CSN Login
Members Online: 5

You are here

Probability of stage1 recurrence

Justinb40y
Posts: 21
Joined: Jan 2018

Hello

What are the stats of stage1 recurrence?

 

Thanks

Justin

 

Glidergal365's picture
Glidergal365
Posts: 93
Joined: Feb 2018

I'm guessing there is no "easy" answer. At least, none that I have found. I think it may depend on the type of RCC and other factors. Maybe ask your physician? I've seen a wide variety and it freaked me out, so I decided that it doesn't matter because I am going to live each day to the fullest and hope I stay disease free! 

 

icemantoo's picture
icemantoo
Posts: 3137
Joined: Jan 2010

---you are going to have to help ud by givging us more info so that we can helpyou. Fill in your Bio on My CNS Space and give us some detail about you and your journey.

 

 

icemantoo

Justinb40y
Posts: 21
Joined: Jan 2018

Hello Icemantoo

Updated my space

Thanks

 

Justin

 

Wehavenotimeatall
Posts: 464
Joined: Aug 2017

i remember you 

You and Glider have the same papillary... your mInds must be synching

Justin for your small size stats says anything from 90 to 97%

i was in the same place as you six months ago...4.4cm .. and my fear was off the scale .. just like you

i lost my husband to cancer and have two sons. I did not want history repeating

We kinda both struck lucky 

Yours was small

Mine turned out to be a chromie which is supposed to be less aggressive 

i Have scared my Consultant into submission by practually ringing him every week with a new sympton

But six months down the line the fear is easing

the only thing we can do now is fight and ensure we get good testing

Hang on tight and it will get easier.. 

Annie

 

Justinb40y
Posts: 21
Joined: Jan 2018

Hi Annie

 

I hope you are on SP also.One member Z15 scared me mentioning  the percentage is 30 in one of reply to another person

 

Thanks

Justin

stub1969's picture
stub1969
Posts: 734
Joined: Jul 2016

Annie is right in the ballpark.  In my pre-op meetings with my surgical team they said that if it was stage 1 I had about a 5% chance of reoccurrence.  I try not to focus on those numbers...although it was a boost in my confidence.

Good luck!

Stub

Wehavenotimeatall
Posts: 464
Joined: Aug 2017

God I read that and my eyes missed the 30% bit

that is scary but not backed up

Urology Europe say 90% for five years and  vary for 10 years with lowest figure being 85% for stage one

those are old data too

 no idea where the 30% comes from

i need to explore this

Annie

 

 

Subscribe to Comments for "Probability of stage1 recurrence"