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First colonoscopy since April 2017 when I was diagnosed

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Hi All:

Just feeling a bit anxious, but confident in a positive result. Tomorrow will be my first colonoscopy since my stage 3C diagnosis, surgery and 6 months of Folfox 5FU. All of the blood works appears to be where it should be as of 2 weeks ago. But as I sit hear and begin the prepping for the colonoscopy (yechhhhh!), it brings back the words I heard after my last colonoscoy in April of 2017. The rational side of me thinks "don't worry you'll be fine", but the emotional side still has me a bit anxious.

Thanks for listening! (How much do I owe you? ;)

SandiaBuddy's picture
SandiaBuddy
Posts: 953
Joined: Apr 2017

Cancer usually grows slowly in the colon, so in all probability, you will be fine.  They may find a polyp or two, and there is a fair chance they missed those in the initial colonoscopy (that is likely what happened to me).  Additionally, at least for me, there is less than a 30% chance for colon cancer again.  The other big areas are the lungs and liver, which are revealed in CT or PET scans (not to add any more anxiety).  Best of luck tomorrow.

abita's picture
abita
Posts: 675
Joined: Dec 2017

Why is there a less chance for in colon? 

SandiaBuddy's picture
SandiaBuddy
Posts: 953
Joined: Apr 2017

That is according to my doctor and may be specific to me.  She says I have a 60% chance of recurrence in the liver.  It may be related to the site of the cancer.

See, for example, https://www.ncbi.nlm.nih.gov/pubmed/28589428 "We noted 23.8% local recurrence, 69.8% distant recurrence, and 6.4% both."

Annabelle41415's picture
Annabelle41415
Posts: 6297
Joined: Feb 2009

There is usually a less chance for cancer in the colon also due to the fact that you are now considered high risk and will have the colonoscopies more frequenty than a normal person.  Since colon cancer is considered more of a slow growing cancer they can catch it earlier.  However, there are some polyps that are fast growing and need more attention than the standard protocol for most forms of colon cancer. 

Kim

Annabelle41415's picture
Annabelle41415
Posts: 6297
Joined: Feb 2009

I've got a feeling that everything is going to go just fine tomorrow.  Wishing you well as the prep is the worst thing.  Please let us know how it went.

Kim

Canadian Sandy's picture
Canadian Sandy
Posts: 531
Joined: Jul 2016

Good luck for tomorrow. Mine is coming up in November yuck.

Cindy225's picture
Cindy225
Posts: 172
Joined: Feb 2017

Dan

Sending positive energy your way for an uneventful colonoscopy today!  I was nervous for my first follow up colonoscopy and was fortunate to have the surgeon who did my LAR do the colonoscopy.  Everything looked good and she told me to come back in 2 years instead of a year.  So felt pretty good.  Praying for good results for you today!

Cindy

beaumontdave's picture
beaumontdave
Posts: 1012
Joined: Aug 2013

A nicer thing about a colonoscopy is you get immediate results, scans always made me more nervous. May be it's because there's a wider scope and greater chance of things questionable popping up. If your numbers are good, have faith in the rest. In 2015, all I had to hold onto was a good CEA number through CT's, PET's, lung aspirations, and scoping both ways. That started three months out from the liver resection, that I'm now 4 years{Sep} clear of. Hang in there.............................................................Dave

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

The results of the colonoscopy: Totally clean, no polyps!!!!

 

Annabelle41415's picture
Annabelle41415
Posts: 6297
Joined: Feb 2009

Awesome - thanks for the update.

Kim

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Awesome news! Thanks for following up w us. Love hearing good news and success stories.

Canadian Sandy's picture
Canadian Sandy
Posts: 531
Joined: Jul 2016

Glad to hear this! Good news is always welcome.

Trubrit's picture
Trubrit
Posts: 4952
Joined: Jan 2013

Such good news.

 Time to celebrate

Tru

Cindy225's picture
Cindy225
Posts: 172
Joined: Feb 2017

Deep sigh... Yippee!!

Cindy

Ruthmomto4's picture
Ruthmomto4
Posts: 640
Joined: May 2013

i am sure you are so relieved!

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

I certainly was relieved!

Thanks!

Annabelle41415's picture
Annabelle41415
Posts: 6297
Joined: Feb 2009

When did your doctor tell you that you needed another one, I'm just curious as all doctor's are different.  At least you get a little reprieve for a while.

Kim

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

The doctor that completed the colonoscopy said god nfor another 3 years. I think I'll go with the oncologist's opinion. Either way, I very happy for now!

Annabelle41415's picture
Annabelle41415
Posts: 6297
Joined: Feb 2009

It is good to go with the doctor's recommendations.  At least you can go one year now and have some time to breath.  Enjoy the year and live, live, live. 

Kim

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

I do still check the forums a couple of times a week,and wish everyone well moving ahead!

Happy@50's picture
Happy@50
Posts: 1
Joined: Jul 2018

so out of the 40 lymph nodes removed 3 show signs of cancer . Going next week to find out what kind of treatment or chemo I will need . Any advice ?My doctor feels confident it was caught early . I’m in good spirits as I begin my cancer journey.

Annabelle41415's picture
Annabelle41415
Posts: 6297
Joined: Feb 2009

Sorry that you have had a bad report.  I'm wishing you the best at the doctor's next week and the appointments that await you.  Please start a new thread to introduce yourself and your recent diagnosis and a little history.  I'm glad that you are preparing for moving forward.  Let us know how things are going and if you have further questions.

Kim

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

It is my understanding that when 3 or less lymph nodes are found to be cancerous the stage would be Stage 3B. I had 6 cancerous lymph nodes, so I was at Stage 3C. The biggest difference, from what my oncologist told me, is that 3B only requires 3 months of treatment, while 3C required 6 months of treatment. If you find that to be the case with your treatments, you are in good shape. The treament might be what I had, which was called Folfox 5FU (3 drug cocktail). Oxaliplatin is the most intense of the 3 drugs, but if you only have to tolerate it for 3 months, you can do it! You would experience extreme sensitivity to cold, slight neuropathy and nausea, all of which can be tolerated and managed.

I agree with your doctor, you caught it early (enough anyway).

You came to the right place at the right time; the folks I met on this forum were and are so helpful. Someday you'll pay it forward to others in your current situation.

SandiaBuddy's picture
SandiaBuddy
Posts: 953
Joined: Apr 2017

I was in almost exactly the same boat a bit more than a year ago.  It is likely your doctor will recommend chemo.  If I were in your shoes I would carefully question the survival benefit of the chemo and the potential side effects.  What you do is a highly personal decision.  I did not do well on the chemo and if I were to do it over again, I would decline it.  But if I had minor children or some other big committment in life, I would likely do everything possible to survive.  You might also want to review posts about non-chemo strategies to optimize your odds of "disease-free survival."  Sorry that you are here and best of luck to you in your treatment decisions.

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