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I have some pretty good news, finally

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I wish it was "I'm NED" but it's not. I went to my onc today and we've decided that I'm going to wait until the CT scan is done before I go back on the chemo. So not until June. Yay, because my skin is really giving me grief still and I haven't been on it for three weeks. My CEA before just the two treatments was 52. Now it's down to 15. This chemo really works for me!

And, she told me today that when she first saw me she thought my cancer was more aggressive than it is. In a year I had three mets show up and they got to be about the size of peas pretty quickly, one got to be the size of a large marble. But since then they seem to not be very interested in growing. They grow very slowly. When she first met me she said she figured I'd have 9 to 10 years left. Which was pretty okay. Now she says she thinks I have quite a bit longer if the mets continue to grow so slowly.

And I feel good! I'm finally feeling almost normal. I'm so happy!

Jan

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

About time you caught a bit of a break. Ron.

Trubrit's picture
Trubrit
Posts: 4997
Joined: Jan 2013

but this news definitely deserves a

So happy for you. 

Tru

Tunadog's picture
Tunadog
Posts: 235
Joined: Mar 2017

Cool  Glad to hear your good news!

SandiaBuddy's picture
SandiaBuddy
Posts: 982
Joined: Apr 2017

Congratulations, Jan.  

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

Happy for you!

 

Grace/lizard44

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thanks everyone! And I got the dancing man, yay! I feel like I have a big, dark cloud over me all the time but right now I feel like it's moved aside for a while. I'm SO happy to not get so tired and to be able to do things on my own and have some energy. I might even ride my horse this weekend, which is something I haven't done since September. I feel like going outside and just standing there laughing with my face to the sky, it's such a relief. 

Hugs!

Jan

Ruthmomto4's picture
Ruthmomto4
Posts: 641
Joined: May 2013

i am so happy to hear things are going well for you and you are feeling well. Best news really!!! I am so happy for you, no one deserves a break and a good spell more than you do!

Canadian Sandy's picture
Canadian Sandy
Posts: 544
Joined: Jul 2016

Congratulations Jan! Happy Dancing!

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Every day is a gift. Let us all receive each day with great appreciation and let us LIVE and CELEBRATE and REJOICE.

Love and Light to you my friend.

(((Hugs)))

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

So happy for you!

beaumontdave's picture
beaumontdave
Posts: 1015
Joined: Aug 2013

That's terriffic Jan, some hopeful, positive words and a break! Ride On!........................................Dave

lhduffer
Posts: 76
Joined: Oct 2015

Such great news!  Congratulations!

Kazenmax's picture
Kazenmax
Posts: 392
Joined: Feb 2016

I'm so glad to hear this. What a trooper you are! You stuck through this and now it's finally getting better. It's encouraging to me to see you fight so hard and win. 

You inspire me.

Thanks

K

Cindy225's picture
Cindy225
Posts: 172
Joined: Feb 2017

Jan - Enjoy your energy, horse, family and the world around you! What wonderful news....

Cindy 

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Woohoo! So glad to hear you're getting a break and this is a wonderful news. Each day is a gift and we have to enjoy it day by day! 

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thank you all! I'm almost in tears from reading your responses. I'm just so happy right now. My scalp has healed up enough for me to be able to colour my gray hairs, too, so that'll be nice and make me feel better. Cancer is such a roller coaster ride. 

Jan 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Good to her. Good news is always great here.

SophDan2's picture
SophDan2
Posts: 141
Joined: Jul 2017

Hi Jan,

 

I have not been on this site for quite awhile, so it was great that the first post I read was yours. So glad to hear you say that you are feeling normal again.

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Best news all day. So happy for you, Jan. Enjoy this beautiful news and your time away from chemo.  --Beth

Annabelle41415's picture
Annabelle41415
Posts: 6342
Joined: Feb 2009

That is always good news to have it not growing fast.  It sounds like you have some things to celebrate here.  Take this break of tests and treatment for awhile and just embrace every aspect of being away from it.  Praying for continued success in this treatment and hoping for continued shrinkage.

