adenoid cystic carcinoma
Dies anyone have adenoud cystic carcinoma? I was diagnosed with 4A. Going to Moffitt in Tampa. Dr Trotti and Dr Kish.
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Hello! I was diagnosed with
Hello! I was diagnosed with ACC 6 years ago. I had surgery to remove the tumor then 6 weeks of radiation because there was nerve invasion. I was followed really closely the first few years after, but currently only see my ENT & have scans annually. There are a few groups on Facebook that are specific to people with ACC & there are 2 good groups currently doing research on how to better treat it. Have hope! I was so scared because of statistics, but I have had no evidence of disease since treatment!
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