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Deadmansoon
Deadmansoon Member Posts: 43
in Prostate Cancer #1

Tuesdays bone scan reads as follows. Findings: interval development of foci of moderate increased uptake bilateral iliac bones, right aspect of sacrum, l1 vertebral body, distal left clavicle, manubrium sterni and right parietal bone, suspicious for metastatic disease, given history of prostate carcinoma. Physiologic uptake bilateral kidneys. Mild periarticular uptake bilateral knees, suggestive of osteoarthritis, stable. Impression: interval development of foci of moderate radiopharmaceutical uptake involving axial skeleton for metastatic disease. I knew is was gonna be bad because the pain has gotten to be very moderate. The gift that keeps on giving.

Comments

  • Georges Calvez
    Georges Calvez CSN Member Posts: 547 Member
    #2
    Therapy

    How is the therapy going, even bad cases can be helped with the right cocktail of drugs, extending life and reducing pain.
    Look on yananow in the survivor stories, some people manage to run death ragged for several years, despite a bad hand.
    You always run out of chips in the end at the table of life, it is a question of how long you can keep on playing before being cashed up.

  • VascodaGama
    VascodaGama CSN Member Posts: 3,732
    #3
    HT plus Bisphosphanate

    Livingman,

    I am sorry for the spread. You can try the hormonal route which has demonstrated to be good in alleviate the cancer burthen in several bone metastases cases. You will also need to add a bisphosphanate (fosamax or prolia) to help in bone loss. Please read the story of this survivor;

    https://csn.cancer.org/node/305488

    VG 

  • Deadmansoon
    Deadmansoon Member Posts: 43
    edited September 2018 #4
    VascodaGama said:

    HT plus Bisphosphanate

    Livingman,

    I am sorry for the spread. You can try the hormonal route which has demonstrated to be good in alleviate the cancer burthen in several bone metastases cases. You will also need to add a bisphosphanate (fosamax or prolia) to help in bone loss. Please read the story of this survivor;

    https://csn.cancer.org/node/305488

    VG 

    Done

    I'm 41, sorry for language, but I'm done with they're bull. Gonna let it take it's course, ready to go. Everyone has choices to make with this disease, I have made mine. This will be my last post. Thanks for all the help and wish everyone the best.

  • G53
    G53 Member Posts: 33
    #5
    PSMA therapy
    The new PSMA therapy could help you:
    http://theranostics.com.au/lutetium-psma-therapy/
    https://clinicaltrials.gov/ct2/show/NCT03511664?term=NCT03511664
    https://clinicaltrials.gov/ct2/show/NCT03042312?term=NCT03042312
  • VascodaGama
    VascodaGama CSN Member Posts: 3,732
    #6
    LU 177

    I agree with G53. LU177 may help. This is not a pilot treatment. It has been in action in Germany since 2016 but it is expensive. The clinical trial in USA is a great oppurtunity to have it free of charge and with due professionals caring for the patients. I would recommend you to inquire with your doctor or contact directly to the responsible.

    Do not give up.

    VG  

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