Hugs!  Kim

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thank you all for the support! I have another bit of good news. I can eat chili! I've been avoiding beans because they're a no-no on the low residue diet but I started thinking that the wskins are pretty much dessicated in the cooking process of mkaing chili. So I made some a few days ago and have been eating it a few times and have had no blockage. Yay! I was actually at one point standing there stirring the chili and asking out loud 'are you going to put me in the hospital?' Now if I could just eat corn on the cob this summer but I can't.

Hugs,

Jan

Tunadog's picture
Tunadog
Posts: 235
Joined: Mar 2017

I’ve avoided Chili with beans, worried about flatulence filling my bag with gas.

I love Chili, my wife has been making it without beans and it’s very good. I used to enter Chili Cookoffs and no beans allowed.

I’m glad you’re back to it. I’m seeing a pain doctor on Tuesday, the pain in my butt has been limiting the time I can spend in a car.

Good Luck with your time off.

abita's picture
abita
Posts: 711
Joined: Dec 2017

I am so happy for you! That is fantastic news!

Annabelle41415's picture
Annabelle41415
Posts: 6342
Joined: Feb 2009

Isn't it terrible that you have to think about what you eat if it will send you to the hospital.  I'm glad you are enjoying your chili.  The more you chew the more it breaks down.  Yes, corn on the cob would be hard to not eat, along with my popcorn.  Enjoy the chili.

Kim

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Oh Kim, I LOVE popcorn. It's been so hard giving it up. It's always been my 'go to' snack and has been a meal many times.

Jan

Annabelle41415's picture
Annabelle41415
Posts: 6342
Joined: Feb 2009

If you get the popcorn puffs that seems to satisfy the craving for it.  It's not the same but helped me.  I'm not sure if it is popcorn without the kernels but it's pretty good stuff too.

Kim

Slow-runner
Posts: 54
Joined: Oct 2017

I don't post much, but follow your story.  I am soooo happy to hear your good news.  It gives me much hope for my husband.  Thank you so much for posting. Mary

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thank you! I'm beyond thrilled! 

Jan

Pamcakes
Posts: 92
Joined: Jan 2018

So happy to hear your good news!!! Enjoy that chili!!!

PamRav's picture
PamRav
Posts: 264
Joined: Jan 2017

So happy to hear your feeling better too. 

May it always be so.  

I think you’re NED.  Nice, Exceptional, and Dear!

pam

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thanks yout two! I like the NED designation, too! My husband might disagree, he thinks I'm pretty salty. Just yesteerday he was lamenting me feeling better. I'd said something about him not doing some of the things we need done around the house while doing things we don't need. He said "yeah, I can sure tell you're feeling better." Okay buddy, making picture frames for blank canvases that you're then going to bug me to paint to replace the pictures we already have in the living room doesn't seem as important as doing little repairs we need done.

Jan

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

So glad to hear! Gives us all Hope

 

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I cartainly hope so Jim! This cancer thing is such a roller coaster. I had no idea before I got it and learned so much. I thought you got the diagnosis, you got chemo and then you lived or died. I had no idea how varied at was for each person with the exact same cancer. It's so confusing and no guarantees on anything.

Jan

Ugur
Posts: 62
Joined: Mar 2018

From the bottom of my heart, happy to read that you are happy.

I hope you will get even better results on next scan.

Fingers crossed for you Jan.

Enjoy the quality time!

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thank you so much!

Jan

Phoenix_66's picture
Phoenix_66
Posts: 118
Joined: Jun 2017

Great news on the report. I know a NED would be fantastic but hey, we take what we can get right? Just another example of answered prayers if not always in the way we think they should be answered.

Brett

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thank you! It's so emotionally positive for me as well as physical. When I'm not in treatment I feel like I'm not a person with tumours in my lung, I'm just like everyone else. Last night I spent about twenty minutes catching my daughter's horse after walking way out in the field to get him. He's kind of a weiner that way and doesn't run off but will walk away when you go to put his halter on. Finally he stooped and let me and then I had to walk all the way back. But I wasn't tired after!!!! That's whats so amazing to me. I am so grateful for every day or even hour that I'm not fatigued and have no pain or nausea. Every time I'm able to do something I quietly say a quick thank you to the man upstairs. 

On the one hand I dislike being so grateful for being able to do the things other people can because nobody else has to feel like that. On the other hand I have so many things to be grateful for every day and I like the position it puts me in on an emotional level. It feels good to be so happy and appreciative of small things.

Jan

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