Let's do a roll call!
It's been awhile since we've done a roll call and we have a lot of new ladies.
Name or Nickname:
Type of Cancer:
Grade & Stage:
Date of Diagnosis:
Treatment:
Where Treated:
Outcome:
Anything Else:
I'll go first!
Name or Nickname: Eldri
Type of Cancer: UPSC
Grade & Stage: Stage II (oncologist's best guess), Grade 3
Date of Diagnosis: September 2015
Treatment: Six chemos were recommended - Carboplatin & Taxotere. I only made it through three after debilitating side effects.
Where Treated: St. Vincent's Cancer Center, Green Bay, WI
Outcome: NED, but I see my doctor next Tuesday so who knows?
Anything Else: I believe I was given too much chemo. It's based on your weight but I am very sensitive to medication. I suffered a minor stroke - bleeding in the brain - after my third chemo. I have neuropathy in my hands and feet/legs which is the worst (but my Nyquil is still working pretty good). My balance is off, I have short-term memory problems, eye problems and severe gastrointestinal issues although I have been on a new diet for the last two months and it has seemed to help.
Love,
Eldri
Comments
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Name or Nickname: Veronica
Type of Cancer: Endometrial adenocarcinoma
Grade & Stage: Stage 3a, grade 2
Date of Diagnosis: September 2017
Treatment: 7 rounds of adriamyacin and carboplatin, 25 radiation treatments after hysterectomy
Where Treated: Arlington and Tysons Corner, VA
Outcome: NED so far
Anything Else: I was originally diagnosed with Stage 1, grade 1, but pathology after hysterectomy showed a few cells on one ovary. I was supposed to get 6 rounds of Taxol and carboplatin but I was allergic to the Taxol and desensitization didn't work. So I had the adriamyacin instead.
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My summary
Name or Nickname: Chris
Type of Cancer: Uterine Carcinosarcoma (MMMT)
Grade & Stage: Stage IIIB, Grade 3
Date of Diagnosis: November, 2016
Treatment: I had four cycles of Paclitaxel/Carboplatin, followed by four cycles of lfex/Mesna/Adriamycin. The use of different drugs for "phase 2" was planned from the beginning and not the result of any allergic reactions to the first two drugs. I then had 25 external radiation sessions.
Where Treated: Advocate Lutheran General Hospital, located in Park Ridge, Illinois (a suburb next to Chicago, Illinois).
Outcome: NED per latest CT scan in June 2018. I have very mild neuropathy in my feet. And sadly, my hair, already thinning, grew back even more sparsely.
Anything Else: I'm grateful for the time I've had since my diagnosis without significant problems or recurrence.
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Abbycat2 said:
Great idea, Eldri!
Name: Cathy
Type of Cancer: UPSC
Grade and Stage: Grade 3 and Stage 3a
Date of Dx: 10/14/13
Treatment (Tx): Hyterectomy, Oophorectomy, some lymph nodes removed, pelvic wash
Where Treated: Melbourne and Vero Beach, FL
Outcome: NED. Have neuropathy in toes and the balls of my feet from Chemo
Anything Else: Don’t waste time worrying as it robs you from living your life fully. Never, ever give up hope!
Cathy
Name: Cheerful (a/k/a Jane)
Type of Cancer: UPSC
Grade and Stage: Grade 3 - Stage 1
Date of Diagnosis: February 2011; Reoccurrence - Oct. 2016 (Cancer left me in May of 2017)
Initial Treatment in April of 2011: Carboplatin, Taxol, 6 rounds; Brachytherapy - 3 rounds
No further treatments needed in 2017 from reoccurrence.
Where Treated: Crozer Chester (Fox Chase Cancer Center) Upland, PA
Outcome: Currently with No Evidence of Disease - Had Port put in in November of 2016; had Port Removed in June of 2018; cancer just left me since May of 2017.
Anything Else: Very Grateful to my Oncologist for closely monitoring me over the past year and a half; and very grateful and thankful to family and friends for praying for me and feel very blessed and thankful that I am with No evidence of disease.
Jane
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Roll Call
Nickname: Pinky104
Type of Cancer: UPSC
Grade: 3
Stage IVb
Date of Diagnosis: March, 2010
Treatment: Total Hysterectomy, Salpingo-Oopherectomy, Incidental Cholecystectomy (for gallstones) and Appendectomy, Removal of a small amount of cancer from small intestine, Lymph Node Sampling, etc. (no cancer in any lymph nodes sampled). 6 rounds of Carboplatin and Taxol.
