Let's do a roll call!

Name: Cathy

Type of Cancer: UPSC

Grade and Stage: Grade 3 and Stage 3a

Date of Dx: 10/14/13

Treatment (Tx): Hyterectomy, Oophorectomy, some lymph nodes removed, pelvic wash 

Where Treated: Melbourne and Vero Beach, FL

Outcome: NED. Have neuropathy in toes and the balls of my feet from Chemo

Anything Else: Don’t waste time worrying as it robs you from living your life fully. Never, ever give up hope!

Cathy

Name or Nickname: Chris

Type of Cancer: Uterine Carcinosarcoma (MMMT)

Grade & Stage: Stage IIIB, Grade 3

Date of Diagnosis: November, 2016

Treatment: I had four cycles of Paclitaxel/Carboplatin, followed by four cycles of lfex/Mesna/Adriamycin. The use of different drugs for "phase 2" was planned from the beginning and not the result of any allergic reactions to the first two drugs. I then had 25 external radiation sessions.

Where Treated: Advocate Lutheran General Hospital, located in Park Ridge, Illinois (a suburb next to Chicago, Illinois).

Outcome: NED per latest CT scan in June 2018. I have very mild neuropathy in my feet. And sadly, my hair, already thinning, grew back even more sparsely.

Anything Else: I'm grateful for the time I've had since my diagnosis without significant problems or recurrence.

Nickname:  Pinky104

Type of Cancer:  UPSC

Grade:  3

Stage IVb

Date of Diagnosis:  March, 2010

Treatment:  Total Hysterectomy, Salpingo-Oopherectomy, Incidental Cholecystectomy (for gallstones) and Appendectomy, Removal of a small amount of cancer from small intestine, Lymph Node Sampling, etc. (no cancer in any lymph nodes sampled).  6 rounds of Carboplatin and Taxol.

Where treated:  Surgery at St. Peter's Hospital, Albany, NY, chemo at Glens Falls Hospital, Glens Falls, NY

Outcome:  A long period of NED

Anything else:  Incisional Hernia repair with mesh, 2012, Glens Falls Hospital, as a complication of my cancer surgery

Recurrence:  March, 2017

Cancer wrapped around the ascending colon, in the peritoneum, paracolic gutter, and the muscle near my right hip.  Found in two lymph nodes.  Intestines found to be growing into the mesh from incisional hernia surgery.  Found by a positive hemoccult test followed up by a colonoscopy.

Treatment:  2 resections of my intestines, one for cancer, and one for the "mess" of my intestines growing into the mesh, surgery to remove as much of the cancer as possible.  All of the cancer in the muscle couldn't be removed without affecting my mobility.  Had chemo again, starting with Carboplatin and Gemzar.  Developed an allergic reaction to Carboplatin the 11th time I had it (2010 and 2017) and was switched to Cisplatin (and Gemzar) for the last round. 

Where treated: Same 2 hospitals as before

Outcome:  NED again

Currently having increased numbness in my thigh again and some bouts of diarrhea occasionally.  Had CA-125 last week, which was up about 4 pts., but still in normal range (just like when I had my recurrence last year).  Waiting for scheduling on CT scan, which should show whether or not cancer has returned again.  Was told I was lucky to be able to be treated the last time since all the cancer grew in the same general area, and most recurrences are more spread out.  Also was told I was very lucky the chemo worked on me.

barnyardgal said:

 

 

Name or Nickname: Veronica

Type of Cancer: Endometrial adenocarcinoma

Grade & Stage: Stage 3a, grade 2

Date of Diagnosis: September 2017

Treatment: 7 rounds of adriamyacin and carboplatin, 25 radiation treatments after hysterectomy

Where Treated: Arlington and Tysons Corner, VA

Outcome: NED so far

Anything Else: I was originally diagnosed with Stage 1, grade 1, but pathology after hysterectomy showed a few cells on one ovary. I was supposed to get 6 rounds of Taxol and carboplatin but I was allergic to the Taxol and desensitization didn't work. So I had the adriamyacin instead. 

We are very close to each other. I am in Falls Church. 

