adenoid cystic carcinoma

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andep008
andep008 Member Posts: 1
in Head and Neck Cancer #1

Dies anyone have adenoud cystic carcinoma? I was diagnosed with 4A. Going to Moffitt in Tampa.  Dr Trotti and Dr Kish.

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  • meaganb
    meaganb Member Posts: 244 Member
    edited August 2018 #2
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    Hello! I was diagnosed with

    Hello! I was diagnosed with ACC 6 years ago. I had surgery to remove the tumor then 6 weeks of radiation because there was nerve invasion. I was followed really closely the first few years after, but currently only see my ENT & have scans annually. There are a few groups on Facebook that are specific to people with ACC & there are 2 good groups currently doing research on how to better treat it. Have hope! I was so scared because of statistics, but I have had no evidence of disease since treatment!

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