Where treated: Surgery at St. Peter's Hospital, Albany, NY, chemo at Glens Falls Hospital, Glens Falls, NY
Outcome: A long period of NED
Anything else: Incisional Hernia repair with mesh, 2012, Glens Falls Hospital, as a complication of my cancer surgery
Recurrence: March, 2017
Cancer wrapped around the ascending colon, in the peritoneum, paracolic gutter, and the muscle near my right hip. Found in two lymph nodes. Intestines found to be growing into the mesh from incisional hernia surgery. Found by a positive hemoccult test followed up by a colonoscopy.
Treatment: 2 resections of my intestines, one for cancer, and one for the "mess" of my intestines growing into the mesh, surgery to remove as much of the cancer as possible. All of the cancer in the muscle couldn't be removed without affecting my mobility. Had chemo again, starting with Carboplatin and Gemzar. Developed an allergic reaction to Carboplatin the 11th time I had it (2010 and 2017) and was switched to Cisplatin (and Gemzar) for the last round.
Where treated: Same 2 hospitals as before
Outcome: NED again
Currently having increased numbness in my thigh again and some bouts of diarrhea occasionally. Had CA-125 last week, which was up about 4 pts., but still in normal range (just like when I had my recurrence last year). Waiting for scheduling on CT scan, which should show whether or not cancer has returned again. Was told I was lucky to be able to be treated the last time since all the cancer grew in the same general area, and most recurrences are more spread out. Also was told I was very lucky the chemo worked on me.
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Roll call
name: Connie
cancer type: UPSC
grade and stage: 3 1a
dx: March 2012
tx: surgery, chemo, brachytherapy
location: University Of Vermont Medical Center in Burlington, Vt and Plattsburgh, NY
outcome: NED. Mild neuropathy in my toes
anything else: I'm grateful for more time with my family, the lucky fluke that gave me an early dx, and all of you
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We are very close to eachbarnyardgal said:Name or Nickname: Veronica
Type of Cancer: Endometrial adenocarcinoma
Grade & Stage: Stage 3a, grade 2
Date of Diagnosis: September 2017
Treatment: 7 rounds of adriamyacin and carboplatin, 25 radiation treatments after hysterectomy
Where Treated: Arlington and Tysons Corner, VA
Outcome: NED so far
Anything Else: I was originally diagnosed with Stage 1, grade 1, but pathology after hysterectomy showed a few cells on one ovary. I was supposed to get 6 rounds of Taxol and carboplatin but I was allergic to the Taxol and desensitization didn't work. So I had the adriamyacin instead.
We are very close to each other. I am in Falls Church.
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Roll Call
Name or Nickname: Armywife
Type of Cancer: Endometrioid Endometrial
Grade & Stage: Grade 2 Stage IVB
Date of Diagnosis: April, 2017
Treatment: DaVinci robotic hysterectomy, Chemotherapy - 1 round carboplatin/taxol. Had acute onset severe neuropathy and an episode of aFib/RVR that landed me in the hospital. Unsure whether it was the taxol or the steroids that caused the heart episode. Second round of chemo was carboplatin only. Well tolerated. Rounds 3 -6 were carboplatin/taxotere. Radiation was recommended by my gyn-onc surgeon, but second opinion at MD Anderson was split - department head decided to reserve radiation for recurrence. By a miracle of God, the neuropathy which had rendered me nearly unable to walk or use my hands has 100% disappeared - and it did so before my second chemo began. I realize how unusual this is and I am so thankful.
Where Treated: San Antonio, TX
Outcome: Scans post-surgery (6/17) and post-chemo (10/17) were NED.
Anything Else: I am so grateful for all I have learned on this site. I read a lot before I joined, and I believe my treatment journey was made easier because I was armed with incredible loads of information. My doctor said she appreciates that I took initiative in my treatment plan and came prepared with questions at each visit.
