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Two Years

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Two years ago I faced surgery for an obstructive tumor in my colon.  I did not know if I would live to see another Spring (my favorite season, despite the allergies).  After surgery, the results came back stage IIIb, and I did a single treatment with oxaliplatin, which I discontinued, and four months of capecitabine (Xeloda).  Chemo was no fun.

Today, I got the results of my CT scan and blood work and there is no evidence of cancer.  My peak chance of recurrence has passed, and the doctors suggested reducing to twice a year blood tests and once a year CT scans, which sounds good to me.

Overall, my quality of life is very good.  I am able to pursue my passion for hiking, having just completed a 20-mile day-hike to the bottom of Grand Canyon two weeks ago, and planning another one this weekend.  Come May, I plan to try a rim-to-rim hike in a day, if weather and health permit.  Yes, there are scars and pain and lingering issues from chemotherapy, but they are not debilitating.  I say this to encourage those on the front-side of this disease to realize that there will be adjustments, but that life can be good.

I recognize that my chances of recurrence are still high and I believe that I have made peace with mortality on both a rational and emotional level.  I therefore strive to live life to its fullest every minute of every day.

I appreciate all of the help and support from the members of this forum for the past two years.

airborne72's picture
airborne72
Posts: 276
Joined: Sep 2012

Buddy:

That is a military command, issued/said when you want the unit to continue forward in the same direction at the same pace and not be distracted by surrounding events.  I think it best describes this situation.  You have successfully stayed the course and damned the torpedoes.

Congratulations.  May the wind be to your back and the sun to your face, unless you are standing on the precipice of the Grand Canyon.

Jim

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

I will continue onward as long as I can.

beaumontdave's picture
beaumontdave
Posts: 996
Joined: Aug 2013

Great news, bud, and with that lifestyle of yours, good diet, supplements, and hiking, sounds like a clear trail ahead of you. I wish I had your wheels, lol. Keep on trucking.............................................Dave

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thank you.

Trubrit's picture
Trubrit
Posts: 4856
Joined: Jan 2013

That deserves a dance or two 

super happy dance emoticon  and of course, .

Tru

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Ah, the happy dance.  I have been hoping to qualify for one!

myAZmountain
Posts: 270
Joined: Apr 2018

So wonderful to hear you are NED and the outlook is so promising! Hope to pass you one day in the Canyon!

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

I have committed to hiking the Canyon as often as I can for as long as I can. I'll see you on the trail.

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Great news Sandra. Congratulations on continuing being NED. Keep on hiking! 

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thank you.

Canadian Sandy's picture
Canadian Sandy
Posts: 511
Joined: Jul 2016

Congrats Sandia! Enjoy your posts here.

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thank you.

Annabelle41415's picture
Annabelle41415
Posts: 6220
Joined: Feb 2009

It is so wonderful to hear that your scan came out so good and that you can go to once a year.  That's a big relief and milestone.  Sounds like you are tackling all the passions in your life and enjoying every moment of it.  Just love your Avatar picture, and shows your love for what is important to you in life.  Continued health to you and thank you for your support on this board.

Kim

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thank you.  I appreciate your support and posts as well.

Kazenmax's picture
Kazenmax
Posts: 357
Joined: Feb 2016

i admire you so much. I had lung surgery last year and then 6 months of chemo. That ended in December. It’s March and I’m finally feeling closer to normal. I started walking and can do a mile and half. Lol. Not everyday but I try to get out there. I worked all through this mess and I finally retire May 1. Then I will have time to get out and do more. My next challenge is to go bike riding with my grandchildren.

again wonderful news. May you be NED forever!

k

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thank you.  I hope you are on the bike soon.  After a while, it should be easy to build to longer rides!

lhduffer
Posts: 72
Joined: Oct 2015

Congrats on the great scan results and progressing to once a year scans!  That is a significant milestone.

Also, thank you for all of the extremely interesting posts on current medical research.  

May you be forever NED!

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thank you.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

That's wonderful news!!! I love that you're able to hike like that! I can't walk around the block. And I'm going to the Grand Canyon on April 22. But no hiking for me!

Keep up the good work and stay NED, you inspire all of us!

Jan

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

I hope you will be able to do some walking on the rim trail--it is paved.  I will try to send you a few Grand Canyon tips and my favorite viewpoints (accessible by car).

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

That would be wonderful, thank you! My friend has been before but she's not coming with us. She's staying in Phoenix while my daughter and I go to Sedona and then the Grand Canyon the next day. I have no idea where is the best place to go there or anything I might need to know. I'd really appreciate your help!

Jan

Joan M's picture
Joan M
Posts: 380
Joined: Oct 2016

Sandia,

You have worked hard to beat this disease and deserve all the good things life brings your way!

I wish I could hike like you, but haven't hiked in the mountains for several years.  Used to hike in Glacier National Park when I lived in Montana and  took the Highline trail up to Sperry Chalet which burned in a fire a few years back.   I live in the plains of the midwest now so not much opportunity.  I'll have to travel more lol.

I truly appreciate all of your research and advice on this forum and hope you don't forget about us since you're doing so well. 

I've been fighting for 3 years now this month and not in remission or even close.  I do feel much better today than I did 3 years ago so that is an accomplishment in itself. 

Like so many others I beleive each day is a gift. 

Enjoy your day! 

Joan

 

 

 

 

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thank you.

ann63's picture
ann63
Posts: 20
Joined: Apr 2018

I’m so happy for you! Keep inspiring us!

i had my 6 month scan yesterday and praying for continued Ned!

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Six months is the first step.  It is amazing how fast time passes.  Here's hoping for continued health!

ann63's picture
ann63
Posts: 20
Joined: Apr 2018

My six month scan - NED! Im so happy!

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Congratulaions.  Do a separate post, and Tru will give you a dancing man!

Trubrit's picture
Trubrit
Posts: 4856
Joined: Jan 2013

Post on the fourm home page https://csn.cancer.org/forum/128 and start a new post. Not only will you get the Happy Dancing man, but everyone will be able to cheer for your happy news. 

Tru

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

Congratulations, keep on keepin' on.  I might suggest more blood tests, more frequently to address gap issues and any potential lead times.  3x per year cuts 2 months gap off.

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

I appreciate that advice.  I think I will take this first six months as a break and then discuss with my doctors more frequent blood tests--they do not bother me in the least, but I am apprehensive of the radiation from the frequent scans.  Thanks for all of your knowledge and advice over the past two years.

PamRav's picture
PamRav
Posts: 251
Joined: Jan 2017

keep on keeping on. 

Thaks for all your great informative posts.  

P

k8's picture
k8
Posts: 29
Joined: Oct 2018

Such wonderful news. You are such an inspiration to many. I admire that you are so active and alive!!!!

Kate

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

this is wonderful news I am very happy to see this!! I love your passion for life, enjoy!

ThomasH's picture
ThomasH
Posts: 100
Joined: Jun 2016

Congrats on getting to the 2 year club! That is awsome news!

SandiaBuddy's picture
SandiaBuddy
Posts: 893
Joined: Apr 2017

Thanks to all of you.

Buddy

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