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Still fighting

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

Sorry for not posting for a bit. I’m still fighting back against this beast. I’ve stayed out of the hospital so that is good. I’m still on Cabo - been on the higher dose (60 mg) for about a month. The SEs are unpleasant but I’ve been toughing it out. Had scans today and I have a date with my onc at 8am tomorrow. Not sure what to expect. Cabo has made me feel like crap but I have no idea if it has been effective against the cancer. I’ll know soon enough. All I know for sure is I ain’t done yet and I plan to keep fighting. 

I am so happy when I read posts about others being NED - gives me hope. Not just hope for me but for everyone facing this awful disease. I pray that one day (soon would be ideal) a cure is found. But until that happens we fight on and enjoy the good days and cherish time with loved ones. I am thankful for this support group - I wish you all the very best. I will do my best to keep checking in. 

Jan4you's picture
Jan4you
Posts: 1308
Joined: Oct 2013

MarkDavid, I am glad you gave us an update. I will be thinking of you now as you wait to see the results. 

We will walk along side you ALL THE FRIGGIN WAY! You ARE HOPE!

Do you know the SERENITY prayer?

(God) GRANT me the SERENITY to accept the things I cannot change, 

The COURAGE to change the things I can and

the WISDOM to know the difference. 

I say this often repeating it until a peace comes over me.

Stay in touch ok hon?

Sending you healing hugs,

Jan

eug91's picture
eug91
Posts: 111
Joined: Jan 2019

MarkDavid- your fighting attitude is inspiring. Sending you prayers and good thoughts that your onc appointment goes well. We're here for you. 

Allochka's picture
Allochka
Posts: 846
Joined: Nov 2014

Mark, you are so far from being done! Look at many-many others with Stage 4, who are succesfully fighting this long-term, working, travelling. No way you will be done soon!

Please let us know how the appointment goes.

Hugs,

Alla

Canadian Sandy's picture
Canadian Sandy
Posts: 477
Joined: Jul 2016

So glad you posted an update. Prayers going your way Mark.

JoeyZ's picture
JoeyZ
Posts: 191
Joined: Mar 2018

Happy to hear from you! I HOPE HOPE HOPE Cabo is doing its job. It is for me so far. Scans in about a week. Please do let us know how yours turned out!!

You have the right mindset, but we all know this is no picnic in the park. SE's on Cabo are rough but doable mostly. Can't wait to hear good news from you!!

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Thanks Mark for the update. With missing posts seeing your post is welcome news. Hoping you get good news from the scans. Sending positive thoughts your way.

CRashster's picture
CRashster
Posts: 226
Joined: Mar 2017

You give us hope.

APny's picture
APny
Posts: 1903
Joined: Mar 2014

Keep kicking its butt, Mark. So sorry for the side effects but keeping my fingers crossed that Cabo is effective. Hope meeting with oncologist gave you good results.

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

Met with my oncologist today - was a nervous wreck all night and morning. I got some great news today - positive response with tumors in lungs and leg. The largest (and scariest) tumor in my right lung that is pressed up against my heart was 5cm and is now about 2.5cm - praise the Lord! The other small nodules have remained stable or have shrunk. The tumor in my left thigh that at one point was larger than a baseball is now so small it is barely detectable (broken into two very small tumors now). The tumor in my abdomen which is near the location of my abdominal hemorrhage has remained stable with increasing signs of necrosis. I still have a lot of blood in my abdomen so it is hard to really see the tumor. If the next scans don‘t show improvement we talked about an ablation or radiation. 

Thank you for the encouraging words and support and prayers. Fight on!!

stub1969's picture
stub1969
Posts: 766
Joined: Jul 2016

Sorry I'm a little late to give encouragement, Mark, but I 'm here to celebrate your good news.  If I could do back flips--I'd do a few for you:)

Question--with the SE kicking your butt, did your doctor talk about reducing your dose?  

Wishing you the best!

Stub

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

I am going to stay at the higher dose for a while longer. The SEs have been unpleasant but not unbearable.  If they do get to the point where I can no longer tolerate we will look at reducing the dose. I wanna keep up the higher dose for as long as I am able. 

stub1969's picture
stub1969
Posts: 766
Joined: Jul 2016

This sounds like a good plan, Mark.  Our friend Fox always said.....take the SE as long as you can as long as the meds are working.  I'm sure you are being watched closely. 

Wishing you the best!

Stub

Wehavenotimeatall
Posts: 472
Joined: Aug 2017

Big Hugs

Big Love

 

try to relax for a little 

 

Strength

Annie

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

Will continue to lift you and all in prayer.

Canadian Sandy's picture
Canadian Sandy
Posts: 477
Joined: Jul 2016

Praise the Lord! So happy to hear your good news.

eug91's picture
eug91
Posts: 111
Joined: Jan 2019

Fantastic news! 

Allochka's picture
Allochka
Posts: 846
Joined: Nov 2014

Yes !!!!!!!   :-)

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
Joined: Oct 2017

I'm so happy you received positive results and you are feeling encouraged.  Best of luck going forward-June

JoeyZ's picture
JoeyZ
Posts: 191
Joined: Mar 2018

SO thrilled to read the Cabo is working for you! I sure hoped it would. Keep on going. You're doing a great job. Do you have help managing the SE's? Or, I suppose you know what to do from using the other meds. 

Sure hope the next scan shows more going away! Maybe you can breathe easier for awhile. Man, you have been through a lot.

I am so glad I started with Cabo as 1st line.

BoondockSaint's picture
BoondockSaint
Posts: 238
Joined: Mar 2017

Mark this is excellent news!!! Press on brother!!

APny's picture
APny
Posts: 1903
Joined: Mar 2014

Praise the Lord, indeed. That's really such encouraging news about the tumor shrinkage. Way to go! So very happy for you. You deserved a break with some good news.

en8236
Posts: 28
Joined: Dec 2017

Best of luck!!

lobbyist0724's picture
lobbyist0724
Posts: 376
Joined: Sep 2016

I am so happy for you, was nervus before read your update. Younare not even close to done, it is just the beginning!

daisybud's picture
daisybud
Posts: 446
Joined: Jan 2016

Happy for you!

jazzgirl's picture
jazzgirl
Posts: 125
Joined: Nov 2017

Encouraging words and support and prayers coming to you this Sunday.  May your nerves be calm.

sandy23
Posts: 137
Joined: Jan 2017

Just thrilled with your results!!  You are amazing!!

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Great news, Mark!  Keep on keeping on, brother - we're all fighting right alongside you!

Best always!

Ryan

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