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1 year NED

Cass83's picture
Cass83
Posts: 151
Joined: Feb 2017
Jun 26, 2018 - 10:51 pm

On June 20th I celebrated 1 year NED! My birthday is the 30th and I am so thankful to have it every year now. I go every 3 months for exams and blood work, and have had no problems at all. I am so thankful and so blessed! I just want to encourage others that get diagnosed to know, there is hope! (just a brief synopsis..I had stage 3 endometriod adenocarcinoma, had a complete abdominal hysterectomy Dec 22, 2016, 6 rounds of chemo and 3 brachy theraphy radiation treatments, finishing June 20th, 2017). Keep the faith, take one day at a time, be thankful for each day. Life is precious.
pato58's picture
pato58
Posts: 120
 Joined: Jun 2018
Jun 27, 2018 - 1:38 am

I will have surgery next week, with endometrioid adenocarcinoma grade 2 so far.
I am happy for your 1 year NED. 
Can I ask you If your cancer was in any lymph nodes?
Have a great day
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:50 pm

They found it in 1 lymph node so removed that one, then took out 7 more and all 7 were clear. Anything else I can help you with, feel free to send me a message too :)
pato58's picture
pato58
Posts: 120
 Joined: Jun 2018
Jul 10, 2018 - 3:01 am

for your answer and I am happy for your 1st year NED Laughing
Doo57
Posts: 9
 Joined: Aug 2018
Aug 01, 2018 - 4:45 pm

Hi Cass!  I’m new to this but so happy to hear your

good news. I was dx with stage 1a/grade 3 uterine

cancer.  I’m to have 3 rounds of vaginal brachytherapy.

Can you please tell me your experience with your radiation.

All the side effects I’ve been reading about are scaring me. 

Would appreciate any other members thoughts as well.  Thank 

you for bringing good news and encouragement to us. 

 

 

 
Wannabeatit
Posts: 98
 Joined: Dec 2017
Aug 01, 2018 - 10:39 pm

I had upsc stage 1a and recieved Brachytherap. There was some scarring that was a little painful when aggravated.... for about 3 months. It is much better now. The procedure was easy for me. I had no discomfort. That is my experience. Not sure if others were different.
Doo57
Posts: 9
 Joined: Aug 2018
Aug 02, 2018 - 10:04 am

Thank you for your reply! Can i ask if you had vaginal or pelvic brachytherapy?
Wannabeatit
Posts: 98
 Joined: Dec 2017
Aug 03, 2018 - 11:58 pm

It was vaginal. They wanted to save the pelvic radiation in case of recurrence. I am from Canada and am not sure if the protocol is different in the states. They changed things 2 days before I was to start the pelvic radiation.
Doo57
Posts: 9
 Joined: Aug 2018
Aug 09, 2018 - 3:51 pm

Thank you! So happy you’re doing well. 
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Aug 08, 2018 - 4:14 pm

Hi Doo57, so sorry you have to join the group, but we are here to help however we can! The radiation was the part I looked forward to the least, but ended up being easy on me. I had no side affects. When I go for my 3 month exams there is some scarring, which is normal, but it doesn't cause me any pain. I am very thankful that anything I read about, I didn't have happen. Don't read too much was something a friend told me, and it helped too :) Anything else I can do for you, just let me know! (I like to pray for others!)
Doo57
Posts: 9
 Joined: Aug 2018
Aug 09, 2018 - 3:47 pm

Thanks so much Cass! Trying not to read too much.  i so beliece in the power of prayer, so your orayers would be bery appreciated.  You are all such inspirations to me.  I like to pray too so will keep you in my prayers as well. 
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Aug 27, 2018 - 3:25 pm

Hope you are doing well! Prayer changes things. Keep the faith :)
MrsBerry
Posts: 102
 Joined: Dec 2017
Jun 27, 2018 - 9:08 am

Congratulations, Cass! That is such wonderful news!
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:52 pm

Thank you!
Armywife's picture
Armywife
Posts: 452
 Joined: Feb 2018
Jun 27, 2018 - 9:33 am

This is such wonderful news, and a real encouragement to me - I'm right behind you!  Diagnosed with Stage III in April after hysterectomy, upstaged to IV in May after second opinion, chemo June 19-Oct 2, no radiation.  You go, girl!!
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:51 pm

Thank you, and I look forward to seeing your post for your 1 year too!
ConnieSW
Posts: 1553
 Joined: Jun 2012
Jun 27, 2018 - 12:32 pm

Heres to your first year. And may we meet here to celebrate many more. 
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:52 pm

Thank you!
Soup52's picture
Soup52
Posts: 906
 Joined: Jan 2016
Jun 27, 2018 - 1:44 pm

Congrats Cass! Celebrate:)
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:53 pm

Thank  you, I will :)
Jbird118
Posts: 3
 Joined: Jan 2018
Jun 27, 2018 - 2:03 pm

Congratulations!! So good to hear encouraging news!

