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There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do you have?

Devastated Wife's picture
Devastated Wife
Posts: 52
Joined: Apr 2018

There are several types of kidney cancer:

  • Renal cell carcinoma
  • Urothelial carcinoma (also called transitional cell carcinoma)  <---- what my husband had
  • Sarcoma
  • Wilms tumor
  • Lymphoma

Types of kidney cancer cells:

  • Clear cell
  • Papillary <---- what my husband had
  • Sarcomatoid features
  • Angiomyolipoma
  • Medullary/collecting duct
  • Chromophobe
  • Oncocytoma

source:  https://www.cancer.net/cancer-types/kidney-cancer/introduction

 ======================

What is/was yours? 

  ======================

Anyone else out there with transitional cell carcinoma (TCC) also called urothelial carcinoma (UCC) in the kidney?

It's the 2nd most common type of kidney cancer.  This type of cancer can happen in the bladder, ureter, urethra or kidney. It's the most common type of bladder cancer. 

source:  https://en.wikipedia.org/wiki/Transitional_cell_carcinoma

======================

Devastated Wife's picture
Devastated Wife
Posts: 52
Joined: Apr 2018

http://urology.ucla.edu/types-of-kidney-cancer

icemantoo's picture
icemantoo
Posts: 3160
Joined: Jan 2010

I had by far the most common. RCC Clear Cell

 

icemantoo

Tapman63's picture
Tapman63
Posts: 132
Joined: Dec 2017

3.4 x 3.3 cm.  I was lucky and it was caught early.

 

Jim

rhominator's picture
rhominator
Posts: 230
Joined: Nov 2015

Clear Cell mRCC (metastasized)

JoeyZ's picture
JoeyZ
Posts: 190
Joined: Mar 2018

Papillary Non-Clear Cell metastatic Renal Cell carcinoma, Type II. (Spread to lymph nodes & possibly liver.)

12 cm.

I was so happy to get that mess out of me 6.5 weeks ago! I got the rare type, most aggressive type, they told me. Foot in Mouth

But maybe they got it all. Had a huge thrombus that should've actually done me in, but I got lucky!! 

They didn't catch this early. I had no symptoms until it became a monster. That part is scary! 

I have 16 1/2" of cuts, an upside down Y. Can't wait for that to heal. Coming along nicely. I'm just getting impatient.

Trying to behave and take my 60 mg Cabometyx every day. 

Wishing you all well.

Steph85's picture
Steph85
Posts: 154
Joined: Feb 2018

I had clear cell RCC. My surgeon's PA said I had the best type. Lucky me I guess haha! 

Stephanie

Hoss79's picture
Hoss79
Posts: 78
Joined: Nov 2017

I had clear cell RCC.

stub1969's picture
stub1969
Posts: 756
Joined: Jul 2016

I'm one of the odd ones with chromophobe RCC

 

Stub

APny's picture
APny
Posts: 1883
Joined: Mar 2014

RCC, clear cell for me also.

klj15's picture
klj15
Posts: 38
Joined: Jun 2017

Chromophobe RCC for me too

daisybud's picture
daisybud
Posts: 440
Joined: Jan 2016

Rcc

kidneystoneblessing
Posts: 25
Joined: Aug 2017

Mine was a hybrid clear cell papillary, but had a TFE3 fusion deeming it translocation type.  Stage 3 with focal fat invasion 4x3.5x3cm tumor. Lymph nodes clean. 

Mighty Frog's picture
Mighty Frog
Posts: 125
Joined: Jul 2017

Mine are the most common one Clear Cell RCC 

Manufred's picture
Manufred
Posts: 212
Joined: May 2017

Clear cell RCC.

schmadj18
Posts: 2
Joined: Apr 2018

RCC

Clear Cell

penitent
Posts: 79
Joined: Jun 2016

My SIL, John, has RCC with 60% sarcomatoid features which makes it very aggressive.

Devastated Wife's picture
Devastated Wife
Posts: 52
Joined: Apr 2018

Thanks again everyone.  I read each and every comment -- probably more than once.

I appreciate all the responses.

Glidergal365's picture
Glidergal365
Posts: 93
Joined: Feb 2018

Papillary RCC Type 2

 

Nanaof10's picture
Nanaof10
Posts: 47
Joined: Nov 2017

Bi-Lateral Clear cell RCC (both kidneys) Waiting for surgery on my left. Surgery was Jan 24th on my right.

