Comments
-
Hooray!!!
Oh my goodness! That's absolutely awesome news!! I'm always stunned when stage four people become NED. Who'd have thought it was possible? It gives the rest of us so much hope!! I am SO happy for you both! What a wonderful break from all the crap!
Hugs!
Jan
0 -
Great News
Wonderful news! Sending good energy and prayers for many more years to come of NED! Your seat as a caregiver is not easy and I wish you strength to keep fighting with him!! Hugs to you both!! ..M
0 -
Wonderful
news,congratulations! It is so helpful to read story like yours.
All the best to you and your husband,
Suzy
0 -
Yes
except for a rare spread of a tumor inside his bile duct which was treated with some doses of hai pump chemo and SBRT radiation therapy (14 doses)
i guess technically one was ablated during his second resection
i am am editting this to say when pathology came back on the resected tumors they were 95% necrotic which was an excellent response. If chemo can’t get you to Ned there are lots of other non surgical options like radiation and ablation that can get you there.
0 -
Congratulations
Congratulations! It is always inspiring to hear good news.
0 -
That is encouraging! Thanks!Ruthmomto4 said:Yes
except for a rare spread of a tumor inside his bile duct which was treated with some doses of hai pump chemo and SBRT radiation therapy (14 doses)
i guess technically one was ablated during his second resection
i am am editting this to say when pathology came back on the resected tumors they were 95% necrotic which was an excellent response. If chemo can’t get you to Ned there are lots of other non surgical options like radiation and ablation that can get you there.
That is encouraging! Thanks!
0 -
Terrific News!
Wonderful to hear he is NED ! Love to hear it is possible at Stage 4!!
0 -
WooHooo
That is wonderful news. He's been through a lot so I'm glad that he can sigh a little bit of relief. Thanks for sharing.
Kim
0 -
Thank you Jan!JanJan63 said:Hooray!!!
Oh my goodness! That's absolutely awesome news!! I'm always stunned when stage four people become NED. Who'd have thought it was possible? It gives the rest of us so much hope!! I am SO happy for you both! What a wonderful break from all the crap!
Hugs!
Jan
we are going to enjoy the three months until the next scan and blood test!
0 -
Thank you!mojogirl67 said:Great News
Wonderful news! Sending good energy and prayers for many more years to come of NED! Your seat as a caregiver is not easy and I wish you strength to keep fighting with him!! Hugs to you both!! ..M
i hope your starting to feel better and the chemo is leaving your body for good!
0 -
Thank you!!!Trubrit said:Insert Happy Dancing Man
i am at the airport right now, and HDM is at home, on my computer. He will arrive late to this very wonderful party.
Dont worry about what ‘may’ show up in the future; celebrate now.
Tru
no worries! I hope you made it home safely!
0 -
Thank you!Msboop15 said:Wonderful news!
Always so good to hear NED, especially Stage 4. Reminds us it is possible.
Elaine
Just taking it cautiously to the next scan!
0 -
Thank you!myAZmountain said:Terrific News!
Wonderful to hear he is NED ! Love to hear it is possible at Stage 4!!
i am just enjoying the next three months, and happy Birthday!
0 -
Thank you!SandiaBuddy said:Congratulations
Congratulations! It is always inspiring to hear good news.
hoping it lasts a while!
0 -
Thank you Kim!Annabelle41415 said:WooHooo
That is wonderful news. He's been through a lot so I'm glad that he can sigh a little bit of relief. Thanks for sharing.
Kim
good news was a welcome change! Today is actually a year to the day of his second liver resection.
0 -
Thank you!suzycruise76 said:Wonderful
news,congratulations! It is so helpful to read story like yours.
All the best to you and your husband,
Suzy
Hoping we get through the next round in three months! Cautiously optimistic..
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards