CSN Login
Members Online: 9

You are here

Post RP and SRT journey - January 2021 update

hewhositsoncushions
Posts: 378
Joined: Mar 2017

Hi all

I thought I would start a fresh thread as things have changed dramatically.

My PSA has rised to 0.24 and I have now started HT (casodex with two three monthly injections of Triptorelin).

Back story.

PSA rose to 4.0 early last year.

Biopsy suggested G7 (4+3).

RP surgery (bilateral nerve sparing) confirmed the Gleason with staging marked as T2c, with 3% of organ marked as tumour.

PSA rose to 0.17 at the end of Feb and 0.24 at end of March. Total 7 months

Aww crap.

Saw the onco on Tuesday.

Quite direct, told me straight out I was going on HT (6 months) and RT (months 4 and 5).

Flatly refused to discuss PSADT / nomograms / outcomes / forecasts on the grounds that "every case is different". Basically "we will treat you and respond / react / change treatment according to your blood tests as and when". Told me no scans as it would be too small to detect and could never tell if local of spread. I worry that he is pessimistic but won't let on because my records note my anxiety.

Got given all the info about side effects which I already knew.

Basically I feel on a conveyor belt now.

Unfortunately I am a high functioning pessimist at the moment so I have written myself off given the early (ish) relapse and the (relatively short) PSADT.

I need someone to shout at me and tell me to stop being a worrier and get on with it.

Cushions

hewhositsoncushions
Posts: 378
Joined: Mar 2017

Sqeaky bum time again.

Gave blood on Monday - results next Tuesday.

Been an awful stressful year with COVID, losing my mum and unemployment. Hope I at least get good numbers!

Josephg
Posts: 256
Joined: Jan 2013

I wish you the best of low numbers, Hew.

The same goes for me, as I have both a blood draw and a PET scan this coming Monday.  I hope that my PSA number is low, and that the PET scan actually finds something that can be attacked and killed.

hewhositsoncushions
Posts: 378
Joined: Mar 2017

Cross fingers for both os us for this and for all you guys over there in this current crazy time.

Georges Calvez
Posts: 491
Joined: Sep 2018

Hello you two*,

Don't worry Hew, you will be fine.
Your recurrence was not serious and it was treated very early so the likelihood is that it is all gone.
I have developed a short term attitude to life, I just get on with it from day to day.
With my initial diagnosis I could be very ill, on extended ADT or even dead by now but I am not.
So happy days and pour the gin and tonic.
Current bad news is that the wife has started drinking my beer and the cat was licking the top of the bottle last night.
The good news is that we are moving to the country, I am hoping that the cat will transfer some of its toilet activities from the litter box to the garden.
I am planning on a good plot of perennials with bare earth in between that she can use for cat relief and add some fertiliser as well.

Best wishes,

Georges

* I have never heard anyone use this is outside The Archers where it is a frequent script device

VascodaGama's picture
VascodaGama
Posts: 3296
Joined: Nov 2010

Sorry to hear about the lost of your mum. I hope you get a PSA result that pleases you. In any case, the PSA never maintains exactly the same level if the result is above the assay's LLD. It may fluctuate with no particular meaning in tests done in short term intervals. You would need three constant increases to get a meaning.

Let's be careful with the Covid issue. Yesterday there were more than 10,000 positive cases confirmed in Portugal (a record) where testing is done in lower numbers. UK also reports a high number of newer daily cases. Let's protect our homes from possible invasion by the virus.

Best,

VGama

hewhositsoncushions
Posts: 378
Joined: Mar 2017

Hi chaps

It's been hard to have the devil maycare attitude as I have had a lot happen to me in 2020 but I am trying take it one day at a time. The hardest thing is not having a job during a recession and pandemic and feeling like like I am leeching off my wonderful wife who has her job. That plus I hate the career and industry I am in with a passion. I think I may become a street sweeper just to keep away from paperwork and pressure.

Sadly I am off the booze although I may break that rule on the 20th Innocent

Stay safe!

Georges Calvez
Posts: 491
Joined: Sep 2018

Hi Hew,

Things can get a bit grim round here as well.
I try not to think about the long term prospects for myself. I had a pretty serious but very localised cancer. I may be cured but the balance of probabilities must be that I will have a recurrence. There may be long term effects from the surgery and radiation that may range from incontinence to all sorts of nasties.
So these are all things to keep in the dark hole of my mind.
My wife is not as fit as me, before I was ill I found looking after everything quite easy, now I have the after effects of my own illness to support as well.
On the brighter side we have a rate of 40 cases of COVID-19 per 100,000 people every seven days in our area, this compares well with the rate for all of France which is around 280 cases per 100,000 every seven days, needless to say there are black spots in the low thousands.
But the French are rolling out the vaccination program at a snail's pace of thousands per week, they have no sense of urgency at all, and the rate of COVID-19 is climbing slowly but inexorably with the idiots that supposedly govern the place resigned to a third lockdown with all that will entail.
Bloody amphibians; they think they are scientists and statesmen like Dalton and Napoleon when in reality they are drunken scribblers like Rabelais or worse.

Happy New Year,

Georges

hewhositsoncushions
Posts: 378
Joined: Mar 2017

Feb 2019: 0.07

Jul 2019: 0.05

Nov 2019: 0.09

Feb 2020: 0.09

May 2020: 0.05

August 2020: 0.06

Jan 2021: 0.07

Next check 4 months, new machine coming in with undetectable < 0.025 instead of < 0.04.

Slightly unsettled.

Georges Calvez
Posts: 491
Joined: Sep 2018

Hi Hew,

I would not sweat myself about that, really it is not doing anything for the moment, it is probably machine rattle.
Give the wife a cuddle and try not to think about it.
PSA results are machine and analysis technique dependent, so it may change a little for good or ill with the next analysis.

Best wishes,

Georges

VascodaGama's picture
VascodaGama
Posts: 3296
Joined: Nov 2010

Cushions, 

Congratulations on the continuous remission.  I believe the result gave you some peace of mind.

Let's celebrate it.

VG Tongue Out

 

Old Salt
Posts: 772
Joined: Aug 2014

that those PSA data are just noisy and do not signify a trend.

Time to relax...

hewhositsoncushions
Posts: 378
Joined: Mar 2017

Thanks folks. Was rather ill before Xmas and my confidence took a hell of a hit. I shall proceed as if I had a pair :)

hewhositsoncushions
Posts: 378
Joined: Mar 2017

My nurse was fine with a longer test gap but offered four months as I am a wuss. Do you think six months is safe as a test gap now?

Georges Calvez
Posts: 491
Joined: Sep 2018

Hi Cushions,

I would go with what you are comfortable with.
If it does not do anything in three months or four months then it will not do anything more in six months or twelve months.
It could recur but it is fairly unlikely, the chance of recurrence is something we all have to live with.
Watching it more intently will not make it not recur or vice versa.
Make yourself a nice cup of tea, light a candle, count your blessings.

Best wishes,

Georges

Pages

Subscribe to Comments for " Post RP and SRT journey - January 2021 update"