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Name Kathy- known as Soup on
Name Kathy- known as Soup on here
type of cancer: clear cell
Grade and stage: 3C grade 3
Date of diagnosis: August 2015
Treatment: robotic hysterectomy, 5.5 weeks external radiation, 3 internal(brachytherapy ) 6 rounds of carbo taxol chemo
Where treated : Illinois cancercare Peoria, illinois
outcome: all clear with my next appointment in a week- neuropathy in my feet- gastrointestinal issues from who knows what for sure radiation, chemo, or numerous abdominal surgeries. Overall I’m feeling good and enjoying life and praying NED continues
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Name/Nickname - Hopeful
Name/Nickname - Hopeful/Sandra
Type of Cancer -UPSC
Stage and Grade - 1a, Grade 3
Date of Diagnosis - August 2017
Treatment - Robotic Hysterectomy after having a Hysteroscopy, Chemo 3 rounds of Carbo/Taxol
Where Treated - The James/OSU Medical Center, Columbus, OH
Outcome: Side effects set in after 3rd rounds, since then neuropathy has subsided. NED to date, just had my 3rd three month check-up
Anything Else: Know your body! As soon as I spotted I called my doctor and had an appointment the next day. Waiting is the hardest and not knowing til all results come back. I am fortunate that I have had and continue to have great doctors and medical support where I live. I stay current with information, the support has been wonderful on this site. I joined after I was diagnosed. Really has helped me especially when I was getting ready for my first chemo! All you ladies are the BEST!
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Name or Nickname: Lisa
Name or Nickname: Lisa
Type of Cancer: Endometroid adenocarcinoma
Grade & Stage: Grade 2, Stage 3a (tumor in ovary)
Date of Diagnosis: November 2017
Treatment: Laparoscopic hysterectomy, bilateral oophorectomy, biopsies, 6 lymph nodes (all negative); had a cholecystectomy at the same time. Adjuvant chemotherapy, 6 cycles of paclitaxel and carboplatin, then 25 external radiation treatments. Finished June 2018.
Where Treated: Kaiser Permanente
Outcome: NED from surgery. The usual chemo side effects. I did have the allergic reaction to taxol, but was able to keep getting it. Thrombophlebitis from the carboplatin extravasating once. Still living with diarrhea from the radiation.
Anything Else: The friends we make are the silver lining to this unwelcome diagnosis.
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Name or Nickname: Sandra
Name or Nickname: Sandra
Type of Cancer: Endometrial adenocarcinoma
Grade & Stage: Stage 1a, Grade 2
Date of Diagnosis: May 2014
Treatment: Total Hysterectomy, 6 rounds of Taxol and carboplatin, 3 Brachytherapy
Where Treated: Fairfax, VA
Outcome: NED so far
Anything else: I learned that I am a lot stronger than I thought I was. I also learned that family (whether it is blood or friendship) is key. Everyone in my family including my 2 year old niece and nephew had a part in getting me through treatment.
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We must be closeConnieSW said:Roll call
name: Connie
cancer type: UPSC
grade and stage: 3 1a
dx: March 2012
tx: surgery, chemo, brachytherapy
location: University Of Vermont Medical Center in Burlington, Vt and Plattsburgh, NY
outcome: NED. Mild neuropathy in my toes
anything else: I'm grateful for more time with my family, the lucky fluke that gave me an early dx, and all of you
Hi Connie,
We must be close though I suspect you are on the other side of the lake. I see Cheung Wong in Burlington. I work in Burlington at UVM.
Jayne
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Type of Cancer: Uterine
Name: Jayne
Type of Cancer: Uterine Serous (UPSC)
Grade & Stage: 3 - 3B
Date of Diagnosis: May 1, 2017
Treatment: Surgery, Chemo, Radiation
Where Treated: University of Vermont Medical Center 's Cancer Center
Outcome: NED May 2018
Anything Else: Age: 58.
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Roll Call
Name or Nickname: Takingcontrol58
Type of Cancer: Endometrioid Adenocarcinoma
Grade & Stage: Stage 3b, Grade 3 (had spots on ovaries and small tumor on outer rectum <1 cm.
Cancer advanced to Stage IV two months after surgery (mets on liver, spleen, outer rectum; nodules
on lungs, spleen and outer colon). This was before chemotherapy. Cancer can grow very fast.Date of Diagnosis- October 2014 with D&C; endometrial biopsy in September was partially conclusive
Treatment: Total Hysterectomy and exploratory laparatomy and 6 rounds of Taxol/Carbo.
Added metformin, 45 supplements, lost needed weight, started to exercise every day, eat mostly
organic, eliminated almost all sugar, processed food and alcohol, take one low dose baby aspirin each
day. I used an integrative approach to address all my own health issues as well as targeting the processes
involved in the growth and spread of all cancer (cancer stem cells, angiogenesis, autophagy, inflammation).Where Treated: Lenox Hill Hospital, NYC (hysterectomy); Memorial Sloan Kettering (chemotherapy)
Outcome: In partial remission by March 2015; in total remission by August 2015. Have remained
NED ever since.Anything else - I thank God for my miraculous turnaround and today assist other cancer patients in their journey.
