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Anyone Hear From CritterMama Since the Outage?

DJS628
Posts: 47
Joined: Mar 2018

Hello,

I was wondering if anyone has heard from CritterMama since the outage? 

I want Lori (CritterMama) to know we are still thinking of her and wishing her the best in her treatment.

 

If you see this, Lori, please let us know how you are doing.

 

Take Care.......prayers and hugs are being sent your way.

 

---Debbie

Evarista
Posts: 254
Joined: May 2017

She posted on the 29th over on the LLS Community Groups. You can find her over there in the CAR-T group under the same user name as the one she had here.

I've let her know that this site crashed, in case she was unaware.

DJS628
Posts: 47
Joined: Mar 2018

There is an actual CAR-T group on the LLS site?  I need to check it out.  Thanks!

 

---Debbie

Evarista
Posts: 254
Joined: May 2017

They are called "Community Groups".  Once you get signed in, the Public groups are in alphbetical order.  There's CAR-T and a separate DLBCL, etc.  https://communityview.lls.org/sign_in

yesyes2
Posts: 581
Joined: Jul 2009

I joined LLS prior to this group back in 2008.  There was little activity on rare lymphomas so never found much for me.  However over the years I would journy back to check out the site and see what was happening with old on line friends.  The forum has changed a lot over the years and much more difficult to move about on it.  Now I have forgotten my password so havn't gone out there for over a year.  Are they the group that you need doctor approval to join  Wish I could come up with my password as I think they also might cover my blood cancer now.

 

Evarista
Posts: 254
Joined: May 2017

No need for a doctor to join last year.  Note that they do have a "private message" function but no email alerting to let you know if you gotten a reply (a least for me).  Lori replied last night and will post when she can.

Evarista
Posts: 254
Joined: May 2017

She said it was OK for me to share her news over here. She's definitely having a rough go of it, so here's sending massive positive thoughts that this therapy works for her:

"The cells are back and just prepping my body to receive them. The disease is trying hard to suffocate my neck. Also pressing nerves causing lots of jaw and eye pain. Drs are fighting to keep those nodes down. I'm on a nerve blocker. I start chemo tomorrow, Wed, Thurs, and Fri. I got my PICC line today. Admitted to hospital Sun. Cell infusion on Mon."

dewdrs
Posts: 5
Joined: Feb 2019

Evarista,

Thanks for sharing Lori's update. Sounds like she is fighting hard. Here's massive positive vibes from my wife and I!  Lori we hope this treatment works for you.

Best wishes,

dewdrs

DJS628
Posts: 47
Joined: Mar 2018

Evarista,

Thank you for up-dating us on Lori.  Hard to hear about her having so many difficulties.  Will certainly keep her in my prayers that this treatment works.

 

Also, thank you about the information on LLS.  I went over there yesterday and couldn't find the community groups.  Will check it out again tonight.

 

Have a good evening,

 

Debbie

lindary's picture
lindary
Posts: 633
Joined: Mar 2015

It's been a while since I have been on here and to see this update about Lori. Seeing as the updates was about 3 weels ago I pray all went well for her. 

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