Max57's picture
Max57
Posts: 151
Joined: Mar 2015

RCC Clear Cell

HDPete
Posts: 13
Joined: May 2017

Papillary type 1

Cindy T in Washington's picture
Cindy T in Wash...
Posts: 27
Joined: Dec 2017

4.6 cm renal cell carcinoma

Optimisticgirl's picture
Optimisticgirl
Posts: 80
Joined: Aug 2017

Husband had ccrcc Stage 1 Grade 3  6cm x5 cm x 3.5 cm 

lobbyist0724's picture
lobbyist0724
Posts: 372
Joined: Sep 2016

CCRCC pT1a 3.2cm G2, partial cyst, partial solid mass.

skbyers
Posts: 1
Joined: Oct 2017

Hubby has metastic RCC with some rhabdoid features.  The RCC is being treated well with Sutent.  The rhabdoid is agressive and he has new mets from that. 

donna_lee's picture
donna_lee
Posts: 880
Joined: Feb 2009

Clear Cell Renal Cell Carcinoma....donna_lee

Anjas
Posts: 7
Joined: Apr 2018

My husband has mets of his chromophobe kidney cancer. Any advice is more then welcome

AnnissaP's picture
AnnissaP
Posts: 617
Joined: Sep 2017

I had Clear Cell RCC

kutzi17
Posts: 17
Joined: Apr 2018

5.3 cm right upper kidney. Clear cell RCC.

kiwi68's picture
kiwi68
Posts: 108
Joined: Oct 2017

I wa told RCC and instead was A cystic nephroma, also known as multilocular cystic nephroma, mixed epithelial stromal tumour (MEST) and renal epithelial stromal tumour (REST), is a type of rare benign kidney tumour.

Angiebby75's picture
Angiebby75
Posts: 177
Joined: Aug 2017

I had Clear Cell RCC 4.5 cm 

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

13.4 cm tumor. RCC unclassified with sarcomatoid and rhabdoid features. Grade 4

I guess this is very rare and aggressive. 

JoeyZ's picture
JoeyZ
Posts: 190
Joined: Mar 2018

Mark David, that sounds a lot like what I had also. My info is in my profile. They did call mine rare and agressive also. 

How are you doing now, 9 days out of surgery? I wish you well and hope you are doing really good.

We're all here for you, anytime.

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

Thank you! I was shocked when they told me how big it was and then I was speechless when they showed me the CT scan.  I can’t believe that I could have something that large in me and not have known.  Crazy.  I am actually about 6 weeks post surgery and I am feeling pretty good physically.  Emotionally - well that is day to day.  Pretty good during the day when I am busy but at night ... well there is a lot to think about which I am sure we can all relate to that.

Your surgery sounded very intense.  I am happy to hear that it went well and I hope your recovery was good and will continue to be good. When I go in for my 3 month post op I they will do all the scans, tests, etc. and I will find out what happens next.  Right now I am just waiting which is hard to do.

I appreciate the support.

Thanks!

Wehavenotimeatall
Posts: 472
Joined: Aug 2017

Gosh your head will be spinning

i hope you are getting lots of support

there are many treatments out there and one could be the one for you

the surgery is done so you can now focus on you

We have. So much knowledge here and on Smart. Patients

please let us help you

Annie

 

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

It was a crazy week from diagnosis to surgery to discharge from the hospital.  I don’t think it really hit me that I have cancer until I got home and started reading and researching. Recovery from surgery went better than expected - really no complications.  I was able to go back to work after 3 weeks - though probably should have waited a week.  

My next doctor visit is my 3 month post survery where I have a battery of tests and scans waiting to find out if they got all of the cancer or if it spread.  The initial scans were negative, lymph nodes were clear, adrenal gland was clear, margins clear, etc.  When I read my pathology report I was a little freaked out - and then of course I googled it and became even more freaked out.  

I am hopeful that when I go In my scans are clear but my doctor gave me about a 50% chance of that.  If not, then we will just deal with it day by day.

skiphuisking
Posts: 2
Joined: May 2018

I am interested in learning more about the scales and statistics as long as they are reasonably up to date and consider more than just age, stage, size, and grade. Any help will be really appreciated. I am scheduled for monitoring every 6 months for at least 3 years and then reassess. So again, any advice, information would be greatly appreciated.

Thanks

icemantoo's picture
icemantoo
Posts: 3160
Joined: Jan 2010

Skip,

 

At 2.6 cm you should be good for the long haul.

 

 

icemantoo

stub1969's picture
stub1969
Posts: 756
Joined: Jul 2016

Welcome, skip.  You're a few weeks out from surgery, so my advice is to listen to your body as you recover.  Take it easy when you need to and don't rush the process.  Recovery varies from person to person, so don't push it.

Good luck 

Stub

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