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Short Bowel Syndrome
 |
Sep 27, 2018 - 9:26 pm
Does anyone else have this? They told me I'd have it now after the last sugery. I got a booklet that gave a bit of an outline and suggested things like eating more salt. Actually putting salt in orange juice or gatorade. Canned soups- full of sodium- are also supposed to be good for me. And processed meats, one of the things that they say can cause colon cancer. Hmmm. Which I hate, anyway. Does anyone have any advice about this or experiences? I sill have very little appetite and low grade nausea and have lost two more pounds since leaving the hospital. Thanks for any help or advice! Jan |
Joined: Nov 2001
Hi Jan
I am pretty sre that John 23 suffered from it. I cant remember anyone else or should I say none come to mind. Ron.
Joined: Feb 2009
Yes
Remember something about that and he tried everything to help himself. Unfortunately he's no longer here. He was a great guy with much information. Sorry I'm not able to help you Jan. Hope someone comes forward.
Kim
Joined: Sep 2014
Thanks Ron. John is no longer
Thanks Ron. John is no longer with us and I miss his posts. He was so against chemo and tried CTM instead.
Jan
Joined: Dec 2017
what is CTM?
what is CTM?
Joined: Jan 2013
Chinese Traditional Medicine
John was huge into it. I'm sure it helped him, for a while; but sadly he has left us.
Tru
Joined: Jan 2018
FB group
There is a facebook support group for those with Short Bowel Syndrome. It has 608 members. You may want to look there for some answers. Hugs Jan sorry I can't be more help!
Joined: Sep 2014
Thanks! I'll check that out!
Thanks! I'll check that out!
Joined: Oct 2015
Salt
I really don't know about shortened bowel syndrome, however, after my LAR, and while I had my temporary ileostomy, I was advised to add salt or use full sodium products due to my shortened "system". You don't have the lower bowel to absorb nutrients before they are eliminated, which can cause nutritional deficiencies from what I understood.
Joined: Sep 2014
Yes, the pamphlet they gave
Yes, the pamphlet they gave me talked about sodium and the lack of ability to absorb nutrients. They even suggest putting it in orange juice. My husband had a heart attack and triple bypass a year ago and his diet is so different from mine that we rarely eat the same thing now.
Jan