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Endometrial Cancer stage 4

Little_Sister757
Posts: 5
Joined: Apr 2018

Hello everyone, 

I am fairly new to this forum, and I just want to tell you all how extremely brave and amazing each and everyone of you is! Thank you all for showing so much support to one another and sharing your stories and experiences! Today, I would like to share mine...

Last month, my older sister was diagnosed with endometrial cancer...two days ago we found out that it is stage 4 and metasized to her lymph nodes in the supraclavicular area as well as extensive lymphadenopathy in the aortic region with nodule in the thyroid area and a tiny midlung pulmonary nodule, also they mentioned  diffuse intense tracer bone marrow activity, which they say may be due to her anemia. To say that these news shattered our world is saying nothing at all...she is only 38 years old...she is scheduled to start chemo this week in hopes to shrink her uterine and ovarian tumors in order to remove them and in hopes to get the cancer spread in the lymphs to shrink...hearing these news is ripping my insides apart...she has lost about 40 pounds since November and is in continuous pain...

I don't know what to think, what to feel, or how to pray...are there any endometrial cancer stage 4 survivors out here...please share your stories... ❤

Tamlen's picture
Tamlen
Posts: 319
Joined: Jan 2018

I'm so sorry to hear about your sister, Little_Sister757. The terrible news and continuous pain are a lot to deal with.

I'm in a similar boat, though I'm older than your sister. I was diagnosed in January, told it was probably Stage 1, then after my February hysterectomy was surgically staged at Stage 2, contained in the uterus. After pushing repeatedly for a CT scan, I learned a week or two ago that it's spread to my lungs -- Stage 4B. I start chemo next week.

There are Stage 4 survivors on this forum and I'm sure they'll be along soon to chime in.

Little_Sister757
Posts: 5
Joined: Apr 2018

Thank you for your reply and for sharing! I am so sorry that you are going through this and I wish you all the best and lots of prayers your way, stay positive! 

Armywife's picture
Armywife
Posts: 452
Joined: Feb 2018

Today is the one-year anniversary of my surgery.  I was thought to be Stage 1A and turned out to be stage IVB.  There is hope! 

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

Thank you for the positive reminder of hope !!

Jairoldi's picture
Jairoldi
Posts: 221
Joined: May 2017

Whew, that is good news to hear. So  encouraging. 

SF73
Posts: 311
Joined: Oct 2017

On your surgery anniversary! Hope you are celebrating it!

evolo58
Posts: 293
Joined: Dec 2017

Congrats ... and hope you stay NED for decades and decades!

Little_Sister757
Posts: 5
Joined: Apr 2018

Thank you!!! That is amazing news, and congratulations! Keep going forth! Lots of love! ❤

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2914
Joined: Mar 2013

little_sister, as you can see from the other wonderful women, there is hope.  Your sister is a statistic of ONE.  None of us fight this alone.   We need the love and support of our family and friends.   What a good sister you are.  Your sister is lucky to have you.

Little_Sister757
Posts: 5
Joined: Apr 2018

Thank you for those kind words, and I am so glad I was able to find this website, some of these stories are beyond amazing, I wish everyone to have a strong support system and no matter what to keep going forth! 

Little_Sister757
Posts: 5
Joined: Apr 2018

They decided to start her on immunotherapy with Keytruda today. According to her oncologist hematologist, gynecologist oncologist, and  along with the gyno onco speaking to other oncologist specialiats and academics during a conference for gynecology cancers, they all recommended Keytruda for her case...I've been reading up a lot on it and am just hoping for the best...

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2914
Joined: Mar 2013

Little_Sister, please let her know there are many more people than she can imagine praying for her and your family.

spudcat's picture
spudcat
Posts: 12
Joined: Apr 2018







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Hi Everyone,

I am brand new to this board.  I was diagnosed in 2015 with Endometrial Carcinoma FIGO II,G2, treated with TAH-BSO.  On April 26 I was given my results and am now FIGO Stage IV since it has mastasized to my right upper lung lobe.

I have been told by my Radiation Oncologist I will be receiving 5 consecutive rounds of radiation and then see my Gyno Oncologist for chemo treatment.  It has been explained to me that this metastasis is not curable but treatable.