I was diagnosed 4B in Dec 2017. Started 6 round of chemo in Jan 2018. After a couple of delays on round 6 I finally finished. Follow up CT scan showed NED.  Oncologist scheduled a laparascopic hysterectomy June 22nd. Results still showed no evidence of disiease. Can't wait for my one year mark!
Armywife's picture
Armywife
Posts: 452
 Joined: Feb 2018
Jun 27, 2018 - 8:19 pm

Jbird, you had chemo before surgery?  Bless!  I bet that was hard.  How did they know you were IVB before surgery?  
evolo58
Posts: 293
 Joined: Dec 2017
Aug 05, 2018 - 6:35 am

In my case, the radiologist found a number of suspicious nodules on the peritoneum and omentum via CT scan. Later, the surgical pathology report did find some cancer on the omentum sample. 

Of course, suspicious CT and PET scans do not mean trouble 100% of the time, but it does alert the onco to really pay close attention to those particular areas, and often, treatment proceeds as if the initial opinion (or guess!) is indeed the stage. Because of that CT scan (and. of course, the biopsy that followed), I underwent neoadjuvant treatment ... the initial three CT scans before surgery, and five later. The purpose of the initial three scans was to shrink or eliminate the nodules as much as possible before surgery.
jodil
Posts: 42
 Joined: Nov 2017
Jun 27, 2018 - 5:16 pm

Congratulations Cass. That is fantastic and gives me great hope! Thanks for sharing your good news. Now go celebrate!!!!
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:54 pm

Glad to hear it helps give hope to someone, that was my intention :) Thanks!
takingcontrol58
Posts: 263
 Joined: Jan 2016
Jun 27, 2018 - 8:10 pm

Being NED is a great place to be.

Takingcontrol58
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:54 pm

Indeed it is!
janaes
Posts: 800
 Joined: May 2016
Jun 27, 2018 - 9:31 pm

Celebrate that one
SF73
Posts: 307
 Joined: Oct 2017
Jun 28, 2018 - 5:21 am

Congratulations on this great milestone, Cass. Wishing you many years of NED. 
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:55 pm

Thank you so much!
Harmony09's picture
Harmony09
Posts: 79
 Joined: Aug 2017
Jun 28, 2018 - 1:07 pm

Congratulations Cass! Thanks for sharing your journey and joy with us. It's GREAT to hear such good news. I hope you have many more years with NED!
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:56 pm

Thank you very much! Btw, years ago when I used irc, my nickname was Harmony :)
barnyardgal
Posts: 273
 Joined: Oct 2017
Jun 28, 2018 - 1:23 pm

Congratulations!! 
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:57 pm

Thank you!
Jairoldi's picture
Jairoldi
Posts: 221
 Joined: May 2017
Jun 28, 2018 - 3:39 pm

That is so fantastic!

Best,

Jayne
hopeful56's picture
hopeful56
Posts: 73
 Joined: Jul 2017
Jun 28, 2018 - 6:10 pm

Congratulations on your 1 year NED with many more NED's to follow.
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:57 pm

Thank you!
Jacjac2's picture
Jacjac2
Posts: 44
 Joined: Feb 2016
Jun 28, 2018 - 6:46 pm

Same as hopeful56, many more to come.
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jun 28, 2018 - 10:58 pm

Thanks!
Wannabeatit
Posts: 98
 Joined: Dec 2017
Jun 28, 2018 - 11:11 pm

Great news! Another milestone under your belt so to speak..
EZLiving66's picture
EZLiving66
Posts: 1475
 Joined: Oct 2015
Jun 29, 2018 - 3:13 pm

I love hearing good news!!  Celebrate this milestone and here's to many, many more to come!

Love,

Eldri
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jul 10, 2018 - 10:04 pm

Thank you!
Armywife's picture
Armywife
Posts: 452
 Joined: Feb 2018
Jul 01, 2018 - 12:57 am

Happy Birthday, Cass!  MANY more!!
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jul 10, 2018 - 10:04 pm

Thank you very much!
Abbycat2's picture
Abbycat2
Posts: 644
 Joined: Feb 2014
Jul 02, 2018 - 4:49 pm

NED has a nice ring to it, doesn’t it?  I am happy for you and glad to hear such good news. Happy Birthday, too! I hope you had a wonderful time on your special day.

Cathy

 
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jul 10, 2018 - 10:05 pm

It sure does, and thank you, I had a wonderful day!
TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1774
 Joined: Jun 2015
Jul 02, 2018 - 5:12 pm

Congrats Cass! So happy to share your great news!

Love and Hugs,

Cindi
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jul 10, 2018 - 10:07 pm

Thanks so much!
sissa60
Posts: 27
 Joined: Apr 2018
Jul 02, 2018 - 10:48 pm

Congratulation and happy cass!!,

Congratulation, go celebrate girl.I also took my second chemo to day and the last will be one on July 23rd. Hoping to get NED result after that, mine was grade 1A. 

 

 

I am glad to join you ladies, you have been very helpful to me and to all others. My prayer is with the rest of you who haven't heard anything yet.

 sissa
Cass83's picture
Cass83
Posts: 151
 Joined: Feb 2017
Jul 10, 2018 - 10:11 pm

Thank you! I hope all goes well for you too!
christine8822
Posts: 41
 Joined: Mar 2016
Jul 06, 2018 - 2:07 pm

So great to hear! Keep going with hope in your heart. I was stage 3 and now am 3 years out. Nothing is certain in this life, but keep the faith.

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