Initial diagnosis to active surveillance in 5 min flat.
Ok. here Goes.
-42 yo.Male, smoker (Until last week), slightly over weight, Apnea. No other major health issues
-2.5 cm mass on Left kidney. found Last week during an appendicitis CT scan In a city that was not my home.
-Surgeon recommended seeing Urologist and said they would probably opt for a biopsy. Sent me home with imagery disc.
-Urologist had trouble opening the imagery (I had to show him how). Apparently the software that hospital used was not intuitive. He said that he had been in contact with initial radiologist form hospital and had his notes though.
-After looking at imagery for 2-3 min (only 1 of the 4 angle series because we couldn’t get the others open), he points out mass, says he’s 90% sure it’s malignant based on reflective signature matching rest of kidney structure.
-He then says he recommends Active Surveilance starting with a follow up Ultrasound in 3 months.
-I questioned metastasis risk during that period. Doc says it is certainly possible but a low chance
-No orders for additional baseline imagery or blood work
So may questions. Luckily meeting with my PCP tomorrow but:
-How would he know it hasn’t already reached metastasis without further imagery and study of such imagery such as lungs?
-Should I do second opinion?
-What type of doc should I get it from?
-Does any of this even sound right? Active Surveillance on a 42 yo? No further imagery or blood work?
-Am I missing anything else here?
Last Question: i live about an hour from the Cleveland Clinic I hear they have an incredible Kidney Cancer reputation. Have any of you heard this? Or should I go to my local hospital cancer center (about 15 min from home)?
Thanks all for any info you can send my way.
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