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CSN Outage 12/5/19
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Still fighting
 |
Feb 06, 2019 - 10:57 pm
Sorry for not posting for a bit. I’m still fighting back against this beast. I’ve stayed out of the hospital so that is good. I’m still on Cabo - been on the higher dose (60 mg) for about a month. The SEs are unpleasant but I’ve been toughing it out. Had scans today and I have a date with my onc at 8am tomorrow. Not sure what to expect. Cabo has made me feel like crap but I have no idea if it has been effective against the cancer. I’ll know soon enough. All I know for sure is I ain’t done yet and I plan to keep fighting. I am so happy when I read posts about others being NED - gives me hope. Not just hope for me but for everyone facing this awful disease. I pray that one day (soon would be ideal) a cure is found. But until that happens we fight on and enjoy the good days and cherish time with loved ones. I am thankful for this support group - I wish you all the very best. I will do my best to keep checking in. |
Joined: Oct 2013
MarkDavid, I am glad you gave
MarkDavid, I am glad you gave us an update. I will be thinking of you now as you wait to see the results.
We will walk along side you ALL THE FRIGGIN WAY! You ARE HOPE!
Do you know the SERENITY prayer?
(God) GRANT me the SERENITY to accept the things I cannot change,
The COURAGE to change the things I can and
the WISDOM to know the difference.
I say this often repeating it until a peace comes over me.
Stay in touch ok hon?
Sending you healing hugs,
Jan
Joined: Jan 2019
great to hear from you
MarkDavid- your fighting attitude is inspiring. Sending you prayers and good thoughts that your onc appointment goes well. We're here for you.
Joined: Nov 2014
Mark, you are so far from
Mark, you are so far from being done! Look at many-many others with Stage 4, who are succesfully fighting this long-term, working, travelling. No way you will be done soon!
Please let us know how the appointment goes.
Hugs,
Alla
Joined: Jul 2016
So glad you posted an update.
So glad you posted an update. Prayers going your way Mark.
Joined: Mar 2018
Happy to hear from you! I
Happy to hear from you! I HOPE HOPE HOPE Cabo is doing its job. It is for me so far. Scans in about a week. Please do let us know how yours turned out!!
You have the right mindset, but we all know this is no picnic in the park. SE's on Cabo are rough but doable mostly. Can't wait to hear good news from you!!
Joined: Mar 2017
Glad you posted
Thanks Mark for the update. With missing posts seeing your post is welcome news. Hoping you get good news from the scans. Sending positive thoughts your way.
Joined: Mar 2017
you have it wrong, sir
You give us hope.
Joined: Mar 2014
Keep kicking its butt, Mark.
Keep kicking its butt, Mark. So sorry for the side effects but keeping my fingers crossed that Cabo is effective. Hope meeting with oncologist gave you good results.
Joined: May 2018
Update
Met with my oncologist today - was a nervous wreck all night and morning. I got some great news today - positive response with tumors in lungs and leg. The largest (and scariest) tumor in my right lung that is pressed up against my heart was 5cm and is now about 2.5cm - praise the Lord! The other small nodules have remained stable or have shrunk. The tumor in my left thigh that at one point was larger than a baseball is now so small it is barely detectable (broken into two very small tumors now). The tumor in my abdomen which is near the location of my abdominal hemorrhage has remained stable with increasing signs of necrosis. I still have a lot of blood in my abdomen so it is hard to really see the tumor. If the next scans don‘t show improvement we talked about an ablation or radiation.
Thank you for the encouraging words and support and prayers. Fight on!!
Joined: Jul 2016
Late to the party
Sorry I'm a little late to give encouragement, Mark, but I 'm here to celebrate your good news. If I could do back flips--I'd do a few for you:)
Question--with the SE kicking your butt, did your doctor talk about reducing your dose?
Wishing you the best!
Stub
Joined: May 2018
SEs
I am going to stay at the higher dose for a while longer. The SEs have been unpleasant but not unbearable. If they do get to the point where I can no longer tolerate we will look at reducing the dose. I wanna keep up the higher dose for as long as I am able.
Joined: Jul 2016
Good plan...
This sounds like a good plan, Mark. Our friend Fox always said.....take the SE as long as you can as long as the meds are working. I'm sure you are being watched closely.
Wishing you the best!
Stub
Joined: Aug 2017
Great News Mark
Big Hugs
Big Love
try to relax for a little
Strength
Annie
Joined: Aug 2017
Wonderful news
Will continue to lift you and all in prayer.
Joined: Jul 2016
Praise the Lord! So happy to
Praise the Lord! So happy to hear your good news.
Joined: Jan 2019
awesome
Fantastic news!
Joined: Nov 2014
Yes !!!!!!! :-)
Yes !!!!!!! :-)
Joined: Oct 2017
Great news
I'm so happy you received positive results and you are feeling encouraged. Best of luck going forward-June
Joined: Mar 2018
SO thrilled to read the Cabo
SO thrilled to read the Cabo is working for you! I sure hoped it would. Keep on going. You're doing a great job. Do you have help managing the SE's? Or, I suppose you know what to do from using the other meds.
Sure hope the next scan shows more going away! Maybe you can breathe easier for awhile. Man, you have been through a lot.
I am so glad I started with Cabo as 1st line.
Joined: Mar 2017
Mark this is excellent news!!
Mark this is excellent news!!! Press on brother!!
Joined: Mar 2014
Praise the Lord, indeed. That
Praise the Lord, indeed. That's really such encouraging news about the tumor shrinkage. Way to go! So very happy for you. You deserved a break with some good news.
Joined: Dec 2017
Great!!!
Best of luck!!
Joined: Sep 2016
I am so happy for you, was
I am so happy for you, was nervus before read your update. Younare not even close to done, it is just the beginning!
Joined: Jan 2016
Yah!
Happy for you!
Joined: Nov 2017
Hi Mark
Encouraging words and support and prayers coming to you this Sunday. May your nerves be calm.
Joined: Jan 2017
Just thrilled with your
Just thrilled with your results!! You are amazing!!
Joined: Oct 2017
Yes!
Great news, Mark! Keep on keeping on, brother - we're all fighting right alongside you!
Best always!
Ryan