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Apr 01, 2019 - 5:22 pm
Hi All, Well it has been almost a full year since my husband's diagnosis of stage 4 RCC with mets on 3 rib bones. Had Kidney removed in June, and started immunotherapy 7-30-18, checkmate 214 nivolumb and Ipilimumab. About November he had lots of fatigue and bone pain for about 3 months. We got CBD salve for the bone pain and tumeric and that helped a lot. He also had SVT (heart racing out of control - which is how this whole thing was diagnosed) and had an ablation done Feb 1st. By the end of Feb he is feeling so much better, has energy again and is able to work in the yard and in the shop. He still has some bone pain, but not near as much. Well at the 3 month scan they found a couple very small lung mets which may have been missed in the first scan. But there was hardening of the lesions on his ribs meaining it was dying. He just had his 6 month scan (which was a month late) and NO NEW CHANGE, which is great. I haven't seen the report yet, but he went for treatment today and text me the info. I think he may actually beat this. He has always had a very good immune system, so letting it loose seems to be working. Also he had rashes on his legs for the last couple years, which are now gone, and seborrheic keratosis moles are all drying up and going away. So looking up for now. Will check back next scan. |
Joined: Mar 2014
Sounds very encouraging. All
Sounds very encouraging. All the very best to both of you!
Joined: Oct 2017
So happy for you both
II hope it continues going forward-June
Joined: Jul 2014
Great news!
Great news!
Joined: Jun 2016
Good news, indeed
And may the good news continue.
Your mentioning "the six month scan (which was one month late)" made me smile. ALL of my scans have been late and only seem to get later. I was agonizing over it until I decided to just go ahead and call it (for example) "the - at least - six month scan."
Joined: Jan 2019
terrific!
Sounds great! Please keep it going!
Joined: Jun 2013
Excellent
Love reading posts like this one. Interesting about other ailments clearing up from the immunotherapy.
Joined: Jul 2016
Sounds good. Keep the faith!
Sounds good. Keep the faith!
Joined: Jan 2016
Great news!
Great news!
Joined: Mar 2019
Go, go, go!
This is encouraging. I'm going in for my post-op check. Hopeful!
Joined: May 2018
Thanks everybody
Yes, we are encouraged that this is working. His last scan be for was Oct, he should have had one in Jan. Anyway last sentence said no new disease progression. I'll check back next scan.
Joined: May 2017
Great News
I could not be happier for you both. Great to see others get a real benefit from immunotherapy. He will beat this.
Best Wishes, Fred
Joined: Jan 2019
Congrats and tell him to KEEP
Congrats and tell him to KEEP IT UP! We are all sending good vibes!
Joined: May 2018
Keep moving forward
Keep moving forward