I am finding that the doctors won’t give me any definite answers.  They seem to dance around the subject when asked if this is terminal, or what the mortality rate is for this kind of diagnosis.  I understand they do not like to do this however, I am very realistic and am the type of person who needs to know approximately.  If it’s a year or 10 years.  I also understand it is hard for them to say as we do not know yet how I will respond to treatment.  I have read that the prognosis of this is not favorable, if the mass/tumor is over 2 cm you have less chances of survival past 1 year. My question is, does this go into remission or has it gone into remission?  Has anyone gone into remission?

Anyone willing to talk/share their experience, I would be very appreciative of this. 

To all of you who have survived and are going through this now and perhaps again, kudos to you for being strong courageous women.  I beat it first time and you will too.  I cannot stress how important it is to keep that positive attitude.  It worked for me, yes there were days I was down and out but you must pull up your boots straps from the depth of despair and rage on…YOU CAN DO THIS…YOU ARE STRONG ENOUGH TO BEAT THIS!!  Please take those words to heart.  Surround yourselves with support, be it here, internet, facebook, or in person, home, group therapy, whatever, you need that push.

Thanks for listening and sorry for being preachy.  I am still reeling for my news.  Still very emotional.

rdifatta's picture
rdifatta
Posts: 15
Joined: May 2017

It's Baaack!

In this case I AM THE LITTLE SISTER.  My two older sisters grieve for me (as well as my loving partner).  I can't stand being the cause of their sadness.  I met with Oncologist yesterday and she confirmed what I guess I already knew- I am having a recurrence.  I have been in discomfort since the start of the year.  Pain in my abdomen has been constant.  Results of PET scan show scattered tumors present in the cavity of my abdoment.  They are small, and although they have metastisized, has not yet invaded any organs.  I guess that is the good news.  I was told that the next step is once-a-week chemo (taxol/avastin) for 6 months.  AAARRRR!!!  I surely did not get much NED time since last treatment was October 2017.

Does anyone have words of wisdom?  I read somewhere that there are survivors on this thread.  It would be good to hear from you.  I am demoralized, but trying to push forward and keep faith.

Rose

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Hi Rose

So sorry to here about your reoccurrence. I only had 8 months of NED so I know your disappointment. Mine also reoccurred peritoneal area. Megace is working for me. Perhaps inquire if it might be an option for you. Good luck. 

DoingItForMom
Posts: 4
Joined: Mar 2018

I don’t have much to add here except I am pulling for the Keytruda to work for your sister.  It is good to hear that some doctors are starting to use it in the case of endometrial cancer.

I’ll be watching this thread. Unfortunately, my mom‘s second opinion done at MSKCC concluded she has Stage IVB.  Her original oncologist said Stage III.  While I am bugged by the original doctor’s conclusion, the good news is the treatment is the same.  That said, I have been  upset for days.  The 5 year survival rates are not good for this stage.  However, I am staying strong in front of my mom.  She has not asked the doctor “how long do I have” and while I want to know, I respect her too much to ask the question.  My sole focus now is enco her to fight and getting her to her appointments (she wanted to stay local but we agreed to go to MSKCC going forward).

Keep the faith.

Harmony09's picture
Harmony09
Posts: 79
Joined: Aug 2017

Hi Little_sister757! I'm Stage IV and will be 44 next week. I have 4 children, to include a 2yr old and a 1yr old grandbaby girl. This cancer HAS to be a speedbump! I have too much to do! I had surgery last August. I did 3 chemo, 52 full abdominal radiation, 3 brachy therapy, then just finished 3 more chemo a week ago. I'm going to find out the results of my PET/CT Scan Friday.

I've read the stories of women on here with the same histology as me....serous and clear cells; and some have been doing well for 7, 11, and more years. So that tells me that those 5 year survival rate numbers are not going to put ME in a box! Hopefully the same can be said for your sister ;)

I'm in area code 757....are we neighbors? It would be REALLY nice to meet up at one of the support groups around here. I've been wanting to go. Maybe we could help each other:)

Harmony09's picture
Harmony09
Posts: 79
Joined: Aug 2017

Oh! I wanted to suggest that y'all looking for survivor stories...use the search tool. I think it's in the upper right corner. I used it early on, and have utilized it when I needed to get positive vibes;) You can type anything 

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

I used the search term Stage IV for the entire site and found LOTS of uplifting stories from people across a broad range of cancers. I bookmarked some of them to refer back to when I'm feeling badly, and it always helps. Maybe we should do a Stage IV roll call, just to see who shows up? I know I would !

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