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1 year NED
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Jun 26, 2018 - 10:51 pm
On June 20th I celebrated 1 year NED! My birthday is the 30th and I am so thankful to have it every year now. I go every 3 months for exams and blood work, and have had no problems at all. I am so thankful and so blessed! I just want to encourage others that get diagnosed to know, there is hope! (just a brief synopsis..I had stage 3 endometriod adenocarcinoma, had a complete abdominal hysterectomy Dec 22, 2016, 6 rounds of chemo and 3 brachy theraphy radiation treatments, finishing June 20th, 2017). Keep the faith, take one day at a time, be thankful for each day. Life is precious. |
Joined: Jun 2018
Hi Cass
I will have surgery next week, with endometrioid adenocarcinoma grade 2 so far.
I am happy for your 1 year NED.
Can I ask you If your cancer was in any lymph nodes?
Have a great day
Joined: Feb 2017
just 1
They found it in 1 lymph node so removed that one, then took out 7 more and all 7 were clear. Anything else I can help you with, feel free to send me a message too :)
Joined: Jun 2018
Thank you
for your answer and I am happy for your 1st year NED
Joined: Aug 2018
Hi Cass! I’m new to this but
Hi Cass! I’m new to this but so happy to hear your
good news. I was dx with stage 1a/grade 3 uterine
cancer. I’m to have 3 rounds of vaginal brachytherapy.
Can you please tell me your experience with your radiation.
All the side effects I’ve been reading about are scaring me.
Would appreciate any other members thoughts as well. Thank
you for bringing good news and encouragement to us.
Joined: Dec 2017
I had upsc stage 1a and
I had upsc stage 1a and recieved Brachytherap. There was some scarring that was a little painful when aggravated.... for about 3 months. It is much better now. The procedure was easy for me. I had no discomfort. That is my experience. Not sure if others were different.
Joined: Aug 2018
Thank you for your reply! Can
Thank you for your reply! Can i ask if you had vaginal or pelvic brachytherapy?
Joined: Dec 2017
It was vaginal. They wanted
It was vaginal. They wanted to save the pelvic radiation in case of recurrence. I am from Canada and am not sure if the protocol is different in the states. They changed things 2 days before I was to start the pelvic radiation.
Joined: Aug 2018
Thank you! So happy you’re
Thank you! So happy you’re doing well.
Joined: Feb 2017
side affects
Hi Doo57, so sorry you have to join the group, but we are here to help however we can! The radiation was the part I looked forward to the least, but ended up being easy on me. I had no side affects. When I go for my 3 month exams there is some scarring, which is normal, but it doesn't cause me any pain. I am very thankful that anything I read about, I didn't have happen. Don't read too much was something a friend told me, and it helped too :) Anything else I can do for you, just let me know! (I like to pray for others!)
Joined: Aug 2018
Thanks so much Cass! Trying
Thanks so much Cass! Trying not to read too much. i so beliece in the power of prayer, so your orayers would be bery appreciated. You are all such inspirations to me. I like to pray too so will keep you in my prayers as well.
Joined: Feb 2017
thanks!
Hope you are doing well! Prayer changes things. Keep the faith :)
Joined: Dec 2017
Congratulations, Cass! That
Congratulations, Cass! That is such wonderful news!
Joined: Feb 2017
thanks!
Thank you!
Joined: Feb 2018
Blessings!
This is such wonderful news, and a real encouragement to me - I'm right behind you! Diagnosed with Stage III in April after hysterectomy, upstaged to IV in May after second opinion, chemo June 19-Oct 2, no radiation. You go, girl!!
Joined: Feb 2017
thanks!
Thank you, and I look forward to seeing your post for your 1 year too!
Joined: Jun 2012
NED
Heres to your first year. And may we meet here to celebrate many more.
Joined: Feb 2017
thanks!
Thank you!
Joined: Jan 2016
Congrats Cass! Celebrate:)
Congrats Cass! Celebrate:)
Joined: Feb 2017
thank you!
Thank you, I will :)
Joined: Jan 2018
Congratulations!! So good to
Congratulations!! So good to hear encouraging news!
