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Back in touch saintmont

saintmont
Posts: 63
Joined: Feb 2013

Hi Everyone, Just a catch on what has being going on. The news is after 6 1\2 Years I am in remission. I had surgery on the 9\5\18 in Melbourne (Australia) the took the last of my RCC in the neck out ( yah) and everything is all clear.

A review of the last 6 1\2 years. 2011 radical nephrectory 2 large tumours on the right (10:5x9x7 and 11x8x7)

2012 mutiple lung mets- start Affinitor- Sutent Drug trail

2013 Start Votrient small inprovement after 18 months Mets started to grow

2014 Mid Year start Sutent small improvement then started to grow

2015 December start Opdivo clear Lung Mets up in 6 months but 1 met in neck  starts to grow it had been there since 2013. I have just completed no 64 infusion of Opdivo.

2018 May neck rcc removed.

Thank you everyone for your support

Regards saintmont

 

 

JerzyGrrl's picture
JerzyGrrl
Posts: 757
Joined: Jun 2016

Realizing it's just a brief synopsis and you've been through a whole lot. So glad you took the time to let us know how things are going and share the latest good news. Woot!

Manufred's picture
Manufred
Posts: 218
Joined: May 2017

Good work there.  You seem to have tried the lot,  which may be the way of the future forcancer treatment.  Keep going till you find one that works for you.

Interesting that the neck-met did not get eaten up by the Nivo.  Have you got pathology on that little monster?

Stay well, Fred

JoeyZ's picture
JoeyZ
Posts: 191
Joined: Mar 2018

Wow! You are a trooper for sure. SO glad you've gotten rid of all those beasts! I hope it stays that way.

stub1969's picture
stub1969
Posts: 766
Joined: Jul 2016

Saint--your post brings a lot of hope.  As you know, when we are first diagnosed--that's one of the most important things we can give.  Thank you for doing this!

Stub

saintmont
Posts: 63
Joined: Feb 2013

Hi Everyone, pathology on my neck RCC show all removed (yah), but also showed opdivo was still working on the RCC trying to quell the beast. I was lucky, without being on Opdivo I would not of being in such a good place. I am 4 weeks post op doing my exercises to improve neck movement. I will be back to work in 2 weeks, back to playing golf  ( down to 12 handicap my lowest handicap ever) and weights at the start of August.

Regards saintmont

 

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