Still fighting

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MarkDavid18
MarkDavid18 Member Posts: 61
in Kidney Cancer #1

Sorry for not posting for a bit. I’m still fighting back against this beast. I’ve stayed out of the hospital so that is good. I’m still on Cabo - been on the higher dose (60 mg) for about a month. The SEs are unpleasant but I’ve been toughing it out. Had scans today and I have a date with my onc at 8am tomorrow. Not sure what to expect. Cabo has made me feel like crap but I have no idea if it has been effective against the cancer. I’ll know soon enough. All I know for sure is I ain’t done yet and I plan to keep fighting. 

I am so happy when I read posts about others being NED - gives me hope. Not just hope for me but for everyone facing this awful disease. I pray that one day (soon would be ideal) a cure is found. But until that happens we fight on and enjoy the good days and cherish time with loved ones. I am thankful for this support group - I wish you all the very best. I will do my best to keep checking in. 

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Comments

  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #2
    MarkDavid, I am glad you gave

    MarkDavid, I am glad you gave us an update. I will be thinking of you now as you wait to see the results. 

    We will walk along side you ALL THE FRIGGIN WAY! You ARE HOPE!

    Do you know the SERENITY prayer?

    (God) GRANT me the SERENITY to accept the things I cannot change, 

    The COURAGE to change the things I can and

    the WISDOM to know the difference. 

    I say this often repeating it until a peace comes over me.

    Stay in touch ok hon?

    Sending you healing hugs,

    Jan

  • eug91
    eug91 CSN Member Posts: 471 Member
    #3
    great to hear from you

    MarkDavid- your fighting attitude is inspiring. Sending you prayers and good thoughts that your onc appointment goes well. We're here for you. 

  • Allochka
    Allochka CSN Member Posts: 1,083 Member
    #4
    Mark, you are so far from

    Mark, you are so far from being done! Look at many-many others with Stage 4, who are succesfully fighting this long-term, working, travelling. No way you will be done soon!

    Please let us know how the appointment goes.

    Hugs,

    Alla

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    #5
    So glad you posted an update.

    So glad you posted an update. Prayers going your way Mark.

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    #6
    Happy to hear from you! I

    Happy to hear from you! I HOPE HOPE HOPE Cabo is doing its job. It is for me so far. Scans in about a week. Please do let us know how yours turned out!!

    You have the right mindset, but we all know this is no picnic in the park. SE's on Cabo are rough but doable mostly. Can't wait to hear good news from you!!

  • Retcenturion
    Retcenturion CSN Member Posts: 240 Member
    #7
    Glad you posted

    Thanks Mark for the update. With missing posts seeing your post is welcome news. Hoping you get good news from the scans. Sending positive thoughts your way.

  • CRashster
    CRashster Member Posts: 241 Member
    #8
    you have it wrong, sir

    You give us hope.

  • APny
    APny CSN Member Posts: 1,995 Member
    edited February 2019 #9
    Keep kicking its butt, Mark.

    Keep kicking its butt, Mark. So sorry for the side effects but keeping my fingers crossed that Cabo is effective. Hope meeting with oncologist gave you good results.

  • MarkDavid18
    MarkDavid18 Member Posts: 61
    #10
    Update

    Met with my oncologist today - was a nervous wreck all night and morning. I got some great news today - positive response with tumors in lungs and leg. The largest (and scariest) tumor in my right lung that is pressed up against my heart was 5cm and is now about 2.5cm - praise the Lord! The other small nodules have remained stable or have shrunk. The tumor in my left thigh that at one point was larger than a baseball is now so small it is barely detectable (broken into two very small tumors now). The tumor in my abdomen which is near the location of my abdominal hemorrhage has remained stable with increasing signs of necrosis. I still have a lot of blood in my abdomen so it is hard to really see the tumor. If the next scans don‘t show improvement we talked about an ablation or radiation. 

    Thank you for the encouraging words and support and prayers. Fight on!!

  • stub1969
    stub1969 CSN Member Posts: 987 Member
    #11
    Late to the party

    Sorry I'm a little late to give encouragement, Mark, but I 'm here to celebrate your good news.  If I could do back flips--I'd do a few for you:)

    Question--with the SE kicking your butt, did your doctor talk about reducing your dose?  

    Wishing you the best!

    Stub

  • MarkDavid18
    MarkDavid18 Member Posts: 61
    #12
    stub1969 said:

    Late to the party

    Sorry I'm a little late to give encouragement, Mark, but I 'm here to celebrate your good news.  If I could do back flips--I'd do a few for you:)

    Question--with the SE kicking your butt, did your doctor talk about reducing your dose?  

    Wishing you the best!

    Stub

    SEs

    I am going to stay at the higher dose for a while longer. The SEs have been unpleasant but not unbearable.  If they do get to the point where I can no longer tolerate we will look at reducing the dose. I wanna keep up the higher dose for as long as I am able. 

  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    #13
    Great News Mark

    Big Hugs

    Big Love

     

    try to relax for a little 

     

    Strength

    Annie

  • stub1969
    stub1969 CSN Member Posts: 987 Member
    #14
    MarkDavid18 said:

    SEs

    I am going to stay at the higher dose for a while longer. The SEs have been unpleasant but not unbearable.  If they do get to the point where I can no longer tolerate we will look at reducing the dose. I wanna keep up the higher dose for as long as I am able. 

    Good plan...

    This sounds like a good plan, Mark.  Our friend Fox always said.....take the SE as long as you can as long as the meds are working.  I'm sure you are being watched closely. 

    Wishing you the best!

    Stub

  • MelBlessed
    MelBlessed Member Posts: 71 Member
    #15
    Wonderful news

    Will continue to lift you and all in prayer.

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    #16
    Praise the Lord! So happy to

    Praise the Lord! So happy to hear your good news.

  • eug91
    eug91 CSN Member Posts: 471 Member
    #17
    awesome

    Fantastic news! 

  • Allochka
    Allochka CSN Member Posts: 1,083 Member
    #18
    Yes !!!!!!!   :-)

    Yes !!!!!!!   :-)

  • Gtngbtr58 @aol.com
    Gtngbtr58 @aol.com CSN Member Posts: 206 Member
    #19
    Great news

    I'm so happy you received positive results and you are feeling encouraged.  Best of luck going forward-June

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    #20
    SO thrilled to read the Cabo

    SO thrilled to read the Cabo is working for you! I sure hoped it would. Keep on going. You're doing a great job. Do you have help managing the SE's? Or, I suppose you know what to do from using the other meds. 

    Sure hope the next scan shows more going away! Maybe you can breathe easier for awhile. Man, you have been through a lot.

    I am so glad I started with Cabo as 1st line.

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    #21
    Mark this is excellent news!!

    Mark this is excellent news!!! Press on brother!!

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