I was diagnosed 4B in Dec 2017. Started 6 round of chemo in Jan 2018. After a couple of delays on round 6 I finally finished. Follow up CT scan showed NED. Oncologist scheduled a laparascopic hysterectomy June 22nd. Results still showed no evidence of disiease. Can't wait for my one year mark!
Joined: Feb 2018
JBird
Jbird, you had chemo before surgery? Bless! I bet that was hard. How did they know you were IVB before surgery?
Joined: Dec 2017
I'm not JBird, but
In my case, the radiologist found a number of suspicious nodules on the peritoneum and omentum via CT scan. Later, the surgical pathology report did find some cancer on the omentum sample.
Of course, suspicious CT and PET scans do not mean trouble 100% of the time, but it does alert the onco to really pay close attention to those particular areas, and often, treatment proceeds as if the initial opinion (or guess!) is indeed the stage. Because of that CT scan (and. of course, the biopsy that followed), I underwent neoadjuvant treatment ... the initial three CT scans before surgery, and five later. The purpose of the initial three scans was to shrink or eliminate the nodules as much as possible before surgery.
Joined: Nov 2017
1 year NED
Congratulations Cass. That is fantastic and gives me great hope! Thanks for sharing your good news. Now go celebrate!!!!
Joined: Feb 2017
thanks!
Glad to hear it helps give hope to someone, that was my intention :) Thanks!
Joined: Jan 2016
Congratulations!
Being NED is a great place to be.
Takingcontrol58
Joined: Feb 2017
indeed
Indeed it is!
Joined: May 2016
Celebrate that one
Celebrate that one
Joined: Oct 2017
Congratulations on this great
Congratulations on this great milestone, Cass. Wishing you many years of NED.
Joined: Feb 2017
thank you
Thank you so much!
Joined: Aug 2017
Yaaaaaaay!
Congratulations Cass! Thanks for sharing your journey and joy with us. It's GREAT to hear such good news. I hope you have many more years with NED!
Joined: Feb 2017
Thank you!
Thank you very much! Btw, years ago when I used irc, my nickname was Harmony :)
Joined: Oct 2017
Congratulations!!
Congratulations!!
Joined: Feb 2017
thank you!
Thank you!
Joined: May 2017
Love good news!
That is so fantastic!
Best,
Jayne
Joined: Jul 2017
Congratulations on your 1
Congratulations on your 1 year NED with many more NED's to follow.
Joined: Feb 2017
thank you!
Thank you!
Joined: Feb 2016
Congratulations
Same as hopeful56, many more to come.
Joined: Feb 2017
thank you!
Thanks!
Joined: Dec 2017
Great news! Another milestone
Great news! Another milestone under your belt so to speak..
Joined: Oct 2015
I love hearing good news!!
I love hearing good news!! Celebrate this milestone and here's to many, many more to come!
Love,
Eldri
Joined: Feb 2017
thank you!
Thank you!
Joined: Feb 2018
HBD
Happy Birthday, Cass! MANY more!!
Joined: Feb 2017
Thank you!
Thank you very much!
Joined: Feb 2014
Congratulations, Cass!
NED has a nice ring to it, doesn’t it? I am happy for you and glad to hear such good news. Happy Birthday, too! I hope you had a wonderful time on your special day.
Cathy
Joined: Feb 2017
thank you
It sure does, and thank you, I had a wonderful day!
Joined: Jun 2015
Congrats Cass! So happy to
Congrats Cass! So happy to share your great news!
Love and Hugs,
Cindi
Joined: Feb 2017
thank you
Thanks so much!
Joined: Apr 2018
Congra
Congratulation and happy cass!!,
Congratulation, go celebrate girl.I also took my second chemo to day and the last will be one on July 23rd. Hoping to get NED result after that, mine was grade 1A.
I am glad to join you ladies, you have been very helpful to me and to all others. My prayer is with the rest of you who haven't heard anything yet.
sissa
Joined: Feb 2017
thanks!
Thank you! I hope all goes well for you too!
Joined: Mar 2016
congrats!
So great to hear! Keep going with hope in your heart. I was stage 3 and now am 3 years out. Nothing is certain in this life, but keep the faith.
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