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Short Bowel Syndrome

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Does anyone else have this? They told me I'd have it now after the last sugery. I got a booklet that gave a bit of an outline and suggested things like eating more salt. Actually putting salt in orange juice or gatorade. Canned soups- full of sodium- are also supposed to be good for me. And processed meats, one of the things that they say can cause colon cancer. Hmmm. Which I hate, anyway.

Does anyone have any advice about this or experiences? I sill have very little appetite and low grade nausea and have lost two more pounds since leaving the hospital.

Thanks for any help or advice!

Jan

ron50's picture
ron50
Posts: 1720
Joined: Nov 2001

I am pretty sre that John 23 suffered from it. I cant remember anyone else or should I say none come to mind. Ron.

Annabelle41415's picture
Annabelle41415
Posts: 6124
Joined: Feb 2009

Remember something about that and he tried everything to help himself.  Unfortunately he's no longer here.  He was a great guy with much information.  Sorry I'm not able to help you Jan.  Hope someone comes forward.

Kim

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thanks Ron. John is no longer with us and I miss his posts. He was so against chemo and tried CTM instead. 

Jan

abita's picture
abita
Posts: 579
Joined: Dec 2017

what is CTM?

Trubrit's picture
Trubrit
Posts: 4759
Joined: Jan 2013

John was huge into it.  I'm sure it helped him, for a while; but sadly he has left us. 

Tru

Twinzma
Posts: 204
Joined: Jan 2018

There is a facebook support group for those with Short Bowel Syndrome. It has 608 members. You may want to look there for some answers. Hugs Jan sorry I can't be more help!

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thanks! I'll check that out!

lhduffer
Posts: 66
Joined: Oct 2015

I really don't know about shortened bowel syndrome, however, after my LAR, and while I had my temporary ileostomy, I was advised to add salt or use full sodium products due to my shortened "system".  You don't have the lower bowel to absorb nutrients before they are eliminated, which can cause nutritional deficiencies from what I understood.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Yes, the pamphlet they gave me talked about sodium and the lack of ability to absorb nutrients. They even suggest putting it in orange juice. My husband had a heart attack and triple bypass a year ago and his diet is so different from mine that we rarely eat the same thing now. 

Jan

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