Name Kathy- known as Soup on here

type of cancer: clear cell

Grade and stage: 3C grade 3

Date of diagnosis: August 2015

Treatment: robotic hysterectomy,  5.5 weeks external radiation, 3 internal(brachytherapy ) 6 rounds of carbo taxol chemo

Where treated : Illinois cancercare Peoria, illinois

outcome: all clear with my next appointment in a week- neuropathy in my feet- gastrointestinal issues from who knows what for sure radiation, chemo, or numerous abdominal surgeries. Overall I’m feeling good and enjoying life and praying NED continues

Name or Nickname: Lisa

Type of Cancer: Endometroid adenocarcinoma

Grade & Stage: Grade 2, Stage 3a (tumor in ovary)

Date of Diagnosis: November 2017

Treatment: Laparoscopic hysterectomy, bilateral oophorectomy, biopsies, 6 lymph nodes (all negative); had a cholecystectomy at the same time. Adjuvant chemotherapy, 6 cycles of paclitaxel and carboplatin, then 25 external radiation treatments. Finished June 2018.

Where Treated: Kaiser Permanente

Outcome: NED from surgery. The usual chemo side effects. I did have the allergic reaction to taxol, but was able to keep getting it. Thrombophlebitis from the carboplatin extravasating once. Still living with diarrhea from the radiation.

Anything Else: The friends we make are the silver lining to this unwelcome diagnosis.

ConnieSW said:

Roll call

name:  Connie

cancer type:  UPSC

grade and stage: 3   1a

dx:  March 2012

tx:  surgery, chemo, brachytherapy

location:  University Of Vermont Medical Center in Burlington, Vt and Plattsburgh, NY

outcome:  NED.  Mild neuropathy in my toes  

anything else:  I'm grateful for more time with my family, the lucky fluke that gave me an early dx, and all of you

Hi Connie,

We must be close though I suspect you are on the other side of the lake. I see Cheung Wong in Burlington. I work in Burlington at UVM.

Jayne

Name or Nickname:  Takingcontrol58

Type of Cancer:  Endometrioid Adenocarcinoma

Grade & Stage:  Stage 3b, Grade 3 (had spots on ovaries and small tumor on outer rectum <1 cm.
Cancer advanced to Stage IV two months after surgery (mets on liver, spleen, outer rectum; nodules
on lungs, spleen and outer colon). This was before chemotherapy. Cancer can grow very fast.

Date of Diagnosis- October 2014 with D&C; endometrial biopsy in September was partially conclusive

Treatment:  Total Hysterectomy and exploratory laparatomy and 6 rounds of Taxol/Carbo.
Added metformin, 45 supplements, lost needed weight, started to exercise every day, eat mostly
organic, eliminated almost all sugar, processed food and alcohol, take one low dose baby aspirin each
day. I used an integrative approach to address all my own health issues as well as targeting the processes
involved in the growth and spread of all cancer (cancer stem cells, angiogenesis, autophagy, inflammation).

Where Treated:  Lenox Hill Hospital, NYC (hysterectomy); Memorial Sloan Kettering (chemotherapy)

Outcome:  In partial remission by March 2015; in total remission by August 2015. Have remained 
NED ever since.

Anything else - I thank God for my miraculous turnaround and today assist other cancer patients in their journey.
I believe the integrative treatment approach (minimal standard cancer treatment) and alot of complementary
treatment is the only way to heal advanced or metastatic cancer for the long term.   You have to work hard at
healing and preventing cancer every day. I am amazed at how my integrative plan has made me healthy and
full of energy.

"Some people dream of success, while others wake-up and work hard at it."  Winston Churchill

Name:Janae

Type of cancer: MMMt stage 2 grade three

After hysterectomy the MMMt wasnt as prevelamt as they thought after biopsy but was srill trested as that type of cancer

When diagmosed: May 2016

Where was treatment: Utah

Treatment: after much discussion and learning, i was treated with 6 rounds of chemo and three bracytherapy treatments. 

Oitcome: i have beem NED since then with uterinr cancer. A few months ago i was diagnoced with two spots of skin cancer. I was lucky and just had a couple of proseedures to remove the cancer. Easiest cancer to get. 

Any thing else: i have now had 3 cancers and am still hear.c

MrsBerry

endometrioid adenocarcinoma, grade 1, stage 1a

diagnosed December 2017

treatmenr: surgery

where: Johns Hopkins

outcome: NED

My dear husband received a Dx of prostate cancer one day after my own Dx, so we are walking the cancer path together.  My gyn onc assures me there is a very low risk of recurrence, but I had a very low risk of uterine cancer in the first place, and I still got it. While I HATE cancer and all the misery it brings, I am grateful what I have learned through this experience: I learned to ask for and accept help from others. I think I have more compassion, gratitude, acceptance, hopefulness, patience. I  am forever grateful for the support, love, hope, and compassion I received on this board, I continue to follow your journeys, and though I may not post much, you are all in my thoughts and prayers each and every day.