I believe the integrative treatment approach (minimal standard cancer treatment) and alot of complementary
treatment is the only way to heal advanced or metastatic cancer for the long term. You have to work hard at
healing and preventing cancer every day. I am amazed at how my integrative plan has made me healthy and
full of energy."Some people dream of success, while others wake-up and work hard at it." Winston Churchill
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roll call
Name or Nickname: Cindi
Type of Cancer: UPSC
Grade & Stage: 3 / 1A
Date of Diagnosis: 5/2015
Treatment: Surgery, Chemo, Brachytherapy
Where Treated: Moffitt in Tampa for surgery and radiation. Florida Cancer Specialists for chemo
Outcome: Currently NED. I just "graduated" to 6 month check ups!
Anything Else: I have always been a positive person and that served me well going through this journey. I wake up happy and grateful every day. Some residual neuropathy in my hands and feet. Some days they hurt and others days they don't. It isn't bad and was worth it to tip the scales in my favor. We have lost so many of our friends that started this journey about the same time that I did and I have struggled lately accepting that loss. I'm glad to see the support from our new members for each other as well as those that continue to help that have been members for a long time. I'm hopeful that I'll get back to that support role soon! Love and Hugs to All! Cindi
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Name:Janae
Name:Janae
Type of cancer: MMMt stage 2 grade three
After hysterectomy the MMMt wasnt as prevelamt as they thought after biopsy but was srill trested as that type of cancer
When diagmosed: May 2016
Where was treatment: Utah
Treatment: after much discussion and learning, i was treated with 6 rounds of chemo and three bracytherapy treatments.
Oitcome: i have beem NED since then with uterinr cancer. A few months ago i was diagnoced with two spots of skin cancer. I was lucky and just had a couple of proseedures to remove the cancer. Easiest cancer to get.
Any thing else: i have now had 3 cancers and am still hear.c
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I'm here!
I'm Nancy, have grade 3, stage 3III. I was diagnosed in August 2015, had robotic surgery (all out) in Nov of that year. I'm being treated at Methodist Hospital in Omaha Nebraska. After 6 cycles of Taxol/Carbo (or at least tried to do both), I got to stop treatment. My doctor said to take a summer vacation, and I guess I'm still on vacation! He doesn't do scans, or blood work, he said he'll know when/if it comes back by symptoms. I know, it sounds strange and risky to some, but I don't live in fear over false news. I feel fine. My favorite saying that I live by is Crazy Brave, Wicked Strong (thanks to Suzy Toronto)! Hugs
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MrsBerry
MrsBerry
endometrioid adenocarcinoma, grade 1, stage 1a
diagnosed December 2017
treatmenr: surgery
where: Johns Hopkins
outcome: NED
My dear husband received a Dx of prostate cancer one day after my own Dx, so we are walking the cancer path together. My gyn onc assures me there is a very low risk of recurrence, but I had a very low risk of uterine cancer in the first place, and I still got it. While I HATE cancer and all the misery it brings, I am grateful what I have learned through this experience: I learned to ask for and accept help from others. I think I have more compassion, gratitude, acceptance, hopefulness, patience. I am forever grateful for the support, love, hope, and compassion I received on this board, I continue to follow your journeys, and though I may not post much, you are all in my thoughts and prayers each and every day.
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I'm here too
Grateful for this board!
Name or Nickname: Stacey
Type of Cancer: Serous and clear cell histology
Grade & Stage: Stage IV Grade 3
Date of Diagnosis: May 2017
Treatment: Radical Hysterectomy (robotic)
Sandwich Therapy: 3 carbo/taxol, then 52 full abdominal radiation and 3 brachy, then 3 more carbo/taxol
Where Treated: Virginia Beach, VA
Outcome: PET=NED; however, CA125 rising for the last 2 chemo a every month after (total-6)
Anything else: I will be making a decision on July 13th, when I see my doctor for the next port flush and CA125 results. I can't see waiting for a tumor to form.
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Cancers
2009 had undifferentiated small cell uterine carcinoma,a rare and aggressive cancer. Treated with simultaneous radiation and chemo, then surgery, then follow-up chemo. 9 years later, May 2018, now dealing with high risk MDS blood cancer that resulted from the prior treatments which saved my life 9 years ago. It's hard, but I'm hanging in there!
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